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  • Image of Thehouseofboo

    About Me

    FUCK MULTIPLE SCLEROSIS! ::It's a cold, having just been mugged feeling.:: ::You watch me like a ten-car highway wreck with detached, vulgar curiosity. This looking down at the tops of the hats of us passers-by from your seventh floor balcony.::

    Interests

    Somehow morphing MS from an autoimmune disease into the form of a person so i can beat the living shit out of them. Murder, son. Oh, and blowing up the Smirnoff distillery. I have a LiveJournal http://deadmyelin.livejournal.com/

  • Recent Activity

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  • Journal

    • Drive me to murder.

      Mood January 7, 2009 12:30pm

      I can't deal with this shit anymore. My mother started drinking about 2 days after she got out of the psychiatric ward. It's amazing how fast …

    • Ground Control To Major Tom.

      Mood December 31, 2008 10:52am

      Hmm.. what to write..

       

      I have another three days off of work. I had the 24-26th off last week and now 31-2nd. Hooray for shitty paychecks. …

    • Re-Post

      Mood December 27, 2008 12:59pm

      I posted this on the main board but i'm so concerned with what might have happened to me that i wanted to get as many replies as …

    • Solitary Christmas.

      Mood December 24, 2008 2:25pm

      Since mom's in the looney bin, Dad has gone down to south Jersey to visit his brother until Friday night, and Emma is going to Upstate New York …

    • Psycho.

      Mood December 21, 2008 11:13am

      Mom's being transferred from the hospital she works in, Holy Name, to the one that's right down the street from me, Hackensack …

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  • Hugbook

    Give Thehouseofboo a hug



    • Hug

      From AIMLESS Today

      are u north of me? or south? Have u lived all your life in NJ? How is your weather today? We got a few flakes. And it is windy!

    • Ray of Sunshine

      From AIMLESS Today

      Between Princeton and Trenton. I live in Hamilton, but grew up just outside of Princeton. I am a Jersey girl, no doubt!

    • Little Love

      From mooseyinn Today

      sending a little love your way.....

    • Rainbow

      From twinklee1 Yesterday

      hey lisa how you doing today? hope things are looking a little brighter today. i so hope a good smile comes across your face. twinks

    • I’m With You

      From twinklee1 Wednesday

      ooh, lisa my heart just breaks for you. i so wish you were mine; i so wish you got love, respect, and caring. it will be tough for you to believe me, but you do love your parents or it would not hurt so much. there is no way you should be the parent in that situation. and that is what you are--the only one with any common sense. i wish you did not have to suffer such abuse, and that is what it is. to top it off, you have MS. you not only have to deal with that, be a parent, and take care of them; take care of yourself; and deal with all the worries that are legitimate that are in your life. lisa, if you would lilke to talk, i can call you. please, lisa, i care about you so much. i do not know the reason our paths crossed, but God surely intended it to happen. the mom i wish i could be to you, twinks

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  • Goals

    Progress

    0 %

    Goal End Date is Jan 1, 11 722 more days.
  • Support Groups

    • Close Multiple Sclerosis (MS)
      Type: Relapsing-remitting MS

      My name is Lisa. On January 26th i went to the ER after a few days of double vision. They ran some tests and admitted me into the hospital. I went through an MRI and on Jan. 28th, 2008 I was diagnosed with MS. I was getting worse, real fast. Then i started Tysabri and i've never felt better. Went from 20 lesions and counting to 4 at max.

      Treatments

      Copaxone Not Working
      Started in March '08. Experienced 2 acute attacks and was told i had progressed to SPMS. Doctor's took me off right away after latest MRI. FUCK COPAXONE!
      Prednisone Working / Worked
      I've taken it so much that it doesn't effect me anymore. So when i have a relapse i have to grin and bear it.
      Solumedrol Working / Worked
      Turned me into a complete psychopath. A drowsy, weak, psychopath. But it works. And that's all that matters.
      Tysabri Working / Worked
      08/19/08 Was my first infusion. Not even 48 hours later my vision had returned and even more so the following day. I was able to drive for the first time in a month. Also stiffness and pain in left foot. disappeared. I might be jumping the gun but it looks to be working. I absolutely love it. It's an amazing drug. It gave my lesions the business.
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