Good friends
August 9, 2008 5:32pm
At long last, i have changed my face on DS, i've got my OK face back rather than frowny faces. Why? I'm still in awful pain, but in the …
dallin 
10:17pm, November 2, 2009
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About Me
dallin
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About Me
Diagnosed narcolepsy 2 years ago after possible 16-year history. Reluctant medication-taker although essential at moment to be able to work. Interested in finding more natural ways of managing N like diet, herbal supplements etc. I have 2 sons, who are 21 & 22, who i brought up single-handed and they've both flown the nest now.
Diagnosed narcolepsy 2 years ago after possible 16-year history. Reluctant medication-taker although essential at moment to be able to work. Interested in finding more natural ways of managing N like diet, herbal supplements etc. I have 2 sons, who are 21 & 22, who i brought up single-handed and they've both flown the nest now.
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Interests
Not much time for them at moment, you know how it is! But I am learning Spanish, and go to Spain as often as I can, love the easy-going lifestyle out there and the weather most of the time. When well, like to go to gym, cook and eat very healthy food.
Not much time for them at moment, you know how it is! But I am learning Spanish, and go to Spain as often
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Recent Activity
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Journal
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Hugbook
Thanks
Thanks I am not ready to talk about it yet, but thank you for your support and I hope you are feeling better and everything is starting to look up.
See You Later
i wrote out answers to your questions on topic "saw my rheumatologist today". hopw they help you understand it. if you have anymore questions, feel free to ask! take care....
Present
keep going dallin, keep goin x
Ray of Sunshine
I keep telling myself that everything will work out, jsut keep going one day at a time.
I hope you can carry on with this, and more of those days are good than bad :)
Ray of Sunshine
sending some sunshine your way, we all have been worried about what has been going on with you.
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Photos
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Support Groups
Close Narcolepsy
Diagnosed narcolepsy 2 years ago after possible 16-year history. Reluctant medication-taker although essential at moment to be able to work. Interested in finding more natural ways of managing N like diet, herbal supplements etc.
Treatments
- Provigil Somewhat Helpful
- Helps keep my eyes open enough to get through a p/t shift, but not really helping with cognitive function, concentration, memory, multi-tasking
- Ritalin Somewhat Helpful
- Clonazepam Too Soon to Tell
- Melatonin Too Soon to Tell
Close Healthy Eating
I try to eat healthily, and in a way that will hopefully reduce my pain and fatigue. I've greatly reduced my intake of additive-containing foods, especially ones that contain aspartame and other artificial sweeteners, because of the risks associated with them like brain tumours.
Treatments
- Atkins Diet Working / Worked
- I quite liked the Atkins diet had lots of energy while on that a few years ago but its quite a highmaintenance diet and difficult to follow when youre struggling with pain.
Open Pet Bereavement
I lost my beloved cat Jetson in Jan 07. He was only 4 1/2 years old but developed bladder stones that i didn't know about until it was too late. I miss him every day, to the point where i still expect him to walk in the room and jump on my lap. I miss him waking me up every morning.
Open Medical Mysteries
dallin hasn’t entered any details for this support group.Open Fitness Goals
dallin hasn’t entered any details for this support group.Open Career Changes
Career over more like! Struggling to keep working due to disability, and even worse, people's ignorance and intolerance of disability
Open Diabetes Type 1
My dad developed Type 1 at 20yo, 60 now, always controlled and mixed his own insulin, over last month has been having lots of serious hypos, sudden onset, and can't figure out reason why.
Open Degenerative Disc Disease
dallin hasn’t entered any details for this support group.Open Fibromyalgia
Got initial dx of fibro in Aug 08 after 3 months of excruciating pain in legs and feet, on top of pain in neck/shoulders for over a year, due to disc problems, but totally unresponsive to physio or painkillers. Just waiting to see specialist fibro physio now, nothing else advised by rheumo, just taking diclofenac and tramadol for pain, but difficult as incompatible with meds for narcolepsy
Treatments
- Cymbalta Somewhat Helpful
- Lyrica Too Soon to Tell
- Physical Therapy Too Soon to Tell
- Gabapentin Too Soon to Tell
Open DailyStrength Members Community
dallin hasn’t entered any details for this support group.
