Journal Entry for September 7, 2008
September 7, 2008 9:25am
Well finally...
We are taking our daughter to Birmingham Alabama to meet Dr. Korf and an Otolaryngologist Dr. Carroll.
There she will be …
Iceland
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About Me
Iceland
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About Me
Proud mother of 3 Villi 92, Svana 99, Álfrún 05. Svana has NF1 with all it's ugliness, mostly pexis trached at 15 months due to a large plexi from the left side of her neck extending into her nasal pharynx and the larynx, chronic aspiration, g-tube fed only, ADHD, Hearing impaired and much more...
Proud mother of 3 Villi 92, Svana 99, Álfrún 05. Svana has NF1 with all it's ugliness, mostly pexis trached at 15 months due to a large plexi from the left side of her neck extending into her nasal pharynx and the larynx, chronic aspiration, g-tube fed only, ADHD, Hearing impaired and much more...
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Journal
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Crazy times
August 8, 2008 6:32am
It's been a long time.
Things have just been crazy around here,
Any way the latest with my daughter is that we are going to Birmingham Alabama to …
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Journal Entry for February 21, 2008
February 21, 2008 9:40am
Well we saw the ENT yesterday and boy was that a waist of time
My daughter totally flipped out when she tried to do the scope through her nose!! …
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Journal Entry for February 15, 2008
February 15, 2008 1:46pm
Well I guess it's time to write something
This week has been really busy between my daughters appointments and me going to the dr. My DD has a …
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i am doing okay. your present contains hugs, kissess , prayers flowers, good luk, and all the other new smilies. thank you dear friend
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Hope you and the kids are well...Have A Happy Easter!!!
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Prayer
I hope that stupid Dr figures out something for you... I only could wish you were here in our country so she could get the help she needs...My prayers are with you all..Have A Good Weekend....
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I hope you have a great weekend. : )
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Thank you very much, yours are also........
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My daughter is 8 years old and has NF1. She has mostly plexis. She has a large one from the left side of her neck that extends to her nasal pharynx and her larynx, she is hearing impaired, has cronic aspiration,ADHD, and much more..
