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  • About Me

    Image of JuliKS

    JuliKS

    Female, 44
    IA, USA
    Member since January 23, 2008

    • About Me

      I am a very busy mom and wife. I have 4 kids left at home (his and mine) and 2 of mine grown and on their own. My kids are a blast and my husband is so supportive and understanding. I also have 2 grand-daughters that are a joy! We love to spend time on our boat (interesting now that I know I am photosensitive with an autoimmune disease!) I am an RN and have spent much of my career in labor and delivery. I am now a case manager and have met many brave "sick" people. Perhaps my experiences are what make me a good nurse!

      I am a very busy mom and wife. I have 4 kids left at home (his and mine) and 2 of mine grown and on their own. My kids are a blast and my husband is so supportive and understanding. I also have 2 grand-daughters that are a joy! We love to spend time on our boat (interesting now that I know I am photosensitive with an autoimmune disease!) I am an RN and have spent much of my career in labor and delivery. I am now a case manager and have met many brave "sick" people. Perhaps my experiences are what

  • Recent Activity

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  • Journal

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  • Hugbook

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    • Hug

      From heick February 12

      Hey Juli, just stopping by to say hello & see how you have been doing. Hope all is well in your world.....Love & Hugs, Deb

    • Hug

      From heick December 31, 2008

      Hi Juli, how are you doing? I know it has been busy, but write & let me know you are OK.......Happy New Year.....Love & Hugs, Deb

    • Good Luck

      From Poppycath November 27, 2008

      Hope that the appointment at Mayo has been fruitful. Cath

    • Celebration

      From heick November 24, 2008

      Wishing you and your family a very Happy & Healthy Thanksgiving....

    • Hug

      From heick October 30, 2008

      How did your follow up go at Mayo? I have been thinking about you. Love & Hugs, Deb

    Read Hugbook

  • Goals

  • Support Groups

    • Close Multiple Myeloma
      Stage: I

      At this time I have Smoldering MM.

    • Close Sjogren's Syndrome

      At this time my official diagnosis is UCTD. I believe I have Sjogrens. I "get" to start Plaquenil the end of March. My joints are pretty badly affected.

    • Open Lupus

      My rheumatologist is calling me Undifferinated Connective Tissue Disease. I do have the Sjogrens dry eyes. My joints are pretty painful and swollen and seem to keep getting worse. I also have fibromyalgia. I will start Plauenil the end of March and really hope it helps. Sometime I don't have the energy to even breathe.

      Treatments

      Neurontin Working / Worked
      Plaquenil Considering
      WILL START AFTER MY EYE EXAM THE EHD OF MARCH
    • Open Fibromyalgia

      Treatments

      TENS Working / Worked
      Wonderful distraction!
      Ultram Working / Worked
      Just changed to extended release-so far so good
      Baclofen Working / Worked
      I take it only at night.
    • Open Pulmonary Fibrosis

      JuliKS hasn’t entered any details for this support group.
  • Friends


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