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  • About Me

    Image of Thehouseofboo

    Thehouseofboo

    Female, 23
    NJ, USA
    Member since February 2, 2008

    • About Me

      FUCK MULTIPLE SCLEROSIS! ::It's a cold, having just been mugged feeling.:: ::You watch me like a ten-car highway wreck with detached, vulgar curiosity. This looking down at the tops of the hats of us passers-by from your seventh floor balcony.::

      FUCK MULTIPLE SCLEROSIS! ::It's a cold, having just been mugged feeling.:: ::You watch me like a ten-car highway wreck with detached, vulgar curiosity. This looking down at the tops of the hats of us passers-by from your seventh floor balcony.::

    • Interests

      Somehow morphing MS from an autoimmune disease into the form of a person so i can beat the living shit out of them. Murder, son. Oh, and blowing up the Smirnoff distillery. I have a LiveJournal http://deadmyelin.livejournal.com/

      Somehow morphing MS from an autoimmune disease into the form of a person so i can beat the living shit

  • Recent Activity

    Recently:

    • 1 discussion post

    Yesterday

    Thursday

    November 9

    November 6

  • Journal

    • Beyond Scared.

      Mood October 31, 2009 4:17pm

      Since Wednesday i've noticed the vision in my left eye starting to go. I saw the neurologist on Wednesday of this week but i hadn't been too …

    • Atom Bomb.

      Mood September 26, 2009 10:51am

      I have a new favorite patient at work. Ms. Aspinwall. "DON'T CALL ME MS. ASPINWALL, CALL ME INGRID!!!"

       

      Okay.. Ingrid. She's 75 …

    • Behold The White Whore.

      Mood August 20, 2009 6:10pm

      AHH!! Tomorrow is the big day. All four wisdom teeth, chumps. I'm so nervous. I hope everything goes well and i'm not one of the unlucky who …

    • Jazz Hands.

      Mood August 10, 2009 3:15pm

      God, this whole site is so boring. I've got 2 and a half hours left at work with nothing to do so i come on this site thinking "oh, …

    • 187 On a Motherfuckin' Cop.

      Mood August 7, 2009 8:12am

      I think there's like a secret war going on. So many shootings have happened in the last 2 weeks where at least one cop dies and all the suspects …

    Read Journal

  • Hugbook

    Give Thehouseofboo a hug



    • Prayer

      From flibbidyfloo November 1

      Just read your journal. Wow, I don't really know what to say-- well, except that I hope it isn't PML. I'm here if you need to talk.

    • Hug

      From alitax86 October 31

      Boo,
      Do not immediately think it is PML. I had vision problems in the past and they came on VERY SUDDENLY. The first time it happened I was driving. I blinked my eye and went from normal vision to TRIPLE vision. Just like that. Fortunately, I was close to home and discovered that by closing one eye at a time I could see normally. The second time it happened, again it came on suddenly. It is sorta hard to explain, but when I turned my head to the side and back to the front, it took my left eye a bit more time to catch up. Please do not despair. Wait until you see your doctor. BTW, does your doctor have an emergency number when he/she is not around? Once I had an emergency with seizures on my right side on a Friday afternoon and although I could not contact my doctor, someone was covering for her. He did in fact contact her and she wrote a prescription, and had it sent to me. You are not alone. Sometimes we can reach out and contact someone, sometimes we cannot. Eye problems are one of the most common symptoms with MS. Lastly, if your eyes are going quickly, go to the emergency room and be admitted. No co-pay if you are admitted. For rapidly deteriorating eyesight, i would think you would be on some treatment not contraindicated by Tysabri. At the very least you should be admitted for observation. Is this an option for you? You are in my thoughts and chin up. Write me if you need a shoulder.

    • Flower

      From london24 October 31

      havent talked to u in a while how are u doing sweetie

    • Hug

      From warmheart October 6

      what a great story you have to be free so soon and so totally clear. It's like a miracle I guess. Your so lucky.

    • Hug

      From xxLostxx October 1

      Let me guess... The Pakistanis that move are also mean isn't it?

    Read Hugbook

  • Goals

    Progress

    0 %

    Goal End Date is Jan 1, 11 405 more days.
  • Support Groups

    • Close Multiple Sclerosis (MS)
      Type: Relapsing-remitting MS

      My name is Lisa. On January 26th i went to the ER after a few days of double vision. They ran some tests and admitted me into the hospital. I went through an MRI and on Jan. 28th, 2008 I was diagnosed with MS. I was getting worse, real fast. Then i started Tysabri and i've never felt better. Went from 20 lesions and counting to NONE! Hachi Machi!

      Treatments

      Copaxone Not Working
      Started in March '08. Experienced 2 acute attacks and was told i had progressed to SPMS. Doctor's took me off right away after latest MRI. FUCK COPAXONE!
      Prednisone Working / Worked
      I've taken it so much that it doesn't effect me anymore. So when i have a relapse i have to grin and bear it.
      Solumedrol Working / Worked
      Turned me into a complete psychopath. A drowsy, weak, psychopath. But it works. And that's all that matters.
      Tysabri Working / Worked
      08/19/08 Was my first infusion. Not even 48 hours later my vision had returned and even more so the following day. I was able to drive for the first time in a month. Also stiffness and pain in left foot. disappeared. I might be jumping the gun but it looks to be working. I absolutely love it. It's an amazing drug. It gave my lesions the business.
  • Groups

  • Friends


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