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thatperson
Female, 35, Katrina Ravaged Gulf Coast, MS
"no lupus right now, but even better! I have autoimmune hepatitis type 1 and pernicious anemia."
11:10am, September 4, 2009
Journal Entry for October 1, 2008 Mood
Wednesday, October 1, 2008

So the endocrinologist told me my levels are normalizing - YAY GOOD NEWS FOR ONCE!  I'm closer to remission apparently.  He didn't mention having a TT at all this visit.

 

He cut my medication dosages in half - YAY MORE GOOD NEWS!!! (especially for my bank account).

 

He extended the time between blood work and office visits by 1 month - YAY!  (more good news for my bank account).  Now I have to go every 3 months or so instead of every 4-6 weeks (unless something abnormal shows up, of course).

 

I was a little concerned when he asked me, " when did we cut your medication down to 2 times a day? "...  and I said, " it's always been 2 times a day."  Then he said, " oh... well, it should have been taken in 3 same MG doses, 3 times a day "...  o_0    but then he said, "whatever - it worked."  o_0

 

Then he told me to take it 1 time a day, but to make sure to take it at the exact same time each day without fail...  So if it was supposed to be taken 3 times a day, why is he telling me to take it just once a day?  *confuzzeled*

 

He pressed on my thyroid in four different spots and told me to swallow each time.  Declared my goiter smaller (YAY!) and made sure I didn't have any trouble breathing or swallowing with it (when I was first diagnosed, laying down on my side or back made swallowing difficult, and on my stomach, breathing was impossible).

 

He listened to my heart and said that it sounded great and asked about palpitations and fluttery and racing feelings (both happen a lot less than they did before) and gave me the OK to exercise again.  In fact, he recommended it and encouraged it...

 

And told me that if I didn't want to re-gain the 90 pounds I had lost before all this started (I've already regained 40....  ugh :( ) , I better eat less and move more LOL  I told him I was waiting for the OK on my heart to get started with the exercise (if anyone recalls, my resting heart rate was 150+ bpm and my blood pressure was 170/110!!! before my Graves' Disease treatment started).

 

So, now I am on 150mg PTU once a day and 60 mg Inderal once a day!

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Comments

  1. Ih8graves

    Yay!!!
    I think stress reduction, watching my iodine and eating goiterogens and taking antioxidants (including Selenium) helped me, too. I am so glad that you're doing better! Have you read "The Thyroid Solution" yet? The author has a chapter designated for taking care of ourselves, and talks about supplementation and nutrition.
    I kind of went off my diet because I was feeling cocky in remission, and had some wine and cheeses & chocolate at a party recently and ended up getting kind of ill...I could tell it was thyroid related. I ended up having two days of not feeling like eating anything, and I just drank a ton of water, and ended up feeling back to normal after awhile.
    I talked with my Grandma about it and she remembered having a similar incident a long time ago, and needing to kind of watch what she ate for the first year after she went off her ATD's.
    Take care!! I'm so glad you're feeling better and getting back to normal!
    Heather


    Ih8graves

  2. vchen

    Good news that is wonderful. Having Graves sure can be challenging.


    vchen

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