isaboo's Journal

okay, got a diagnosis about this time last year i guess..knew i had ms without a doubt...just needed a dammed doctor to agree so i could start drug treatment. found I was absolutly unable to work anymore...hard to work when you have to sleep every couple of hours, not to mention the 3 fleights of stairs to climb...yeah right thats happening. long battle unsued with insurance company but I'm now on disibility with full benefits...well mostly. started on copaxone...was on it for almost a year...kept getting worse but slowly...had a severe reaction to it could'nt breath for about an hour...turned blue...lottsa fun shit..quit taking that...no kidding. started on betaserone about a month ago...easier to shoot, no pain, no lumps. copaxone is sort of like shooting battery acid but had good benefits. after stopping copaxone i wondered if i would stay on my feet for much longer, my walking degraded fast and badly. can't feel my feet or hands much anymore. my right leg is pretty much non-funtional, and i can't type worth a shit in case you hadn't noticed. still waiting to see if betaserone will be of any benefit. tysabri is my next option...my neuro said it is the one option left when you are pretty much fucked. works well but with really big risks...death being the primary one. aw well, we are living at "the cottage" which with the addition of a furnace, heated water supply, additional insulation, automatic generator system...you would not believe how often the power fails here in winter, for long periods of time and a handicapped retrofitted john, its no longer a "cottage" but our home. oh yeah had a garage built too. not to mention the mortgage to do all this...stilll a hell of a lot cheaper than any previouse mortgage i've had. the views not half bad either inside or out. life is pretty dammed good aside from the lack of energy and inability to walk.