Journal Entry for April 5, 2007
April 5, 2007 11:44pm
Hey, I'm still holding on. Sorry I haven't hugged any of my friends, Lately, but know that I am always thinking and praying for you. My health is …
armchrqb
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About Me
armchrqb
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About Me
I have multiple health issues, but the main two are MS and COPD; I am on disability...and I'm scared. It seems every day, it's another doc, another test, another problem...I am studying "Mind, Spirit, Body"...has been wonderful in helping me cope! Hi New Friends...Can never have enough of you!!
I have multiple health issues, but the main two are MS and COPD; I am on disability...and I'm scared. It seems every day, it's another doc, another test, another problem...I am studying "Mind, Spirit, Body"...has been wonderful in helping me cope! Hi New Friends...Can never have enough of you!!
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Interests
I coach Football and Pole Vaulting; Landscaping my own yard; almost anything peaks my interest...I like to know a little about a lot...
I coach Football and Pole Vaulting; Landscaping my own yard; almost anything peaks my interest...I like
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Journal
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Journal Entry for March 8, 2007
March 8, 2007 12:03am
Well, I had Part one today! Kind of a stupid test, for someone who can't swallow! It was two types of Barium, a Tablet, and 600 views!! Pill got …
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Journal Entry for March 6, 2007
March 6, 2007 11:06pm
Well, y'all do this so effortlessly, I thought I'd give it a try. I have several communities (Crohn's is my hubby), and I could easily add 10 more. …
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Hugbook
Hug
Here's a hug, and I'll also keep you in my prayers. There are SO many thing that can go wrong, in life, today, isn't there? Since I have been communicating with people from DS, I have found that my problems are SMALL, compared to a LOT of others. I enjoy keeping touch with friends from DS, and anytime you feel like talking, just send me a message, OK? I DO know, from my own experiences, that it really helps to talk amd write about it, so keep on talkin', OK? SK77
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Hug
Just wanted to say your still in our prayers.
Prayer
KEEPING YOU IN MY PRAYERS
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Hug
Hi hope your doing well and having a good summer. Keeping you in my prayers.
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Hug
hey julie im laughing right now because when i said sob in my letter i meant(short of breathe)not son of a bitch lol which i am a lot. ask my kids they will tell you. i think thats why they dont come around. i tell them the person i was is gone and this is a new person, like her or not, this is it. i just feel that they can call, or come over once a week. oh well. have you thought about getting a scooter?? would you be able to use 1 of those?? their after me to get 1 but if i do i would be giving up so im not right now. my knees give out on me, when i get out of bed they fold and im not skinny. actually i could loose a good 50lbs. which im trying to do . been eating healthy since oct. no scale as its not about #'s.i guess when your not active like i am, and have a steriod in your meds. and quit smoking etc. and of course the comp. is my life. but house work and cleanlines come 1st. i call bingo here twice a month. they enjoy it ,myself i could care less. i came here 1 year ago and thought my god these people do nothing.charlie and i were semi retired and on fridays we were gone doing things. so i came here full of energy. (as much as i think i have)i organize pot luck dinners etc. last night was bingo so i surprised them and brought down sugar cones and choc. peanut butter fat free ice cream. they all went crazy. people tell me im nuts as no one else does it but thats me. i alway7s do something. and i didnt have any either. i was in the food service business as a manager for 15 years. its bull work and hard work and long hours. i used to do all the orderring, cooking waitting on the people and cleaning up. i had 2 people working for me. it was an executive dining room and 2 cafeterias. some times there were cocktail parties, private dinners etc made for a long day. ok im shutting up now lol nancy
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Support Groups
Close COPD & Emphysema
I am 43; married my high school Sweetheart 28 yrs ago. I coach Football, and Pole Vaulting. My husband, Jeff, has Crohn's Disease. I have MS and COPD. Our children are our daughter, Jaime (23), and son (21). I am on disability; after spending 28 years in the restaurant biz...been hard to have the empty nest, and no job. It's very lonely for me; and I often feel like I am a burden. Mostly, I'm scared. I didn't realize all the implications of COPD. Am I going to die...what do I tell my family?
Treatments
- Albuterol Working / Worked
- the only pain is that I have to remember to take it everywhere I go, and it's so bulky w/the air chamber.
- Combivent Working / Worked
- Advair Disc...not sure if it is making a difference; hard to tell
- Spiriva Working / Worked
- Instant help...in a week, I felt like a whole new person...only problem is I've been instructed to take in AM, and it doesn't last 24 hours. I recommend it, tho'.
Close Crohn's Disease & Ulcerative Colitis
dx'd at age 24, has been treated for approx. 20 years. One major surgery, in 1988, life-saving. Fistulas attached themselves to three major organs! Did not require a colostomy bag, but right at the border. Stayed in remission for 12 years, took two more to get it back in remission, without surgery. Was in a double blind study, but got worse, so he was pulled off it, and given the actual drug.
Treatments
- Asacol Working / Worked
- One of the first meds Rx'd. Worked well at the time, but only when the Crohn's was in a minor state. No longer taking it.
- Avoid Certain Foods / Chemicals Working / Worked
- You know most,but,Pasta is NO-NO. Purchased cook book for CDUC. Silk Vanilla, slightly thicker than milk, nobody minds,cook with it Happy eating Oreos and "milk" (Silk)!
- Azathioprine Working / Worked
- Definitely works. 50 mgsX3, helped put him back in remission. Don't know why, but non-generic version (Imuran) seems to work better.
- Azulfidine Working / Worked
- took in early stages...worked for awhile. No longer taking this med, but worked in the beginning
- Flagyl Working / Worked
- 500 mgsX2; seems to work best when piggy-backed with other meds. Anti-bio's is more profalactic, we think.
- Prednisone Not Working
- Only took this in the Hospital, when dx'd, and then after surgery. Suffered from severe Edema, from the Steroids. Cannot take anymore
- Humira Working / Worked
- Double Blind Study for Abbott. Rx not avail,yet;ask doc about study! Got worse on the study,stopped,takes real good stuff now. Has to keep journal, & self inject/stomach
- Cipro Working / Worked
- Rectal abcesses;but has to start right away. Average 1 abcess per month;last a wk or 2 Cannot drain/surgery, locale in bad place. Cipro helps/used with Oxy when needed
Open Raynaud's Disease
armchrqb hasn’t entered any details for this support group.Open Fibromyalgia
armchrqb hasn’t entered any details for this support group.Open Depression
Type: Clinical (Major) DepressionPlease, feel free to visit my Profile! It's so great to be able to communicate with people in your "boat". I promise I'll hold one oar, if you'll hold the other!!
Treatments
- Psychotherapy Working / Worked
- Very spiritual;have an addictive personality,so went in search of a Facility to help move forward,I go to Trinity Wellness 1X week. Take Wellbutrin,Remeron.Seems to work.
Open Essential Tremor
Treatments
- Inderal Working / Worked
- Use 2 caps of 60mg;& a booster of 30mgs, when needed. Only thing we could find to control tremors.
Open GERD & Heartburn
Treatments
