One day at a time.
May 16, 2009 7:16am
Still going strong.
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127 %
Daisymae39
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About Me
Daisymae39
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Journal
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Hopeful
October 27, 2008 10:08pm
I'm not sure why, but despite all the unrest in the world, and despite my physical challenges, I feel more hopeful than I have in a very, very …
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This entry is private
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forgot to mention I am also a member of the AlAnon One Day At A time group! LOL
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Big hugs.
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hey sweetie...I got rhuematic fever when I was 7 years old...my sister said one day I got on the couch and couldnt get off...my joints swelled so bad I couldnt move from neck down...I spent 3 months in the hospital...I remember getting 13 shots a day and penicillin...penicillin penicillin...I have low immunity today...I had problems with my heart like attacks twice a year til I was about 12...I was diagnosed with fibromyalgia in I think 2004...of course I had it before hand it kept getting worse and my pain management dr diagnosed it and put me on nortripyline and then they closed the clinic and I lost my dr...not too many drs here that acknowledge it exist...in the northeast corner of CT...
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hi Daisy Mae...would like to connect..we have alot in common...age..we have been on ds about the same time...the rhuematic fever as a child, the fibromyalgia and so on...would like to connect and add you to my friends list if that is ok...hugs and let me know...Debbie
Flower
Hi Daisy, I am so sorry your husband does not understand us. I have had FM for over 20 years and my husband is just now understanding my limitations. We had many years that I just acted like I was ok until I crashed. Just remember you have to take care of your self and stress will and does make your FM much worse. Take Care!
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Goals
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Support Groups
Close Alcoholism
My family of original struggles with alcohol. They know me as the one with the problem. I have gone two years without drinking, and loved it. Thought it would help the pain of fibro go away, but only creates bigger problem...gotta quit for good!
Treatments
- Ativan Working / Worked
- Lorazepam helps for anxiety, panic attacks
- Cold Turkey Working / Worked
- It has worked for a few years, then I fall off the wagon until something disastrous happens, then I stop for a few more years...I have now drank on 3 occassions in December.
- Outpatient Treatment Program Working / Worked
- I have seen a counsellor off and on for past 5 years. She is instrumental in helping me with social strategies, identifying the influence of my family on my drinking.
- Willpower Working / Worked
- I am determined to beat this thing once and for all
Close Fibromyalgia
In 1991 I started developing symptoms (after head on collision with truck). Over the years, the nature of the pain keeps changing, worsening, I want to know how to mediate the pain. And how should I plan for the future...
Treatments
- Aqua Therapy Working / Worked
- Fabulous!
- Duragesic Patch Working / Worked
- Worked, but by day two it gives me severe pain around the heart.
- Heat Working / Worked
- Wouldn't be able to move some days without it.
- TENS Working / Worked
- Helped me to get better on one episode when I was bed ridden.
Open Multiple Sclerosis (MS)
I have undiagnosed pain. Five years ago I had major relapse, and all they did was give me morphin for pain, and physio to get me back to work. I was not satisfied then, nor am I now, as I have different pain now that radiates down backs of all four limbs, debilitating pain. Why can't they test me for MS just in case they can do something to help, rather than just let me keep suffering. I'm not sure what the first steps are.
Treatments
- Aqua Therapy Working / Worked
- Got me back to work
- Physical Therapy Working / Worked
- Swimming Working / Worked
Open Chronic Pain
Today my doctor said that her "best guess" is that I have "chronic pain syndrome". I have been seeing her regarding pain for at least ten years, and I want a diagnosis so that I can plan my life. The pain keeps changing, and is just getting worse. It is my biggest secret in my life and I need to be able to call it something so that people around me understand.
Treatments
- Naproxen Working / Worked
- Oxycodone Working / Worked
- Physical Therapy Somewhat Helpful
Open Sleep Apnea
My husband has sleep apnia, and is doing nothing about it. I am joining this group in hopes to find solutions.
