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enya727
55, WI
"reading support group stuff."
1:47am, August 31, 2008

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  • I'm With You

    Kon (12/26/08)

    So good to hear from you, hope you have a very good new year!


  • Hug

    Kon (11/23/08)

    It's nice to hear from you! I've been spending quite a bit of time here at DS in the chronic pain group and I just joined the positive chronic pain suffers. There doesn't seem to be much interaction on the EDS site, I do check it often but the other groups always seem to have someone on. You might want to check those groups out, either way thanks for the visit. Kon


  • Hug

    rgrantbriner (10/06/08)

    Just thinking of. Hope all is well Robin


  • Hug

    Kon (01/26/08)

    How are you? Hope the new year is kind to all of us. Look forward to hearing from you. Has your Dr. said anything to you about taking Vit.C? The genetic specialist told me that was about the only thing to help keep the collagen strong. Let me know how you are doing?Konnie


  • Hug

    Kon (12/16/07)

    Greetings from Iowa, we used to live in Wisconsin (years ago). I was wondering how you came to be diagnosed with EDS, with me one of my ortho Docs thought I should see a genetic specialist, due to the number of odd symptoms and how quickly my condition has deteriorated and along with everythings else I have EDS, the hypermobility type. Keep in touch. Kon

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