sunrae 
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About Me
sunrae
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About Me
have 8 kids, 1 living with cf . lost one with cf. work full time, need to retire. would like to hear from others with cf , their siblings. or their parent.
have 8 kids, 1 living with cf . lost one with cf. work full time, need to retire. would like to hear from others with cf , their siblings. or their parent.
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Support Groups
Close Cystic Fibrosis
below are thins our daughter uses.
Treatments
- Cipro Somewhat Helpful
- only for a while.
- MucoMyst Working / Worked
- works real good
- Pancrelipase Working / Worked
- don't need it very much
- Pulmozyme Working / Worked
- use it every day and it helps quite a bit.
- ThAIRapy Vest Working / Worked
- works real good .
- TOBI Working / Worked
- use it for 10 dats once a month
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Friends
