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ReedM 
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About Me
ReedM
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About Me
54, single, retired at 50 due to health problems, diagnosed with ulcerative colitis at 21, primary sclerosing cholangitis at age 28, placed on liver transplant list in 1997 After being told I had a very short time to live on 6/12/08 Received transplant 6/15/08. Many difficulties but improving every day. colonectomy 1999, suffer from severe restless leg syndrome. Hobbies: golf, poker, reading, movies, music. 14+ year fob
54, single, retired at 50 due to health problems, diagnosed with ulcerative colitis at 21, primary sclerosing cholangitis at age 28, placed on liver transplant list in 1997 After being told I had a very short time to live on 6/12/08 Received transplant 6/15/08. Many difficulties but improving every day. colonectomy 1999, suffer from severe restless leg syndrome. Hobbies: golf, poker, reading, movies, music. 14+ year fob
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Recent Activity
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Journal
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Hugbook
Prayer
Just past two months now matey. Think about you often.
Superhero Status
I don't care if people think I'm retarded for sending you this...I heard it today and smiled and thought of you..I miss you my friend.
http://www.youtube.com/watch?v=NdY...-
Flower
Missing our evening dances Reed... missing you.
Hug
From nodp2day
August 28
See ya when I get there
Rainbow
I know you have found peace. Love and blessings. You were a great inspiration.
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Photos
ReedM hasn’t uploaded any photos yet
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Goals
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Support Groups
Close Cirrhosis
male 52, ulcerative colitis age 21, Primary Sclerosing Cholangitis age 28, placed on liver transplant list 1997 (still waiting), end stage liver disease almost total cirrhosis, colonectomy 1999, severe restless leg syndrome quit working 2.5 yrs ago due to health. Average time to death or transplant is 10 years due to lots of faith and a positive attitude I have beaten the odds by 13 years, but now find myself quite depressed am looking for friends for mutual support. LIVER TRANSPLANT ON 6/15/08
Close Organ Transplants
Single Male 52, diagnosed with ulcerative colitis at 21, diagnosed with Primary Sclerosing Cholangitis (malformation bile ducts in liver) at 28, placed on liver transplant list in 1997, due to change in rules by feds and the fact my disease does not seem to affect the right tests even though my symptoms continue to get worse I am still waiting for transplant, colonectomy 1999, severe restless leg syndrome. Seeking friends to communicate with. LIVER TRANSPLANT 6/15/08
Open Restless Legs Syndrome
Male 52 RLS since mid 20s now constant 24 hour day none of common therapys relieve symtoms or can't take. Also Ulcerative Colitis at 21, Primary Sclerosing Colongitis at 28, liver transplant list in 1997 (still waiting), colonectomy 1999, Started taking 1/2 hydrocodone 5 years ago have faught increases but now 1 every for hours and I live on edge of physical withdrawl and am miserable. Dr. talking about methadone or fentanol patch. Help I need friends who understand.
Open Crohn's Disease & Ulcerative Colitis
52 male, colitis at age 21, Primary Sclerosing Cholangitis in liver at 28 (may be caused by same immune system defect), Liver transplant list 1997 (still waiting) colonectomy 1999, last 5" of colon removed and rectal reconstruction if I ever have successful transplant, severe restless leg syndrome, looking for friends LIVER TRANSPLANT 6/15/08
Open Alcoholism
52 male, 13+ years sober and member AA, Joined site for numerous health problems (see profile) and found this group
Treatments
- AA Meetings Working / Worked
- Saved my life gave me a new life
