Journal Entry for February 7, 2008
February 7, 2008 10:41pm
Keeping busy and on the go is who I use to be. As a full time dental hygienist and newly married life was good. I stated to feel less and …
RachelRay
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About Me
RachelRay
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About Me
Diagnosed withfibromyalgia 2007. Was a practicing dental hygienist currenly have taken a leave of absence due to my illness preventing a normal life. I love to make floral arrangements and have a small side business. My passion lately has been reserach and getting ahead of my ilnesses. New sleep study done in 08 showed alpha intrusions. Recently found out I was pregnant. Very excited hard to stop all meds. but will be well worth it. So far it is going ok. fibro has gotten worse and sleep is disrupted.
Diagnosed withfibromyalgia 2007. Was a practicing dental hygienist currenly have taken a leave of absence due to my illness preventing a normal life. I love to make floral arrangements and have a small side business. My passion lately has been reserach and getting ahead of my ilnesses. New sleep study done in 08 showed alpha intrusions. Recently found out I was pregnant. Very excited hard to stop all meds. but will be well worth it. So far it is going ok. fibro has gotten worse and sleep is disrupted.
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Hi I am writing to you because there is going to be a support group in Green Bay in Aug. on the 6th.at 6:30pm.. If you are interested give Sandy Buelow a call at 920-826-2727. Hope to see you there. ladybug987 Gina
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Hi, I'm starting a fibro. support group in the Green Bay area. If you are interested in joining e-mail me at 1ladybug@netnet.net my name is Gina
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Just passing, thought I'd say hi! Hope you're doing ok
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how are you doing today? I hope all is well with you carrie
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Right back at cha
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Close Fibromyalgia
In 2005 I was diagnosed with narcolepsy, a sleep disorder causing EDS and an irregular sleep pattern. In 08 I was diagnosed having fibro. Right now I am going through physical therapy, pool therapy and occupational therapy. I have researched a lot and have learned that for me that xyrem medication can help me with the sleep pattern thus with fatigue and pain along with a stimulant for day sleepiness. This is all in the works and I am learning, but it is hard to accept my limitations.
Treatments
- Aqua Therapy Working / Worked
- I feel somewhat relieved under water espically warm. My muscles seem to respond and feel better at the time.
- Chiropractic Adjustment Not Working
- Have not seen the chiro. in sometime now as about 6 months ago is when my pain increased dramatically and this is when I started with a new chiro. Could be a fluke but I have not been the same since these adjustments and the pain keeps worsening.
- Cymbalta Too Soon to Tell
- Have a lot of side effects nausea and diarrhea.
- Effexor Not Working
- Lyrica Working / Worked
- has really relieved my pain but had to decrease to once a day due to so much fatigue. This has been the onle help.
- Vitamin B12 Considering
- Diagnosed with B12 def. in 2005 took a supplement for awhile (500 mcg) didn't notice a difference took it here and there and now haven't taken for over a year. Recently had blood test to check levels and am waiting on that? Is this a commom thing found in those with fibro? It is such a rare def.?
Close Narcolepsy
Diagnosed two years ago always thought it was depression. I took naps and was very fatiuged and no one coould understand. I was called lazy etc. I worked full time and slept whenever possible in my care at lunch directly after work etc. Life has been better with a stimulant during the day, but more recently I am been and chronic pain and have been diagnosed with firbomyalgia. Anyone else experince this? My plan is to try the xyrem anyone with that experince?
Treatments
- Dexedrine Working / Worked
- It was life changing to be on a stimulant. I now have hobbies and live a little.
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