Join Now
Molly13 
7:21am, May 14, 2009
well, seeing a new doc was good. he is now testing me (echo today) and if i'm strong enough i will start LDN very soon. it's actually wonderful that i don't have to give my shots every day - seems strange, but i do like it. so, it'll be an infusion - chemo. tx actually. i am pretty frightened but i think in the long run this will HOPEFULLY make me feel better. and, hopefully i won't lose my hair!!!!!!!!! anyone who reads this - please send good karma my way!! thanks!!!!!!
Comments
molly--are you sure he is not starting you on tysarbri
sherryalton
I hope these treatments work so you can feel better
bluntandsubtle
LDN is low dose NALTREXONE, you get a script to take 3.0 OR 4.5 MG each day, and send the script to Skip's Pharmacy (best bet) and he sends you pills to take once a day after 9pm standard (10pm dst) and before 3am.
you can ask for 4.5 MG in 1.5 MG pills, take 2 each night to start as 3.0 MG, and then after a month start taking 3 (4.5 MG).. if your legs get too stiff or you get too much constipation, then cut back to 3.0 MG. you can also take 100 MG B1 vitamin every day, that seems to help the legs.
an infusion is POISON, he's trying to give you NOVANTRONE, THAT'LL KILL YOU
LarryLDN
wow thanks for the info!! why would novantrone hurt me?
Molly13
Sending you Karma....Karma.....Karma.......LOL
Are we having fun yet? I am losing my hair..I think you should lose yours.
Oh the joy of pills...pills and more pills.
I do hope you get feeling better. It is way to hot here in Texas. Been thinking about running around in the buff but then I would be in cuffs....LOL. I am sooooooo funny.
Keep your chin up Molly.
Love
Dorinda
dorlynn2001