Sad Experience For All
November 14, 2008 11:59pm
Dear DS Friends,
First the good news. I successfully completed my detox off the fentyl patch and the dilaudid after …
Progress
30 %
ElaineBwn 
3:15pm, January 15, 2009
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About Me
ElaineBwn
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About Me
A former teacher. Now disabled with fibromiaga, bipolar disorder, and serious back and neck problems. I was told that I was disabled when I was 31 and now I am 59. That's a lot of years to live in pain! I also have post- tramatic stress disorder, and ADD.I graduated from the Univ. of FL in Gainsville, FL and got a bachelor's degree in English education and journalism. I was married for 32 years to a high school sweetheart who turned out to be a Dr. Jekyl/Mr. Hyde. In high school he was voted most likely to succeed, and he was president of the class and president of student council. He always appeared charming to those who thought they knew him. The abuse was our dirty, little "secret". He was an alcoholic and a drug addict and did not get sober until after we divorced. When it became obvious that my life was in danger, I finally got the courage to divorce him.It was the hardest thing I ever did in my life. I remarried 6 months later, and now have a beautiful relationship with the best man imaginable.He was an alcoholic but has 15 yrs. sobriety. I have never seen him take a drink. Right after we got married, we discovered he had advanced prostate cancer. He was given 2 years to live. It is now almost 4 years later and he is doing poorly. Actually, he's in poor health due to COPD and cancer. He continues to smoke, and the cancer is nolonger in remission. I have a beautiful daughter, Lisa(32); and a handsome, John, (34)that I dearly love. Our babies at home are two small toy poodles named Angel and Bocefus. Will start an editing job for a publishing company in 2008 if all goes well. I'll be reading scripts and editing them if they are worth publishing. My daughter Lisa is pregnant and I'm expecting my 1st grandchild in March! It it with great grief that I must share this. My grandson died in utero when he was 5 months old. He had no heartbeat, and my daughter had to have a D&C. We pray she can get pregant again despite her polycystic oviarian disease. They can start trying again in March. Please pray for them.
A former teacher. Now disabled with fibromiaga, bipolar disorder, and serious back and neck problems. I was told that I was disabled when I was 31 and now I am 59. That's a lot of years to live in pain! I also have post- tramatic stress disorder, and ADD.I graduated from the Univ. of FL in Gainsville, FL and got a bachelor's degree in English education and journalism. I was married for 32 years to a high school sweetheart who turned out to be a Dr. Jekyl/Mr. Hyde. In high school he was voted most
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Interests
I love fishing, playing with my two small toy poodles, seeing movies, watching TV, crafts, and landscaping and gardening, I'm addicted to gambling, but I have it under control now. I love my computer and playing computer games. I love to read and do crossword puzzles. I recently fulfilled a lifelong dream by going to Hawaii thanks to 2 of my DS friends who live there, and a husband who knows how to save money. The hightlight of my trip was being with my friends. The trip would have been nothing without them. They showed me what true love and acceptance are really about, and for that I'm eternally grateful!
I love fishing, playing with my two small toy poodles, seeing movies, watching TV, crafts, and landscaping
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Recent Activity
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Journal
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Sad Experience For All
November 14, 2008 11:50pm
Dear DS Friends,
First the good news. I successfully completed my detox off the fentyl patch and the dilaudid after …
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Sad Experience For All
November 14, 2008 11:50pm
Dear DS Friends,
First the good news. I successfully completed my detox off the fentyl patch and the dilaudid after …
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Victory and Defeat
November 7, 2008 3:46pm
To all of my dear, dear friends who have prayed for me and supported me during my hospital stay in detox, words cannot …
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Hugbook
Hug
Hug
Hello,
Haven't heard from you in some time hope all is going well with you. Hugs N.
Moment of Peace
Elaine:
Well its been a long time since I have heard from you. I sure did think we were friends and then I haven't heard from you. I do hope nothing has happened and that you are well. Let me hear from you if you want to. Rachel
Ray of Sunshine
hugs!!! hope u have a great week!!!!!
