Journal Entry for December 27, 2008
December 27, 2008 4:02pm
I am from a huge family. Unfortunately I moved away when I was 18 for 8 years and again for the second time at the age of 28. Basically, …
enya727
1:47am, August 31, 2008
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About Me
enya727
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About Me
unable to work due to ehlers-danlos syndrome. trying to cope. just diagnosed. living with the love-of-my-life, our dog, Hoss-who is a dane-pit bull mix and as lovable as scooby, and our cat, Taz, who is sometimes as whacked as the Taz she was named for. We've recently added a siamese named Shotze (german for treasure). The four of them are the joy in my daily life. I also have two (adult) children who live very far away. My daughter has blessed me with three gorgeous grandchildren that of course-live far away with her.
unable to work due to ehlers-danlos syndrome. trying to cope. just diagnosed. living with the love-of-my-life, our dog, Hoss-who is a dane-pit bull mix and as lovable as scooby, and our cat, Taz, who is sometimes as whacked as the Taz she was named for. We've recently added a siamese named Shotze (german for treasure). The four of them are the joy in my daily life. I also have two (adult) children who live very far away. My daughter has blessed me with three gorgeous grandchildren that of course-live
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Interests
Music, art when my hands permit, avid reader, researching my medical mysteries.
Music, art when my hands permit, avid reader, researching my medical mysteries.
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Journal
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Journal Entry for December 15, 2007
December 15, 2007 11:50pm
I was recently diagnosed with Ehlers-Danlos Syndrome. So I take each days as it comes, never knowing if it will be a good day (on a scale of …
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I’m With You
So good to hear from you, hope you have a very good new year!
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It's nice to hear from you! I've been spending quite a bit of time here at DS in the chronic pain group and I just joined the positive chronic pain suffers. There doesn't seem to be much interaction on the EDS site, I do check it often but the other groups always seem to have someone on. You might want to check those groups out, either way thanks for the visit. Kon
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Just thinking of. Hope all is well Robin
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How are you? Hope the new year is kind to all of us. Look forward to hearing from you. Has your Dr. said anything to you about taking Vit.C? The genetic specialist told me that was about the only thing to help keep the collagen strong. Let me know how you are doing?Konnie
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Greetings from Iowa, we used to live in Wisconsin (years ago). I was wondering how you came to be diagnosed with EDS, with me one of my ortho Docs thought I should see a genetic specialist, due to the number of odd symptoms and how quickly my condition has deteriorated and along with everythings else I have EDS, the hypermobility type. Keep in touch. Kon
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Close Ehlers-Danlos Syndrome
recently diagnosed with EDS. Waiting for my next appointment in January when I find out if my insurance will cover physical therapy if not I don't know what we are going to do. haven't worked in three years because of pain levels and recurring infections.
