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  • About Me

    Image of Stepenlite

    Stepenlite

    Male, 53
    WA, USA
    Member since January 21, 2008

    • About Me

      My MS diagnosis came in 2004 when I was 49. The diagnosis came within a month of onset of the first symptoms. With me, it was double-vision. I got sober in 1995. There was a little two-month indescretion with prescription pills, so my sobriety date is 1/22/2004. Other little blessings have been bipolar disorder, and Trigeminal Neuralgia.

      My MS diagnosis came in 2004 when I was 49. The diagnosis came within a month of onset of the first symptoms. With me, it was double-vision. I got sober in 1995. There was a little two-month indescretion with prescription pills, so my sobriety date is 1/22/2004. Other little blessings have been bipolar disorder, and Trigeminal Neuralgia.

  • Journal

    • T.N.: Carbamazepine Withdrawel, Mania

      Mood July 27, 2009 1:07pm

      I was taking a very high dose of this for the Trigeminal Neuralgia, 2400-2800 mg/day. After surgery, I tapered off for a few days before I was …

    • Trigeminal Surgery

      Mood July 22, 2009 1:15pm

      I had something called Trigeminal Nerve Gangliolysis with Radio Frequency.  http://en.wikipedia.org/wiki/Trigeminal_neuralgia It's been …

    • This entry is private

    • This entry is private

    • Inteferon Flu

      Mood January 31, 2009 1:15pm

      Nothing new. Just sick from the inteferon. And other than my brother, I  don't bitch about it to any "real" people. Every so often …

    Read Journal

  • Hugbook

    Give Stepenlite a hug



    • Hug

      From JustBrandi February 24

      Long time no hugs and stuff. XOXO Missing you!! PS - try not to bounce yourself off crap too often, I've heard it's not good for us...

    • Get Well Soon!

      From PearlD February 8

      Glad to hear you're okay. Take it easy huh - we're not meant to bounce you know!

    • Hug

      From barb624 February 2

    • Hug

      From Chap February 1

      I just wanted to stop by and leave a few words. I have been gone for awhile because of health problems but it is so good to be back. May the Lord's blessings be upon you....Chaplain Turner

    • Prayer

      From MrLaMar February 1

      my mother did interferon for a good 5 years or more. It really drained her and took her away from the world. It wasnt until she couldnt afford it and insurance stopped covering it that she stopped. She became happy once she stopped taking it and began to live life again. My prayers are with you

    Read Hugbook

  • Support Groups

    • Close Multiple Sclerosis (MS)
      Type: Relapsing-remitting MS

      I was diagnosed in March of 2004. For the most part, I'm still in pretty good shape.

      Treatments

      Avonex Working / Worked
      No new lesions, so I'll say it's working. The side-effect are tough sometimes
      Baclofen Working / Worked
      I'm at 20mg x3. Works for spacicity and the jumping legs. I have a problem with double vision though.
      Physical Therapy Working / Worked
      I participated for 8-weeks in 2007, and my balance improved greatly.
      Provigil Working / Worked
    • Close Alcoholism

      I started drinking "professionally" at 17, and got sober at 39.

      Treatments

      12 Step Program Working / Worked
      I've done the AA program since 1995. I started hitting an NA meeting in 2004. I'm into sponsorship and steps.
      AA Meetings Working / Worked
      Meetings are the anchor of my life.
    • Open Bipolar Disorder

      I had my first manic attack in 1999. Prior to this, the struggle had been with depression.

      Treatments

      Abilify Working / Worked
      Stopped taking it after a few months. Didn't seem to make much of a difference.
      Lamictal Working / Worked
      300mg/day This worked when nothing else did. I've used as much as 600mg.
      Seroquel Working / Worked
      100-200mg/day. It puts me right out. And I'm gaining weight!!!
    • Open Trigeminal Neuralgia

      I originally was diagnosed by my dentist. A friend had mentioned TN the day before my visit, so armed with this information my dentist knew what to look for. She refered me to my neurologist, who treats me for MS, and put me on Tegretol.

  • Friends


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