New Symptoms..oh yay
July 20, 2009 10:39am
Hi again..
Ok so it's been a while since I've been on here. I try to avoid coming on here as it is a reminder of my ongoing mystery …
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Jessicle
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About Me
Jessicle
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About Me
I am the oldest of 5 siblings and my parents are divorced. I love to write and listen to music. I have great friends and an amazing, supportive boyfriend. I really want to hear how other people cope with autoimmune diseases, because sometimes I just want to scream. Especially since they haven't ruled out which type of autoimmune disease I have yet. I'm up for any suggestions and ideas that can help my case.
I am the oldest of 5 siblings and my parents are divorced. I love to write and listen to music. I have great friends and an amazing, supportive boyfriend. I really want to hear how other people cope with autoimmune diseases, because sometimes I just want to scream. Especially since they haven't ruled out which type of autoimmune disease I have yet. I'm up for any suggestions and ideas that can help my case.
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Journal
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Another day, another flare
April 20, 2009 12:08pm
So, I thought I was doing really well since I haven't had a flare since November (I think that was my last flare- I got sick in Feburary but that …
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Primary Doc is a waste of time
December 12, 2008 3:29pm
So I just got back from my new primary doctor appointment. What a waste of time. I'm so aggravated I could scream. This week has been hell. …
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I.D. appointment follow up
December 5, 2008 12:11pm
Hi again.
Ok so I just had my first appointment yesterday with infectious disease, and it was promising in the fact that this doctor is …
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Hugbook
Hug
Hey sweetie, how are you feeling? if you want please write me anytime. How is the brain fog? Do you have any?
Hug
hang in there do your joints still hurt
Hug
hey... i have been diagnosed wth lupus last week,.. i hope you fell better soon , God bless
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I’m With You
when did you get diagnosed? hows urs?
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I’m With You
hi um.. I have been in remission for lets see like a couple months now...since september i believe. yep. thanks for asking!
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Support Groups
Close Lupus
I have been sick for the past six years. Doctors thought I had tonsilitis, until they took my tonsils out and I still became very ill quite frequently. It wasn't until this past summer when new symptoms developed that I spent four days in the hospital, with every type of doctor checking me out. I still do not have a definitive diagnosis, but they are almost positive that I have lupus. I have 6/11 symptoms, but there is another complication. I was also
Treatments
- Prednisone Working / Worked
- gave me insomnia, and frequent trips to the bathroom...but it worked immediately
- Sleep Working / Worked
- Sleeping on a schedule, routine basis really helps. Rest as often as possible when flares occur.
Close Lyme Disease
Somehow, I have both early stage Lyme disease and Lupus. I was just treated for Lymes with a little over 1 month of 2 different antibiotics. This lead me to get C.Diff. I just want to catch a break!!!!
Treatments
- Amoxicillin Too Soon to Tell
- After one week it started to affect my stomach. I became nauseated.
- Ceftriaxone Too Soon to Tell
- After being on meds for a few weeks, my stomach became highly irritated and upset.
Open Anxiety
Treatments
- Lexapro Working / Worked
- It has helped me out dramatically-- mostly with my irritability and mood swings. I feel much more level headed and grounded. I still will feel a slight pang of anxiety sometimes, but not nearly as bad! It has helped me out a lot and I highly recommend it.
- Positive Thinking Somewhat Helpful
- Xanax Working / Worked
- I take it as needed for huge panic attacks. It works sometimes more then others.
Open Environmental Allergies
I am allergic to everything under the sun! I've learned to live with it though.
Treatments
Open Chronic Fatigue Syndrome
I am pretty positive I have CFS instead of Lupus or Rhuematoid Arthritis, considering my bloodwork only indicated an autoimmune when I had Lymes. Since I've been treated for Lymes, I still get the same flares, but my bloodwork appears normal. I had Mono when I was 15, and have been getting sick ever since. My Rheumy doctor thinks I have this, but hasn't given the final diagnosis yet.
Open Hypoglycemia (low blood sugar)
Whenever I eat certain foods or go a certain period of time with out eating (like 4 hours), I get suddenly shaky, weak, lose sight and feel nauseated. If I don't take care of the symptoms by eating immediately, I will faint or throw up.
