We are figuring this out.
April 10, 2008 8:04am
It's been months since I have written in. I miss chatting with everyone.
This support site has been wonderful. I miss chatting …
SusieS 
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About Me
SusieS
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About Me
I am a stay at home Mom and have my own photography business that I have done for 27 years. I also enjoy stamping and scrapbooking in my spare time.
I am a stay at home Mom and have my own photography business that I have done for 27 years. I also enjoy stamping and scrapbooking in my spare time.
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Recent Activity
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Journal
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Journal Entry for February 6, 2007
February 6, 2007 9:03am
A few of you have written to me inquiring about Xango Juice. I have tried to write and leave messages but I don't know what I am doing wrong. SO I …
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Hugbook
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Hug
Hi Susie, Just thought you could use a hug today. Hope everything is going well. ~Digger
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Susie, Hello! Are you there? ~Digger
Hug
hi big hug to you!!
Hug
KEEP YOUR CHIN UP AND TRY TO SMILE. spread some luv need we all need a bit of it!
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Hi Susie, How are you this week? I've been busy, so have not been to the library and don't have much time now. My parents are in town-my niece graduates high school tomorrow. I can't believe I've been out of high school 21yrs!! Any ways, lots of friends and relatives will be here tomorrow for the big day. We are kind of being scarce so my sister and family can have their time with them. I feel in the road. They always stay with my sister because they have the extra beds plus they have the grandkids. Sometimes they come down for a weekend and don't tell us they are coming. I feel awkward because she always waits til the last minute to plan meals and doesn't ask me to bring anything or plan it together, so I feel like they resent us for their always furnishing the meals. Last time I fixed a few things and brought them over hoping it would go with what they were eating-it did. I've been fretting this weekend because I want to help out, but don't have a lot to offer. They are having a graduation BBQ. I know they'll be mad and talk about me if I don't help, but I don't want my head bit off for offering either. Well, I made cookies and banana bread and can make other things,if need be, to take over there. I guess if I had more money I'd more readily ask and do much more, but when we're always scraping the bottom of the barrel,I can't do much. I don't know, but maybe this is why they avoid asking, but I hate knowing that they talk bad about us later. (they talk bad about others, why not us too) Well, I didn't come here to complain to you and make your day worse, so I'll quit. Hope everything is going well with you. I know it's your busy season, so I'll let you go. Have a good weekend!!~Digger
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Photos
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Support Groups
Close Epilepsy & Seizures
My son Jordan started having seizures on Jan 9th 2006. It just came out of the blue, no warning. He has had Grand Mal & Atonic Seizures with the majority of them being Atonic (drop seizures) We have and are trying four different medications.....and one natural one. The meds we have tried and are trying are Dilantin, which we are done with because of the side effects. Also Lamictal, Depakote, & Topamax we are weaning him off the Topamax because of side effects. Natural one is Xango Juice.
Treatments
- Dilantin Working / Worked
- Was on it for 10 months then we weaned him off because of long term effects.
- Lamictal Working / Worked
- using right now but have not seen great results he still had a lot of Atonic seizure with this med.
- Topamax Working / Worked
- The worst one and I would not recommend it to my worst enemy. It has had such horrible side effects such as forgetfullnes and confusion.
- Mangosteen Juice Working / Worked
- This has worked and is still working. He has not had a Grand Mal seizure since 11/8/06. It raises the level so he has better protection. The mangosteen fruit is amazing.
- Allergy Shots Working / Worked
- We had Jordan's blood tested for food allergies. And found that he is allergic to dairy products and a few other foods....so we are watching that carefully as well.
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Friends
