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  • About Me

    Image of Kon

    Kon

    Female, 46
    IA, USA
    Member since December 9, 2007

  • Journal

    • This entry is private

    • This entry is private

    • My Muffin

      Mood December 8, 2008 9:49am

      My youngest, my Muffin is going through some tough issues, as she say's "boy's suck" (sorry Geo, then again you fall into the man …

    • What A Morning

      Mood December 6, 2008 3:14pm

      Late this morning as Alan was getting ready to leave for work, we both noticed Bubba (our 10 year old mini-dachshund) had a lot of swelling around …

    • If I can find a clean shirt

      Mood December 2, 2008 12:40pm

      I was hoping that heading would grab someone's attention.

       

      As some of you know by now I'm off to see my Willie (good thing I'm female …

    Read Journal

  • Hugbook

    Give Kon a hug



    • Hug

      From Cornovia Thursday

      Have a hug Konnie! Thanks for the friend request xx

    • Hug

      From startinanew October 28

      Sending a hug back to you Konnie because I know we all need hugs to get us through the not so good times. We will get stronger each day and things will get better. It's just so hard to let go of all those hopes and dreams. I look forward to the time when I can get through one day without crying. Thank you for the hug it means so much. Hope today treats you well..xo

    • Congrats

      From misababy October 27

      congrats on the new baby!
      hope you (and daughter) are feeling great, and are caught up on rest.
      such an exciting time - i hope you'll start feeling better and stronger
      so that you can spend as much time with the new baby as you desire.
      congrats again!
      xoxo, misa

    • Chocolate

      From Watersnake October 24

      Thanks for the invite as friend. -Snake

    • Hug

      From Mamalyn October 12

      How are you my friend? It has been such a long time since I have sent you a hug. thank you for reading my journal...Big hugs to you..

    Read Hugbook

  • Support Groups

    • Close Scoliosis

      My scoliosis was discovered rather late around age 15, my curve was S-shaped and 28/36 degrees when first noted. I wore a milwaukee brace 23 hours a day for a little over a year, and did have mild improvement in my curve. I had 3 8 pound babies and very little health issues until about 8 years ago, then things rapidly flew downhill. My spine has deteriorated so much, my curve is now 79/42, I have nerve pain in both legs, ehlers danlos syndrome, cataracts, arnold chiari malformation, DDD & more

      Treatments

      Brace Considering
      milwaukee brace showed mild correction which was stable for 25 years
    • Close Ehlers-Danlos Syndrome

      I have only recently been diagnosed with EDS, I have scoliosis that was stable for 30 years and then my curve has nearly doubled with all these sublaxations and nerve impingements, so along with DDD, and several other diagnosis the genetic specialist finally put it all together and in a way it was a relief to have a name for all the symptoms (plus I no longer feel like the Dr's just aren't listening to me).

    • Open Codependency

      I've just ended my 26 year marriage to someone with an addictive personality, drugs, gambling, porn, and apparently lying. I'd like to say that I am co-dependent no more but I divorced for many reasons but certainly not because I stopped loving him. I just feel I no longer know this version of him and my health and finances could no longer maintain this facade of a marriage.

      Treatments

      Divorce Too Soon to Tell
      Just happened in Oct. 2007.
      Talking Working / Worked
      Does help, some.
      \"Codependent No More\" Working / Worked
    • Open Breakups & Divorce

      Divorced after 26 years of marriage, my co-dependent nature cost me all material possesions (home,car,Harley,everything). I know that he was no longer in love with me, and his addictions were out of control but I loved him and miss being with him.

    • Open Renal Cell Carcinoma (Kidney Cancer)

      My Dad was diagnosed last year(in 2007) and had his left kidney removed, still battling (see Journal entry Jan.18th, for details). Any info you'd like to share would be appreciated. Thanks

    • Open Degenerative Disc Disease

      I have only 3 disc that aren't affected by ddd, you add the progressive scoliosis and ehlers-danlos syndrome to the mix and you get a very unstable spine.

    • Open Chronic Pain

      I have been dealing with chronic pain since 1995, daily headaches, back pain, and pinched nerves, which I now know is due to progressive scoliosis. My spine is basically screwing down on itself. I'm very fearful of ending up in a wheelchair and am trying to do all in my power to stay upright!

