Another day
March 13, 2008 1:44pm
I just got back from the hospital again. It wasn't fun but the doctors said that I was going to be better now.... I hope there right. Swim season …
Progress
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Steph6
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About Me
Steph6
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About Me
I'm 16 years old and I was diagnosised with SLE 3 years ago. I have lots of heart problems and I'm only in 11th grade. My family supports me a lot.
I'm 16 years old and I was diagnosised with SLE 3 years ago. I have lots of heart problems and I'm only in 11th grade. My family supports me a lot.
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Interests
I LOVE to SWIM!!! But, I can't anymore because of my lupus. So it kind of sucks big time!!! I also like to horseback ride, watch movies, hang out with my friends, be with my family. I'm really do anything as long as its fun!!!
I LOVE to SWIM!!! But, I can't anymore because of my lupus. So it kind of sucks big time!!! I also like
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Recent Activity
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Journal
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Another Day
March 3, 2008 8:43pm
Me and my family just got to the hospital that I will be staying at for a few days and it was the longest ride of my life. My parents are driving me …
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Life could be better right now
February 28, 2008 5:12pm
I just found out yesterday that I have to go and stay at the hospital for a few days to try out this new drug on me. The doctors said I have to do it …
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Journal Entry for February 9, 2008
February 9, 2008 6:58pm
Its Saturday night and I'm doing nothing. I just found out from my doctors Thursday that they don't know if they can fix my heart as much as …
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Hugbook
I’m With You
i hope you feel better soon.I felt pretty bad a few days ago myself so I kind of know what you are going through. I will be here if you need me. Brenda
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Photos
Steph6 hasn’t uploaded any photos yet
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Support Groups
Close Lupus
When I was 13 yrs old I was diagnosed with SLE. I got so sick before the doctors caught it I went into a coma for 2 months, I have to take over 20 pills twice a day everyday. I have an enlarged heart with fluid around it and the blood isn't pumping to my body correctly. The doctors don't know how or what to do to fix it. That was the worst day of my life.
Treatments
- Cellcept Not Working
- I have to try another medicine because this is making me worse.
- Plaquenil Working / Worked
- This is working fine i think....
- Prednisone Somewhat Helpful
- I really don't like taking this but, its not really working but its all the doctors are giving me right now.
Close Heart Failure
When I was 13 yrs. old I was diagnosed with SLE and it put my heart into cardiac arrest. I have fluid around my heart, its enlarged, and it doesn't pump blood to the rest of my body correctly.
Treatments
- Zestril Working / Worked
- Its kind of working right now because that is all they are giving me right now. SO i hope its working.
