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xXforeverOaOchildXx
Female, 18, Rock Falls boondocks, IL

  • About Me

    Image of xXforeverOaOchildXx

    xXforeverOaOchildXx

    Female, 18, Single
    Rock Falls boondocks, IL, USA
    Member since November 20, 2007

    • About Me

      I've been through a lot in my life, definitely. I was born with a chronic medical condition called hydrocephalus. Sometimes, it causes me problems and other times I barely know I have a serious medical condition. I'm in CNA classes right now and soon after I graduate the class in November, I'm going to go to Sauk Valley Community College for their 2 year nursing program. I plan on eventually working at the new children's hospital in Chicago, Illinois on the neurosurgery floor. I have 9 horses, 1 dog, 3 cats, and my mom and I also have turtles. Right now, I live with my mom, but I go back and forth between my mom in Rock Falls and my grandma in Chicago. My aunt has a profile on here too. Her name is tryn2bhappy

      I've been through a lot in my life, definitely. I was born with a chronic medical condition called hydrocephalus. Sometimes, it causes me problems and other times I barely know I have a serious medical condition. I'm in CNA classes right now and soon after I graduate the class in November, I'm going to go to Sauk Valley Community College for their 2 year nursing program. I plan on eventually working at the new children's hospital in Chicago, Illinois on the neurosurgery floor. I have 9 horses, 1

    • Interests

      reading, writing poetry, some sports, Jesus, my family, my friends, my pets, schol, accomplishing my goals, bettering myself in all ways possible, and helping others in any way I can.

      reading, writing poetry, some sports, Jesus, my family, my friends, my pets, schol, accomplishing my

  • Journal

    • This entry is private

    • Journal Entry for September 30, 2009

      Mood September 30, 2009 10:39am

      I started my NA class. I didn't understand how to hear a blood pressure for a while, but now I can do it just fine.

       

      Right now, I'm …

    • New Beginnings

      Mood September 18, 2009 10:18am

      CNA classes start Monday, 9/21/09 OMG I CAN'T BELIEVE I'VE COME THIS FAR! I'll be completely done with the classes on November 14th, …

    • This entry is private

    • This entry is private

    Read Journal

  • Hugbook

    Give xXforeverOaOchildXx a hug



    • Hug

      From Niccid Wednesday

      Hi, sweetie, how r u? So when do u graduate? Keep up the great work! I'm so proud of u! Hugs!

    • Hug

      From Niccid Monday

      Hi sweetie, how are u? Hugs!

    • Thanks

      From BrokenPromises November 1

      Thanks. I think there will come a day when I'll admit I need help but right now I just don't see it. Miss you!

    • Hug

      From DiRN October 29

      Just checking in, it sounds like clinicals are going well. When do you graduate in November. I haven't been on much lately, but you remain in my thoughts and prayers. Love and blessings, Diane

    • Miss You

      From lolly October 27

      miss you too sissy

    Read Hugbook

  • Photos

  • Goals

    be ready for adulthood

    Progress

    70 %

    Goal End Date is Nov 19, 08 354 days ago.
    4 bottles of water/day

    100%

    Goal Completed on Oct 4, 08
    Stay strong in my faith

    100%

    Goal Completed on Feb 25, 08

  • Support Groups

    • Close Hydrocephalus

      I'm 18 yrs old. I've had hydrocephalus since birth. I was born at 27 weeks. From the time I was born until now, I've had 29 operations. I've had 7 of those operations just in 2009!

      Treatments

      Acetazolamide Considering
      I'm considering having my doctor write me a prescription for this
      Biofreeze Working / Worked
      When I had VPL shunts, Biofreeze basically froze every part of me that hurt but I could still move! I put it on my chest back right side and my neck. It worked for hours!
      Prayer Working / Worked
      God has saved me from death numerous times from shunt malfunctions and infections. I almost died when I was 8 yrs old from an infected shunt and the surgeons couldn't figure out what I had. Back then MRSA just came out and my NS told my mom he hoped I didnt have MRSA because back then if you had it you died because there was no antibiotic. My NS told my mom that her daughter would die if we didnt find what was wrong with me in time. He told her and I quote If its MRSA we will lose her
      Shunts Working / Worked
      from 1990 to January 2009, I've had 2 VP shunts. They've malfunctioned a number of times and had to be revised and changed, but again, I had the same VP shunts placed. In January of 2009 when my shunts malfunctioned for the 19th time, my 2 VP shunts were externalized and then changed to 2 VPL (ventriculo pleural shunts). My shunts now expel excess CSF into the space between my chest wall and my lung which is called the pleural space. Those malfunctioned, and got infected, now have 2 VP shunts
      Surgery Working / Worked
      29 surgeries,,, 1 open heart surgery... 28 shunt revisions. last surgeries to date were on 1-8-09; 1-15-09; 1-20-09; 1-30-09; 3-10-09; 4-3-09; 4-28-09
      Dextropropoxyphene Working / Worked
      this works really well and doesnt leave me lethargic like other narcotics do. It also doesnt upset my stomach or make me constipated at all
      Hydrocodone Working / Worked
      this was easier on my stomach unlike a few other narcotics
      Ultram Working / Worked
      this worked without any of the side effects of narcotics

    • Close Scoliosis

      I just got officially diagnosed with scoliosis on 9/19/2008 while at inpatient treatment for my anorexia. The doctor said that my scoliosis is caused by my eating disorder, but even if my eating disorder is under control, the scoliosis will NEVER go away :( The cause very well could be my anorexia, but scoliosis DOES run in my immediate family, so I could have gotten it from that too. We really have no idea. The MD jumped straight to the anorexia just because anorexia can cause scoliosis.

