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About Me
daybyday12
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About Me
I have a chronic pain condition involving IC, IBS, Vulvodynia, PFD, fatigue, Fibromyalgia, and after 10 years am on pain meds for the last 6. They help but of course have side effects. I realize that this illness is not personal, it does not define me, it is part of dealing with day to day life , just one of the many challenges that I must learn to accept as any other challenge in my life rather than feeling guilt or as it is my fault. Time for instrospection and loving myself for who I am, faults and strengths alike. I just have to love what is and stop fighting what isn't. I think if I put my mind to it, I can try to achieve this goal. Much different perspective than I had previously
I have a chronic pain condition involving IC, IBS, Vulvodynia, PFD, fatigue, Fibromyalgia, and after 10 years am on pain meds for the last 6. They help but of course have side effects. I realize that this illness is not personal, it does not define me, it is part of dealing with day to day life , just one of the many challenges that I must learn to accept as any other challenge in my life rather than feeling guilt or as it is my fault. Time for instrospection and loving myself for who I am, faults
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Interests
my children, books, my dog, swimming in the summer, a funny movie, enjoying the beauty of nature . I am working on lowering my stress, and developing a support system that has been lacking for so many years. I will continue to work on finding my true self and a life of simplicity.
my children, books, my dog, swimming in the summer, a funny movie, enjoying the beauty of nature . I
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Journal
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Hugbook
Flower
Its true a huge amount in common! Thanks for your lovely hug...Here anytime if you want to talk! Thank God it does get easier! I am two years out December 29th next...Am thinking of having a party to celebrate...This time last year...I was on my knees in upset..Time is a great healer..and also having this fantastic forum and women like you! Big hugs! & wishing you a peacefilled weekend ahead! X
Prayer
Thank you so much! I really needed your positive words of encouragement today. No your not alone and I hear your words... I actually started a radio podcast where we have many different hosts that talk about domestic abuse and healing. We even have a therapist that will be hosting a series of shows about DV. www.blogtalkradio.com/dvmemorial. Do you want my # so you can call me anytime? I really wouldn't mind giving it to you. I know what it feels like to feel so isolated.
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Hug
Hi!!!......Just saw an old mail you sent me ages back..I was worried that I had mistakenly failed to reply|?...I sure hope not..as it was SO lovely....How are things with you?...Love & Hugs!! x
Hug
Hello thought I would share this great meeting place for persons with IC, vulvodynia....check it out at www.icfriends.ning.com lots of woman there who are caring, supportive and know what your living with day to day.
I’m With You
Thanx. Stress is indeed a culprit. Keeping it down, however, is a chore. She is a wonderful woman & I only hope that someday they will be able to beat this thing. Till then, life goes on with me by her side.
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Photos
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Support Groups
Close Interstitial Cystitis (IC)
I have IC, PFD, Vulvodynia, Fibro, IBS, CPPS, getting tested for Sjorgren's syndrome soon. Been in chronic pain for many years, nerve damage, and annular tears in my back. My pain disturbs my sleep, I am disabled, could not possibly work outside the home. Have two incredible teens that are my life and love being a mom.
Treatments
- Bladder Distention Not Working
- Caused a major flare that has lasted to this day
- Elmiron Not Working
- took for 6 months didnt work , bad side effects too
- Macrobid Not Working
- Was incorrectly diagnosed with cystitis 15 years ago took antibiotics and antifungals for 10 years
- Physical Therapy Working / Worked
- Pelvic floor dysfunction worked, painful after but helped overall
- Pyridium Working / Worked
- works cant take for rest of life, turns urine orange but I will use it if desperate to numb bladder
Close Chronic Pain
I have been a chronic pain patient for 15 years now and have been through many bad docs. I was misdiagnosed for 10 years and now have intractable pain.
Treatments
- Heat Working / Worked
- helps relax and warm me on a cold day which I am sensitive to cold
- Lidoderm Not Working
- I found transdermal patches to be itchy and burning at the adhesion site. Of course I have allergies to latex and tape
- Lyrica Not Working
- some doc prescribed Lyrica and Cymbalta for me together in conjunction with pain management meds. I fell asleep in my dinner, all the time. Was not fun, or funny, and didn't see any benefit
- Meditation Somewhat Helpful
- I did Dahn Yoga with meditation and personalized sessions. Super expensive, too much in the classes for me to handle doing without severe pain from doing it. when I told them I was ill and had Chronic pain, I was told I just didn't have enough clean chi and a bunch of other crap. at least 1k to join and then they hound you for retreats and special sessions with special leaders. Dahn Yoga is a rip off big time.
- Morphine Working / Worked
- Long acting, best med ever for chronic, unrelenting pain. MS- contin has been the best for me the others didn't do much. Easy to tolerate and the closest to normal I have felt in a long time. Would recommend MS.Contin, morphine sulfate-generic
- Nerve Blocks Working / Worked
- Effective bandaid- hope for better long term prognosis
- Neurontin Working / Worked
- THis drug works well for nerve pain. could feel it the next morning, the decrease of pain.
- Oxycodone Working / Worked
- Endocet, percocet both work for breakthrough pain. Oxycontin s not in the same class as it is a long acting pain med like MS Contin. I hated Oxycontin and all it's side effects. It is a dirty drug, like I have read.
- Physical Therapy Working / Worked
- I did pelvic PT for a year and it did help me understand the physiology of my body and how relaxation of pelvic floor muscles can lower pain.
- TENS Not Working
- I tried TENS with a biofeedback machine and could not bear the TENS part, it didn't help just hurt me more. I am sensitive to electronic pulsations that actually cause more pain. I have been told that TENS works for relaxation and spasms, but not for pain and that if anyone tries to tell you differently they are a liar or trying to push TENS surgical implantations on your body.
Open Incest Survivors
I am dealing with my niece who has confided in me that her father and grandfather have been sexually molesting her, this was on an 18 day cruise and I wrote to her mom what was going on and the fact her father tried to strangle her on the trip. I am now being told to butt out by the mother and new stepfather and that my niece doesn't remember anything that I wrote them. My niece won't talk to me now and has basically said I betrayed her. I need help badly as to if I go to CPS? Help
Open Physical & Emotional Abuse
Been verbally abused by husband of 20 years, isolated, now focusing his rage on my kids, need out, need help
Treatments
- Psychotherapy Not Working
- Have been to marriage counseling several times, he always quits when the counselor doesn't agree completely with him, so always leaves
- Talking Not Working
- If I talk, he doesn't listen, too busy thinking about his comeback, his rightness, his winning all arguments. I am banging my head on the proverbial wall over and over, he wont take his depression meds.
