Progress
50 %
Goal End Date is Feb 19, 15 1913 more days.
windbag 
7:38am
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About Me
windbag
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About Me
Age 41 I have emphysema, due to genetic disorder, am pretty much house bound now.Have a fantastic partner who is very understanding :~) Love the garden, cats, have two! travel, internet, current affairs, art, scrabbleonline, meeting up with family & friends! great to catch up. did some charity work up until rcently, but health won't allow anymore. Everyday tasks ~ keep busy when can, and try to stay positive!!!Its very hard sometimes, cos i get so scared, but I try. I guess you guys know wat I mean.tc x
Age 41 I have emphysema, due to genetic disorder, am pretty much house bound now.Have a fantastic partner who is very understanding :~) Love the garden, cats, have two! travel, internet, current affairs, art, scrabbleonline, meeting up with family & friends! great to catch up. did some charity work up until rcently, but health won't allow anymore. Everyday tasks ~ keep busy when can, and try to stay positive!!!Its very hard sometimes, cos i get so scared, but I try. I guess you guys know wat I mean.tc
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Interests
all as above, just so nice to find this site who I chat to with like minded people!! As having breathing proplems. its quite a lonely scary place some times!
all as above, just so nice to find this site who I chat to with like minded people!! As having breathing
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Journal
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Hugbook
Celebration
What a boost to get that great report! Yay! I'm glad you're back home, too. Have a lovely week. Love, Sue
Hug
hi iam lily i come from belfast nr/ireland i have severe copd on nebulizers and oxygen when i feel i need it .i hope you are keeping well take care xx lily
Good Luck
Good luck at Harefield Lisa,hope you get the all clear and you get back to home sweet home,lets hope this weather picks up as it's been so miserable lately.Bet that felt good having your first bath,i was wondering where the smell was coming from.LOL Take Care.
Love you lots
Ellen
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Superhero Status
A bath and then being left by yourself? Congrats! I'm sure it feels just super. I hope you have a lovely weekend with your friends, and a very successful trip up to London on Monday. You're right, It is such a relief to be without this pain. I hope it lasts after the numbing med wears off. But for now, I'm enjoying it. I hope Mark loved his movie! That was a nice thing to do for him. Love you much dear friend! Sue
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Hug
Hi Lisa, I actually got on BBC-UK (Which is very different from BBC-America) and watched videos of the storm. Yikes! You're so lucky to not have any damage to your house. I'm wondering if the same show is on tv by you. It's on BBC-America on Wed nights called "Mary Queen of Shops" and it's all about this woman who does make-overs for retail shops. I find it just fascinating, esp since I used to like retailing and marketing back in my working days. She's very good. Have you ever heard of it? Thanks so much for your comments. I'm hoping for the best tomorrow. Love you much, Sue
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Photos
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Support Groups
Close COPD & Emphysema
I have Emphysema which I have developed from a genetic disorder, called Alpha-1-Antitrypsin, (protese Inhibitor), Deficiency 1 ! I am 41 and have experienced breathing problems in the last 12 years.
Treatments
Close Alpha-1 Antitrypsin Deficiency
Found out I had this condition when I was 30 as started experiencing breathing probs.Took me many years to except it, but have now come to terms with it. (the hardest part in a way)My mobility is very poor now, on lots of meds. Find this site inspirational, some amazing people. Have now developed stomach problems. Been in hosp' 5 times last year due to condition but working on staying out of hosp' this year ;~)
Treatments
- Lung Transplant Working / Worked
- Lung Transplant Working / Worked
- awaiting call!
Open Irritable Bowel Syndrome (IBS)
Seemed to have had this for a couple of years had just been diagonised by Drs as IBS. Started with acid pain in upper chest then lower stomach started to swell.Drs have given me drugs to relax muscles in oesophagus and gut. seems to be helping a little bit but always get much worse as day progresses, always bad in the evening. Very painful, and seems to make my breathing much worse. Think the quantity of drugs I take for my condition including steriods make the IBS much worse.
Treatments
- Buscopan Considering
Open Organ Transplants
Types: Lungwindbag hasn’t entered any details for this support group.
