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Journal Entry for February 26, 2007 Mood
Monday, February 26, 2007
Tried to change my PCP so I could get a referral to a rheumatologist (my current one won't give one), found out that I wouldn't be able to do that for another seven months because I'm under eighteen...

This sucks. -.-
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Comments

  1. KweebsLS

    My heart goes out to you. How are you feeling lately, still a constant or ups and downs?
    karenls in Pittsburgh, PA


    KweebsLS

  2. Celarnor

    Its pretty much constant; I've eliminated everything that isn't absolutely necessary in my life (which has cost me dearly with my parents, and probably wasn't worth it in the long run, since the stress from my activities isn't anywhere near the stress I have from them yelling at me day and night about 'being lazy in bed' and 'avoiding life'.


    Celarnor

  3. princessj515

    Why don't you try printing up everything you can find on the internet about CFS and explain to them that you think you may have this and if they are good parents they will be supportive and listen to you. Ask them to go with you to speak with your primary care physician. They can give their permission and then you can get a referral. I had to show my parents that the disease was real with all the stuff i found on the internet in order to gain their support. I may not have needed it for legal purposes but for emotional and financial I really needed them to believe me. Share with your parents the support group that you belong to and maybe they can read our experiences and get you diagnosed so you don't feel so crappy. I give full permission for you to print my comment and show it to them. I just got diagnosed with fibromyalgia aka CFS as well as postural orthostatic tachycardia which apparently is not common and I had a heck of a time trying to get a diagnosis. Even my psychiatrist had decided the whole thing was in my head and my depression. Then I went to the hospital for four days and they diagnosed it as cataplexy and found out it wasn't from the sleep study. So doctors can be wrong. (Thats probably why they call them doctors practices) lol. And what you are feeling is real and i think your parents need to support you.


    princessj515

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