This week I am finally allowing …
This week I am finally allowing myself to know how exhausted I am. I feel that it is less a physical tiredness, …
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vchen 
8:13pm Sunday
My life is just a series of constant pain and awful experiences.
Saturday was a nightmare just like my life.
I got a call that dialysis was cancelled due to a power outage. So I decided to take a ride on the scooter to the park. I was getting into an interesting book when dialysis called and said the power was fixed. So my Dad had to leave Chicago where he was getting his car fixed to get me there by 11:30.
He told the manager we could make it by 12;30. We got there by 1130 so did all of the first and second shift. After waiting the manager said that they could only take 28 people not 35.
She was not nice. Offered us water and coffee. We are not to have fluids. Especially when treatments are cut down.
Unable to reach my did I was not going to start treatment until 330.
There is no acess to food there. I ahve dinner at 330 since I eat early on dialysis days.
One man needed sugar so I gave him candy.
Another lady almost passed out.
Many of us did not eat. They should have given us food.
One worker gave us his lunch to share among six of us.
The idiots should have a backup generator. How stupid when building a new place.
Unable to got to the museum because the mail lost my membership.
Pt stinks. I am in worst pain now.
He did not fill out the forms. He told me to see my doctor or somebody else.
Hope he changes his mind. I need a pt to fill this out so I can get the handcycle.
No word from Dr M.
Of course not.
Still sending me bills that should have been paid.
Friend never sent check.
Why should anything go ritht.
Issues with my ipod again. I had to change my account and password.
I wish one thing could go right.
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I'm sorry you had such a crappy time; the people at dialysis should have been alot more accomodating. My grandma was on Dialysis when she was alive and she hated it. Please know that you always have a friend here.
carebear09
Have you actually tried out an handcycle? They are hard work if you in pain now and cant manage to push a manual chair you are going to struggle with an handcycle!
If I was you I'd try and see if someone could sign for me to get something like the E-motion wheels or E-fix to turn your manual chair into electric one but still able to fold it into a car boot.
Katilea
Oh Valerie, that stinks hey? How easy would it be to provide some simple sandwiches or soup etc to help people through their dialysis time. The $ always over-rides everything hey? I hope things turn around soon for you. Cheers.
MsCowgirl