      Treatments

      Acupressure Not Working
      My trigger points tend to be oversensitive in some places and numb in others I think it was hard for the person to work on me.
      Chiropractic Adjustment Not Working
      Too dangerous to do with all the disc degeneration and ehler danlos nothing would ever line up or stay that way.
      Flexeril Working / Worked
      Has helped in the past when spasms would be bad.
      Heat Working / Worked
      Helps at times.
      Hydrocodone Somewhat Helpful
      Not as effective as other pain meds and very constipating
      Meditation Somewhat Helpful
      While I'm waiting for my meds to start working I do some meditation and I believe it does help.
      Methadone Working / Worked
      My current pain med (mostly due to finances)
      Morphine Working / Worked
      Have used in the past, but at the dose that helped with pain control I was to groggy.
      Naproxen Not Working
      Did nothing for me.
      Oxycodone Working / Worked
      Have used in the past.
      Physical Therapy Somewhat Helpful
      Very nice while I'm there but of little long term benefit.
      TENS Not Working
      Was awful, it actually caused me great discomfort, they say it's because my nerve pathways are not like other peoples.
      Zoloft Working / Worked
      Have taken this for several years and was off it at one point due to finances and boy could I tell the differences was very glad to get back on it.
      Ultram Working / Worked
      Seems to enhance the effectiveness of other pain meds.
    • Open Arnold-Chiari Malformation

      Diagnosed with ACM after 2004 MRI. The Dr. believe my brain is being "pulled" down (due to progressive degenerative scoliosis), rather than a birth defect. Of course it depends on which Dr I'm seeing and the only thing they seem to agree on...is that there isn't much they can do for me.

    • Open Endometriosis

      I had my first symptoms at age 26,(I was fortunte to have already had my babies). In 1995 my symptoms became unbearable, periods lasting 19 days with only 11 days between periods. Had lapro, found severe endometriosis with adhesions on my diaphragm and lesions all over. Cautery and surgical scraping were helpful (at first), but things are getting pretty bad again!

      Treatments

      Laser Surgery Working / Worked
      The first 36 hours post-op were pretty awful. Did help alleviate symptoms at first but 5 years post-op back to sameOsameO.
      Provera Not Working
      Had terrible side effects for me, bad, really bad.
      Ibuprofen Working / Worked
      Really helps with period cramps and endo pain.
      Heat Working / Worked
      Helps with low back endo pain unfortunately seems to increase my flow due to the increase circulation I suppose but hey I flow heavy anyway and the heat seems to help.
    • Open Bladder Cancer

      My Dad was diagnosed with RCC and had his left kidney removed on April 07. On 11-17-08 he had a follow up cystoscope to remove some tumors from the bladder and they are papillary transitional carcinoma low grade non-invasive. He starts BCG therapy on 12-02-08 for 6 weeks.

      Treatments

      Immunotherapy Too Soon to Tell
      Starts tomorrow 12-01-08
    • Open Back Pain

      Check under my scoliosis,DDD,and chronic pain for details

    • Open GERD & Heartburn

      Diagnosed with GERD after an awful long haul with many different OTC meds. I've lost four inches in height over the last 11years (due to degenerative scoliosis, and EDS) so my esophagus is also getting shorter and making it easier for things to back up or sit in my throat. Am currently on Protonix waiting for Prevacid to become generic in Nov. 2009 YEAH!!!

      Treatments

      Antacids Working / Worked
      Helps some, the only time I don't need these is when I'm on Prevacid
      Avoid Certain Foods / Chemicals Working / Worked
      Really miss coffee. Love certain veggies but they no longer love me!
      Dietary Modification Somewhat Helpful
      Nexium Not Working
      Pepcid Not Working
      About like taking Tums for me
      Prevacid Working / Worked
      Works best for me!
      Prilosec Somewhat Helpful
      Tried but not nearly as good as Prevacid
      Protonix Somewhat Helpful
      Have been on it for about a year, just doesn't hold me over as well as Prevacid
      Raising Bed Position Somewhat Helpful
      I don't sleep in a bed, I sleep sitting up on the couch, helps prevent increased episodes!
      Reglan Not Working
      Again like taking TUMS.
    • Open Loneliness

      I'm rather lost right now. I feel like first I was someone's daughter, then wife, then Mom, then Grandma. Now I'm living alone for the first time in my life. Divorced 2 years after 26 years of marriage. My life, career, and body have fallen apart and here I am...

      Treatments

      Psychotherapy Considering
  • Groups

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