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Another day, another flare Mood
Monday, April 20, 2009 | A General Update story

So, I thought I was doing really well since I haven't had a flare since November (I think that was my last flare- I got sick in Feburary but that was just a virus that was going around since I didn't react to the prednisone like I normally do.)

 

So I woke up this past Friday and immediately knew it was the begining of a flare up. Every muscle in my body ached and was tender to touch. My entire back hurt, my neck, and my head. That progressed to my usual fever, severe unwavering headache, and the inability to completely swallow my own saliva due to my glands being sore. Each time I get sick, I feel exactly the same. Doctors can't see me today, and today I've feel the worst. I refuse to take anymore prednisone because it made me gain weight and has awful side effects. I guess since I'm laid off (have been since the end of Feb), I can afford to lay in bed.

 

Oh and by the way, did I tell you that I was basically forced to leave my company because they had been discriminating against me due to all my sick time and doctors appointments?? What am I supposed to do? Anyway, I'm not going to go on a tanget because I could go on about that forever- but how am I supposed to ever be sucessful in my career if I'm constantly getting these horrific fevers and need to go to the doctors on a regular basis?? And in addition, WHY can't they give me a definitive diagnosis??????? It's been 2 years since the doctors finally realized that I must have an autoimmune disease, and 7 years since I've been getting sick.  

 

Anyway, I feel like absolute crap, and thankfully, my mom had off today and is coming over. My boyfriend works ridiculous hours so I don't expect to see him tonight. He gets stressed out when I am sick because he doesnt understand the whole doctor appointment issue and thinks I'm making excuses not to go. The only thing the doctors can continue to do is take my blood to see if there has been any changes. Other then that, they just treat the symptoms as they come. I haven't been that consistent in taking my prednisone ever since I stopped having a routine, so it could potentially be my fault for this flare. Ugh...what am I going to do with out health insurance???? Ahh... I don't even want to think about it...I'm gonna go lay down and will this fever and pain away.

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