Jessicle's Journal

Hi again.

Ok so I just had my first appointment yesterday with infectious disease, and it was promising in the fact that this doctor is AWESOME. She seemed very involved and thorough with my case. She ordered 25 tubes of blood for tests. She wants to look at me from every angle and figure out what is going on. I told her about my theory of how the Lymes mimicked an autoimmune in my bloodwork and that I only have CFS, and she said that it was a great explanation, but that my ANA was way too high to not be an autoimmune disease. She said that my disease is just blossuming and has not fully developed yet. She still believes that it is Lupus and something else overlapping. That was scary. I just really don't want to ever have any organ involvement. I would be devestated. My aunt just died this week and I was at her viewing last night, so it got me thinking about things. I don't want my quality of life to be affected by this. I want to live my life to the fullest and not be held back because I'm so exhausted all the time. I don't want to not be able to travel or to walk and see things because my ankles, legs, and back hurt too much. I want to be able to walk into a crowded room again and not get anxiety or feel irritable. I want to break free from these autoimmune chains that seems to be dragging me down. Anyway, at least I finally have doctors that care about figuring out my disease. I am being referred to a hemotologist as well. Now I have my team of doctors finally. I have my new primary diagnostic doctor, infectious disease doctor, rheumatologist,  and hemotologist so far. I just want to nip this in the butt and get on with my life. My wrists and hands are driving me crazy...so I have to go now.