Journal

Well i have been in hospital for 3 weeks....due to the back chest arm problems etc...found out on thursday that i have secondary cancer in my head, back and arm i think so far, will know more on mon tues.....they have let me home for a few hours today for some lunch and spend time with kids....have to go back for dinner time though!

Well, better scoot and spend some time with kids, ill updat again as and when i hear more, or i'll get kev to update for me!

Love to you all hoping you are well

Emma xxx

Hey, hope everyone is feeling ok.

Wish i was, have had a couple of bad days, spent all day in bed yesterday trying to sleep a little, the night before i barely slept for anb hour or so, and the same again last night ugh!

Back at the GP's tomorrow though, surely there must be something else i can have for pain relief, whats more is i get the muscles twitching where my ribs are its horrible!

I have felt sick a lot and havent eaten for 2 days, i just dont feel like it at all!

On a good note  Kev bought me a new kitten and she is gorgeous! A 13 week old tabby, we called her Maggie-Moo lol

Phoebe, my youngest is scared of her strangely enough, i mean i have a cat, Poppy, who wont come in, but she quite happily sits in the garden and talks to her and strokes her. She is getting there though and has kissed her and stroked her a little.

She's a little terror with the budgies though, i thought she'd be ok as where i got her from they had a little parrot..we have to put the budgies upstairs at night lol.

I guess the more i tell her no she will eventually learn.

I have some pics on the camera ill try get my other pc fired up and get em on there.

Kids broke up from school yesterday for 6 weeks...arrrghhh!!!!!!!

Hope all of my friends are feeling well, love to you all xxx

I am still same as i was with the tieze's syndrome...pain relief has stopped working though :(

I went back to my GP last friday because its same, if not worse sometimes and in the middle of the night when i want to be sleeping im up walking round, thats the only thing that helps slightly!

My gp has put me on celebrex (an anti inflammatory) thats the only treatment there is for it...been on them a week today, its hard to say if they have helped cos im getting other pains, im just guessing theyre to do with tieze's. Gp said to go back in 2 weeks....so next friday....to see him, hes going to put me in for physio for it. Hes also requested a specialised bone scan to get to the bottom of my complaints about joints etc.....why is it my gp is doing the most for me and the crohns docs have hardly done anything!

Crohns docs tried to put me on another bone protector because one i was on was making me ill. the one he wanted to put me on is a cousin (as my gp said) of the one i was taking, therefore ill more than likely get same side effects!!!! Thank god for my GP!!!!! If it were'nt for him well i dunno lol!

I sit and think back to jan 2007 when i first called ambulance due to struggling to breath...yes i had the erethyma nudosm (however it is spelt) and bleeding from the rectum, but i had no stomach complaints....since they put me on all these meds im WORSE than i was!

I do wonder why im taking some of what i was prescribed sometimes, my crohns doc seems happy to put you on anything really.

Though i am worried about the codeine taking, ive been taking it for months now well a yr and half on and off...but past id say 3 months ive taken a lot due to pains, i worry what it is doing to my liver!!!!

Anyway, havent much more to say, thought id write a little update!