who knows about Tsyabri??
August 6, 2009 9:55am
well, i now have an appt w/ a doctor towards the end of the month. everyone i saw in Atlanta suggests that i try Tysabri …
Molly13
7:21am, May 14, 2009
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About Me
Molly13
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About Me
SPMS - i used to have a great attitude but right now i'm TRYING to get it back! i've done really well i guess but at 15 plus years living w/ MS, my "pollyanna" is hiding!!! this illness is TRYING to win, i am TRYING to not let it!!!
SPMS - i used to have a great attitude but right now i'm TRYING to get it back! i've done really well i guess but at 15 plus years living w/ MS, my "pollyanna" is hiding!!! this illness is TRYING to win, i am TRYING to not let it!!!
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Interests
friends, laughter, politics, kids, animals. the planet, recycling, yadda yadda yadda...
friends, laughter, politics, kids, animals. the planet, recycling, yadda yadda yadda...
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Journal
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what's next? don't know but still feel better!!
July 9, 2009 9:31pm
so - since my mom and her husband (he's a cardiologist) talked w/ me - i bolted to Atl. asap. am seeing different docs here and am trying …
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new situation
June 8, 2009 11:22am
well, seeing a new doc was good. he is now testing me (echo today) and if i'm strong enough i will start LDN very soon. it's …
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HELP?????
May 2, 2009 9:58pm
alright, i've just recently figured out that i am in the SPMS stage and recently had a call telling me that i've been assigned to a different …
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poor pitiful me
January 4, 2009 3:25pm
so, i posted a journal entry and got no response.............i'm really in a bad place and really really need support!! yes, i am being a …
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Hugbook
Funny Face
you know what just happened i was in the middle of a great message to you about not knowing what else to do-when my fingers hit some key and deleted the whole thing wow i get so frustrated, my hands and fingers are very swollen, cant feel ,numb fingers i can hardly accomplish much of anything, getting worse all the time.
it is hard to maintain a positive attitude. i feel that just getting mad,sad,impatient,grumpy,feeling cheated, does relieve some.ive been going thru that recently cause my knees,back,neck,hands,fingers,spine,shoulders,feet are all getting worse,{of course thats what is going to happen} oh my god molly13 i meant to help and instead complained all about myself, jeez, honey oops-
Funny Face
you know what just happened i was in the middle of a great message to you about not knowing what else to do-when my fingers hit some key and deleted the whole thing wow i get so frustrated, my hands and fingers are very swollen, cant feel ,numb fingers i can hardly accomplish much of anything, getting worse all the time.
it is hard to maintain a positive attitude. i feel that just getting mad,sad,impatient,grumpy,feeling cheated, does relieve some.ive been going thru that recently cause my knees,back,neck,hands,fingers,spine,shoulders,feet are all getting worse,{of course thats what is going to happen} oh my god molly13 i meant to help and instead complained all about myself, jeez, honey oops -
Thanks
thanks so much - contact really helps from someone who
understands - hope you get even a little ray of relief from pain sending hugs and hope for relief thanks 
Get Well Soon!
sorry to hear your having troubles to. Hope you get relief soon. Keep your chin up and smiling. Bug hugs hugs hugs hugs hugs hugs
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Hug
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Photos
Molly13 hasn’t uploaded any photos yet
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Support Groups
Close Multiple Sclerosis (MS)
Type: Seconday Progressive MSokay, so now i'm over 15 years living w/ this crazy illness, it is REALLY becoming more difficult.
Treatments
- Copaxone Working / Worked
- Music Working / Worked
- gets me out of MY head and really into the music----smooth jazz goes down easily
- Physical Therapy Working / Worked
- Support from Friends & Family Working / Worked
- i've got a GREAT loving supportive family and friends!!
- Zanaflex Working / Worked
- Tysabri Too Soon to Tell
- have not yet started this tx--------hopeful!!
Close Chronic Pain
multiple sclerosis, lots of left side pain, from the neck all the way to the ankle-constant. rt wrist pain
Treatments
- Chiropractic Adjustment Working / Worked
- any adjustment or massage always makes me feel better
- Cymbalta Not Working
- made me feel too "wired"
- Heat Working / Worked
- i LOVE thermacare "disposable" heat wraps---always make me feel a little better
- Hydrocodone Not Working
- no longer works because i've taken it for so long, completely off of it for a while atleast
- Marijuana Somewhat Helpful
- Neurontin Not Working
- worked very well for some pain relief but it also made me nauseas at all times and yet i still put on weight. stopped taking it years ago
- Oxycodone Not Working
- years ago i tried oxycontin but i don't like being that dependent on a drug and if i ever missed a dose, i'd start withdrawal symptoms
- Physical Therapy Working / Worked
- i go twice a week----------helps a great deal!! also go to OT which is helping with the cognitive stuff
- Music Working / Worked
- i feel the music instead of the pain
- Support from Friends & Family Working / Worked
- ALWAYS makes me feel better
Open Parenting Teenagers (12-18)
i have one wonderful (except when she's not) 14 year old daughter. i was diagnosed with MS following her birth by c-section. i'm really trying to make her see that life is too short for negativity. having more symptoms for sure but it's my invisible elephant. i realize that i've got it much better than a lot of people in this life!!
Treatments
- Patience Working / Worked
- Patience is a virtue. i've not mastered this one but it's always something i strive toward.
- Psychotherapy Working / Worked
- talking with another human always is a good thing in my opinion
