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  • About Me

    Image of CMLSam

    CMLSam

    Female, 37
    Montgomery, AL, USA
    Member since February 9, 2008

    • About Me

      Diagnosed 10/2006 with CML out of the blue; 2 young kids; married; controller of real estate company

      Diagnosed 10/2006 with CML out of the blue; 2 young kids; married; controller of real estate company

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  • Support Groups

    • Close Chronic Myelogenous Leukemia (CML)

      Diagnosed 10/2006 - thought I had flu; ER thought I had West Nile; have had terrible time with drugs - they all work for CML but I have had every side effect listed for every drug I have taken. Became immunocompromised so started taking gamma treatments and they gave me spinal meningitis - have had meningitis 7 times in past 8 months - stopped gamma; started Sprycel - it gave me meningitis too. currently taking Tasigna (approved in Oct 2007) but taking 1/4 dose of normal adult b/c side effects

      Treatments

      Gleevec Working / Worked
      horrible side effects
      Sprycel Working / Worked
      gave me spinal meningitis
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