Hug
Thank you for the poem and Erma Bombeck's list. I just talked with my youngest son Adi in the Air Force. He has been taking piano lessons 1 mo now and played classical music to me over the phone. He invested in an 88 key keyboard. In August he will get a promotion and try to get a place of his own. It made me really happy that his life is going so well.
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Photos
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Goals
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Support Groups
Close Fibromyalgia
Treatments
- 5-HTP Working / Worked
- What is This?
- Acupuncture Working / Worked
- worked, but too expensive
- Aqua Therapy Not Working
- We have one at home, but the jets aren't strong enough.
- Cyclobenzaprine Not Working
- It made me feel spaced out and did nothing for my muscle spasms.
- Duragesic Patch Not Working
- I got so constipated that my IBS flared up, and I ended up having no life at all. I had to use laxatives just to go poop.After being on it for years combined with dalaudid,I put myself in rehab to get off all narcotics, and I've never felt better. Now I deal with my fibro with ultram and lyrica.
- Effexor Not Working
- Was working great, but it doesn't seem to work anymore. I need to talk to my doctor about this.
- Heat Working / Worked
- I use it all the time
- Lyrica Working / Worked
- I use this only when necessary, otherwise, it builds up in my system, and I sound like I'm drunk. This drug, however, works great when I'm in an acute fibro flare.
- TENS Not Working
- It never helped at all.
- Ultram Working / Worked
- It's not great, but it helps a little bit with the back pain.
- Walking Working / Worked
- It helps fantastically when I do it ,but most of the time Im too lazy or hurt too much to do it.
- Zanaflex Not Working
- Didn't work at all.
- Walking Working / Worked
- Its the best for of pain control Ive tried. I can often walk my pain away.
Close Bipolar Disorder
I'm Elainebrwn. I'm also in the fibromyalgia support group. I You can read my story then until I have time to write my bipolar story here. Please be patient with me. Right now it's late, and I need to go to bed.
Treatments
- Abilify Not Working
- Bad side effects, but I don't remember whay they were.
- Ativan Working / Worked
- I take klonopin-a drug in a similar class. It helps avoid or get rid of anxiety attacks and nervousness.The only side effects I notice is a dry mouth.
- Depakote Not Working
- I developed 30% deafness in each ear, and feel it was because of the drug. So I changed to lamictal, and it works great, has fewer side effects than depakote. I nolonger get manic provided I get enough sleep and take my meds on time everyday. No noticable side effects.With the depokote, it dried out my eyes snd mouth. I got a lot of new cavities, and my eyrsight was blurry.
- Group Therapy Working / Worked
- Was in it for only a short time because we moved, but I liked it, and it seemed to help a lot.
- Haldol Working / Worked
- Only if I had crossed the point of mania to temporary psychosis. It was used only in a hospital setting, and they gave me an injection that knocked me out.
- Lamictal Working / Worked
- Thw best mood stabilizer that works for me after trying several that didn't work. Until I found it, I was being a chemical nightmare, because I had tried just about everything else that was available at that time.
- Lithium Not Working
- Developed severe hand tremors, it messed up my thyroid, and I gained 30 lbs. in one month.
- Risperdal Not Working
- It was ok at low levels in a hospital setting and at home if my mania was getting way out of control, but the last time I was in the
- Seroquel Not Working
- Can't remember why.
- Tegretol Not Working
- Had triple vision, passed out, had violent shaking, was overdoesed accidently. I will never take this drug again. Was physically there, but mentally absent.
- Topamax Working / Worked
- Helps my back with nerve pain
- Wellbutrin Not Working
- Had an extreme bad reaction when my dosage was incresed. I experiensed confusion, got lost, got manic, and had a car accident.
- Zyprexa Not Working
- Threw up, and got manic.
- Psychotherapy Working / Worked
- It helps a lot to talk to my phychicharist. He is able to help me sort out my thinking dreams ets. and takeactionwhen I need toiss
