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momtoben
Today was a good day. Ben has now been in his intensive ABA therapy program 5 days. He really seems to like going and is happy there so that is a huge relief to me. I am still sad that he can't be home with me everyday, but I know that is not what he needs right now. The whole family seems to be adjust well to our new schedule. I am now working full time in order to pay for his therapy. My husband has had to change his work schedule so that he can be home when my 5 year old gets home from school. Alot of adjustments for everyone. Knowing now that he is starting to get the therapy he needs is such a relief. I just continue to pray that he will get better!!!
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Today was a good day. We celebrated X-Mas with my family at our house. It was a really laid back day with lots of food and laughter. Just what I needed. Ben also had a good day - enjoyed alot of his presents. His favorite was a small train that my sister gave him. He was sooo cute saying "chooo chooo - all aboard." He also waved goodbye and said "bye bye" to my mom when she was pulling out of the garage. WOW!!!. He hasn't done this for a very long time. He also gave me several long kisses today - momma can't get enough of those. :) It really was the highlight of my day. I know my little boy is going to be okay, he is smart and strong.
Ben is signed to start intensive therapy starting Jan. 3. The program is ABA based and is 8 hours a day. I am having a really hard time with this. This is my little baby boy - you know. The mom in me just wants to keep him home with me and shelter, but I know he needs to go where he can get help. My gut is telling me we should do an in home program that is Floor Therapy based, but finanically I don't think we can do it because I have to work full time now in order to pay for his therapy - therefore I would not be able to be home with him. AGGHHHHHHH, I hate this soooooo much. I have so many emotions going on right now - sad, scared, stressed, hopeful.... Everyone says early treatment is the best and he is getting early treatment so that makes me hopeful. But what if it doesn't help him, what if he doesn't get better. He is my baby and I can't loose him to this monster....I can't!!!!!!!! He deserves so much more, so much more.
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November 2007 |
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Hi I was wondering where your from and where you are taking Ben for therapy were from WI too...Jayden is going to need extra therapy, we feel he is not getting what he needs from birth to 3...but we're not sure where to go....
JaydensGrandma
Hi there...Ben goes to a ABA based center in North St. Paul, MN. Although, we are having some issues with our current insurance provider, so we are actually looking into other options also right now. We live in New Richmond WI, which is only about 30 miles from the WI/MN border. Where do you live? Have you registered with the State of Wisconsin Waiver program? There is a waiting list, we signed up I believe last Jan. 08 and we have now been told Ben will be eligble for services starting March 09. If you haven't signed up I would encourage you to do so. The Waiver offers 3 years of intensive therapy and then a reduced amount of therapy thereafter. I would be happy to ask any questions you have - or once I find out where you live in WI, I can do some searching to see what is in your area. Hang in there...
momtoben