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  nnyl1 (09/28/09)

  Thanks for not being offended by my over excitement. Sorry it took so long to get back to you. I had 3 financial situation crop up that I needed to think about resolving. So most of my attention has been on that.
  
  I thought Crohns disease was an autoimmune disease too?. I would like it if you picked up that book too, because then I would have someone else to talk about what I read.
  
  I've been on Tysabri for a year now. I still have MS...so I'm conflicted about it---not conflicted enough to stop & I believe it is the best for me...but it is over marketed--so expectations are great then its kind of a dissappointment whem MS is still here , but not worse. The biogen nurse calls every 3 months to ask how it is going, I tell here each time...if the marketing were not so intense, I would be happier with it.
  
  I recently changed from my first infusion center in a hospital where I didn't get along with the nurses. I went there a year, so that affects my view on TY. I switched to a clinic my doctor recommended...the clinic rents room at a small community hospital.
  
  I like that much better. She is a neurologist & her husband is a gastrenterologist and there a brochers on MS & Crohns disease. It's like Tysabri patients are welcome there. At my last infusion center, they acted like they were to busy, I was interrupting their day by showing up at the infusion room :(
  
  Now that I am going to this new infusion room, I expect I will meet some people with Crohns Disease using Tysabri.
  
  Thanks again for lowering the stress that was building in thatr thread & if you decide to go to Tysabri...you have a DS friend to ask questions on it...but not about Crohns Disease. Fortunately, I don't have that one!
  
  Lynn
  
  
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  nnyl1 (09/25/09)

  Thank you for stepping in on that suppression thread...I was getting over excited about it.
  I read your profile after your response that "calm the waters". I'm not certain how I got so over excited last night about it....
  
  But I saw on your profile you have crohns disease going on too....
  iamwoman does too, both Crohns & MS going on. Does celiac disease count ?
  Thats a gastrointestinal disorder, if so there is hazymay & Sentinel too that are dealing with gastroinststinal disorders and MS.
  
  http://www.dailystrength.org/peopl...
  
  http://www.dailystrength.org/peopl...
  
  http://www.dailystrength.org/peopl...
  
  
  
  
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  Perhaps you already know from a Crohns support group. But if not I wanted to point them out top you. And thanks for the response, I hope I have settled down now.
  
  Lynn
  
  
  
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  iamwoman (11/02/08)

  hope your testing for MS comes back negative... I will keep good thoughts... let me know!!
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  chercoats (10/29/08)

  It is nice to have a voice of reason in the political chat...thank you
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  lynn4 (10/29/08)

  Well, I actually chickened out, which isn't like me at all. I think it was because my dr. gave me a choice, an EMG or go back to MS specialist. I first said test and now I am going to go to the specialist.
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  debfox442 (10/24/08)

  Thanks for the birthday wishes! My birthday is actually on Halloween! We are having a big Halloween party tomorrow, so I have something to look forward to! Have a great weekend!
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  MostlySuper (10/17/08)

  Hi, Just read your post in the "Who's Joe the Plumber?" thread and learned about you losing your job. So sorry, sweetie. I am thinking about you, and I hope things work out for you. Julie
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  debfox442 (10/02/08)

  Have a nice weekend! Good to hear from you!
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  mybribri (09/29/08)

  Good luck..My prayers are with you.
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  marilyn4342 (09/29/08)

  Keep your chin up!

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