prayer
November 15, 2008 5:11pm
But Why...
Can't I pray about this? Why can't I turn things over like I used to when I was younger. Why do I hold this …
Progress
15 %
MissEeee 
5:30am, May 14, 2009
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About Me
MissEeee
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About Me
pastor, glass fuser and bender, metal jewelry artist, moved to Hawaii one year ago for my job. Am sick and tired of being sick and tired!! wanna get better! I need to work a second job - as do most people here! but the cf has only recently begun to fade enuf to allow me to seriously look.
pastor, glass fuser and bender, metal jewelry artist, moved to Hawaii one year ago for my job. Am sick and tired of being sick and tired!! wanna get better! I need to work a second job - as do most people here! but the cf has only recently begun to fade enuf to allow me to seriously look.
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Interests
glass, fire, Doctor Who, silver, gems ; 0! travel, doing any amount of movement/exercise without a huge buttkicking flare of pain and fatigue, people with a high inner freak factor, laughter, music, 'ukulele, I want to run around, camp hike, ride my bike and dance again.
glass, fire, Doctor Who, silver, gems ; 0! travel, doing any amount of movement/exercise without a huge
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Recent Activity
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Journal
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September 11, 2008, and my life since cfids...
September 11, 2008 7:44pm
Hard to believe it has been 7 years since that terrible day.
I was living in California with my roomie of many years - before CFIDS (or at least …
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Slow Learner....
August 27, 2008 4:36am
Gosh darnit. I've been working soooooo hard not to do too much on days when i feel "better" as I'm coming out …
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The week that changed time
August 23, 2008 10:24pm
Well,
Been forever since I've journaled - it hurt too much! and I was sleeping so much. Rather than my normal 4 hour nap after church …
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What am I? NEW?
August 2, 2008 8:39pm
Gee whiz.
I must be an idiot. After 4 weeks (at least) of flareing with each week getting worse - I'm generally weeker - not going …
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Hugbook
Hug
Hug
Hi! I haven't heard from you in a long while so I thought I would send you this hug in hopes you haven't left DS. (please refer to my journal dated March 14)
Hug
just cuz I am thinking of you
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Hug
yeah holidays always knocks us down unfortunately ....Hope you get everythign straightened out soon with your insulin sheesh girl !!!!
Ray of Sunshine
So glad, was getting rather worried. It sucks when we fall into the pit again, can get rather depressing if it lasts to long. I am waiting for my health nurse to show up at the house to give me another B12 shot. Can't wait as my brain is not connected at the moment. I still haven't seen the film ,been to unwell, hope to see it on DVD. I hope your relapse is short, sending prayers your way, Ta , Eily
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Photos
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Support Groups
Close Chronic Fatigue Syndrome
Have had Fibromyalgia for 14 years, then last year diagnosed with CFIDS (E Barr, HHV6, myoplasma, low reverse thyroid, low adrenal) at Holtorf. Better, but I moved to HI 6 mo ago & blegh...
Treatments
- Cymbalta Working / Worked
- helpful with pain - high does better - 90 mg - no side effects
- DHEA Working / Worked
- long time ago...think it helped a bit
- Klonopin Working / Worked
- a must for restless legs and plmd - couldn't get a refill ere in Hawaii for a month andhad major flare of fibro and cfids from bad sleep
- Pain Management Clinic Working / Worked
- but they super doped me up - TONS of neurontin
- Paxil Not Working
- yuch - made me feel numb and emotionally vacant
- Zoloft Working / Worked
- workedfor a long time - then stpped
- Neurontin Working / Worked
- I wouldn't be awake without it.
- Provigil Working / Worked
- when I canafford the I take avery 2-3 days - very helpful energy boost
Close Fibromyalgia
oh geez - I was mauled by a pitbull in 93. Was put on tons of meds to fight infection. a few weeks later the pain started, then the fatigue, then all the really wierd symptoms. It's not a real problem now - the fatigue bites, and not being able to be active when in a flare. pain's not so bad these days - knock wood.
Treatments
- Oxycodone Not Working
- triewd again - this time it started working really well - still need a vicoding now and then but all in all, very good. Seems to lift my energy a bit - maybe that's from less pain!
- 5-HTP Somewhat Helpful
- Honestly...I don't REmember!
- Acupressure Working / Worked
- Jin Shen Do is good for me - too much pressure or manipulation - ie massage just makes me sik.
- Acupuncture Working / Worked
- good - but not covered by my insureance
- Adderall Considering
- Cyclobenzaprine Working / Worked
- loved it. Docs took me off a few years ago.why? can't remember
- Cymbalta Working / Worked
- yippee
- Duragesic Patch Not Working
- yikes - all the hallucination and none of the fun... or pain control...but there were pretty pictures when I closed my eyes.
- Effexor Working / Worked
- for a year or so. then it didn't
- Guaifenesin Not Working
- didn't notice any change at all.
- Heat Working / Worked
- sometimes good... sometimes I want ice
- Hydrocodone Working / Worked
- Vicodin, right? I take it when I need it - Which thankfully hasn't been daily lately!
- Klonopin Working / Worked
- for restless leg and periodic leg movement crud which used to keep me awake all night. Workd ery well tried requip ARRRRRGH made it worse
- Morphine Working / Worked
- no can do... not after the patch disaster
- Naltrexone Too Soon to Tell
- Well... I was on for a month. no problems but was too soon to tell. Insurance doesn't like covering off schedule meds or meds made at Holtorfs pharmacy soo... guess I won't know till it's FDA approved
- Neurontin Working / Worked
- worked for yearws. then stopped
- Provigil Working / Worked
- keeps me going
- TENS Working / Worked
- when I have muscle spasms orallover severe painbeyond medication - the tens is a relief. Have to tur it up real high tho
- Ultram Working / Worked
- worked for a while
- Vitamin B12 Working / Worked
- love it - I inject every few days when I an afford it.
- Wellbutrin Working / Worked
- Keeps the anxiety at bay. combined with the cymbalta my pain has decreased a ton
Open Celiac Disease
Treatments
- Avoid Certain Foods / Chemicals Working / Worked
- Gluten Free Diet Working / Worked