      Treatments

      Brace Considering
      Kegel Exercise Too Soon to Tell
      I'm try this for a month or so and we'll see how it goes...

    • Open Premature Birth

      I was born at 27 weeks gestation weighing 1.5 pounds and I was only 8 inches long. I was born by emergency C section and I came out blue. I was in the NICU for 4 months until I reached 5 pounds. I have congenital hydrocephalus. I was born with a hole in my heart that was closed surgically 2 hours after I was born. I've had 1

    • Open DailyStrength Members Community

      xXforeverOaOchildXx hasn’t entered any details for this support group.

    • Open Bullying

      I was teased horribly as a kid and through high school!

    • Open Other Eye Problems

      My left eye has been "lazy" ever since I was born. I have hydrocephalus and 2 VPL (ventriculopleural) shunts, and when they malfunction or I have an infection, my left eye gets even lazier and goes farther out than normally. I've worn glasses since I was in preschool.

    • Open Irritable Bowel Syndrome (IBS)

      In February of 2007, I was taken to the ER and hospitalized for bloody diarrhea. I mistakenly thought it was Crohn's Disease and continued to have bouts of diarrhea all that year. In January of this year, I started to have a few problems with my other medical condition. Now, a few months later and just finished with my last surgery (4/28/09) I'm having issues with both chronic diarrhea and also bouts of constipation.

      Treatments

      Acidophilus Working / Worked
      Tried this for a while... sort of felt it was useless to spend money on pills I wasn't sure were doing anything for me.
      Colace Working / Worked
      As of April of 2009, I'm on a Miralax and Colace regimen. I take these two medications daily to ensure that I don't get constipated because that can be dangerous for me because I also have hydrocephalus.
      Miralax Working / Worked
      As of April of 2009, I'm on a Miralax and Colace regimen. I take these two medications daily to ensure that I don't get constipated because that can be dangerous for me because I also have hydrocephalus.
      Probiotics Not Working
      aciphodillus... I saw no difference...

    • Open Breast Cancer

      6/19/09, my grandma's breast biopsy confirmed breast cancer. Her surgeon said that he can completely cure her because the cancer is so small. I'm going a little crazy.

      Treatments

      Arimidex Working / Worked
      My grandma has to take this pill for 5 years.
      Surgery Working / Worked
      My grandma had her cancerous tumor in her breast removed.

    • Open Family Issues

      Mom and Dad have been separated since before I was born, met Dad @ age 12 for the 1st time. Stopped communication @ 15. Just started talking to half brother and sister @ 18. Haven't spoken directly to Dad yet. Live back and forth between Grandma and Mom.

      Treatments

      Talking Working / Worked
      I TALK ABOUT MY FEELINGS TO CERTAIN PEOPLE.
      Writing Working / Worked
      I LIKE TO WRITE OUT MY FEELINGS AND FRUSTRATIONS AND I WRITE POETRY.

    • Open Asthma
      Type: Adult Asthma

      i have scarring on my lungs from a previous infection. It causes me to have severe shortness of breath and coughing spells.

      Treatments

      Albuterol Working / Worked

    • Open GERD & Heartburn

      heartburn.... can't eat spicy foods or drink soda anymore...

      Treatments

      Antacids Working / Worked
      Tums and Rolaids

    • Open Chronic Pain

      chronic headaches and stomach aches due to hydrocephalus and 2 ventriculoperitoneal shunts... also have chronic constipation as a result

      Treatments

      Naproxen Too Soon to Tell
      250mg twice a day as needed

    • Open Self-Injury

      Treatments

      Group Therapy Not Working
      It made me worse because I was around more people who self injured so it wasn't a positive environment for me at all. Plus I was the worst cutter there, and I was the only one who was mandated to cover my arms because it might be "triggering" to the other patients!
      Outpatient Treatment Program Not Working
      It made me worse because I was around more people who self injured so it wasn't a positive environment for me at all. Plus I was the worst cutter there, and I was the only one who was mandated to cover my arms because it might be "triggering" to the other patients!
      Psychotherapy Working / Worked
      it depends on the therapist you have... some therapists have worked really well with me. Others not so well.
      Red Marker Not Working
      Rubber Bands Not Working
      I'd snap the rubber bands so hard, there'd be welts on my wrists when I was done
      Squeezing Ice Somewhat Helpful
      This works sometimes
      Talking Not Working
      I used to talk, now I don't

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