Journal Entry for August 18, 2007
August 18, 2007 9:10pm
I have started a knitting blog on Google's blogger. It has been a good fthing for me so far and it has gotten me back knitting again, something …
SquirrelNutkins 
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About Me
SquirrelNutkins
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About Me
Ehlers-Danlos, Migraines, Degenerative Disk Disease, Osteoarthritis.
Ehlers-Danlos, Migraines, Degenerative Disk Disease, Osteoarthritis.
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Interests
Hiking, x-country skiing, knitting, Meerkat Manor
Hiking, x-country skiing, knitting, Meerkat Manor
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Recent Activity
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Journal
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Journal Entry for June 29, 2007
June 29, 2007 1:36pm
I has been a weird week. Mercury is in retrograde. It peaked a couple days ago. That explains a lot. I was doing so well with my mom's death, …
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Journal Entry for June 18, 2007
June 18, 2007 12:16pm
It was a nice weekend to spend with Mr. Nutkins after his week-long trip. One of our siamese kitties got sick with an ear infection on Friday. She …
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Journal Entry for June 12, 2007
June 12, 2007 1:44am
The kitties and I are alone until Friday. Mr. Nutkins left this morning for a business trip to Argonne National Laboratory in Illinois. He said he is …
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Journal Entry for June 5, 2007
June 5, 2007 12:15pm
I am much better today. I had a full eight hours of sleep, much better than the five I have been getting.
I have had to be careful about the …
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Hugbook
Hug
I wrote this poem several years ago and hope that you will enjoy it and that it may give comfort and reassurance into the meaning of life. It goes as follows: LIFE'S JOURNEY I pray that God will bless you At the start of each new day And grant you health and happiness And friends to share your way As you journey through this life To reach that Ultimate Goal May you find peace and happiness Deap within your soul The road is long and narrow Full of trials and sufferings too But you must continually endure it As the appropriate thing to do Each of us has a tunnel Either filled with thorns or roses We must travel through the thorny tunnel To achieve heaven and the roses. Copyright, 1989, Terry M. Martini. All rights reserved. Terry
Present
a present full of hugs for you hope u have a very blessed new year gerri
Hug
Thinking of you and hope you are doing well. I am concerned since you haven't posted in awhile. Big hug!
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Hug
just sending u hugs gerri
Hug
Just wondering how you are doing?? Havent heard from you in awhile. Hope you are doing great and knitting away. Hugs, Carol
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Photos
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Support Groups
Close Ehlers-Danlos Syndrome
I have Ehlers-Danlos 3 and have had jaw, hip, knee, rib, and knee dislocations and subluxations. I was born with severe pectus excavatum, a ribcage deformity, related to Ehlers Danlos/Marfan's. I have a huge surgery to repair it.
Treatments
- Arthroscopy Working / Worked
Close Migraine Headaches
Treatments
- Fioricet Working / Worked
- Have taken it for 15 years. It makes day to day life less painful, although it doesn't take away the severe migraines/headaches.
- Toradol Working / Worked
- This works 90% of the time for severe migraines. My sweet, caring husband has many times takien me to the hospital for a shot of toradol, even at 2am.
- Petadolex Working / Worked
- This is a natural supplement made from the butterbur herb.
Open TMJ
I've had very serious jaw pain, disclocations, and a slipped disk. As I am getting older, my jaw has tightened up, and I am having less problems. I was told this would happen.
Treatments
- CranioSacral Therapy Working / Worked
- Like magic! I have a fantastic doctor for this, but it is not covered by insurance and it is expensive.
Open Arthritis
Scoliosis and degenerative disk disease of neck and back.
Open Alzheimer's Disease
Stage: AdvancedMy 85 year old mother has stage 5 Alzheimers. She is very sweet and cooperative. My parents have a great(wacky) sense of humor, which definately helps. I brought them over some great organic tomato soup to try. My mom casually looked at the label and said, "Well how about that, they are making soup out of tomatoes now!" She once was a great cook and would make tomato soup from scratch.
Treatments
- Ginkgo Too Soon to Tell
- I think it helps me...
Open Chronic Pain
I have dealt with huge stigma associated with fioricet. My new neurologist is giving crap about it. It is such a benign drug compared to things like prendisone and diclocfenac that can destroy your stomach. I have had so much severe pain and I have gotten so good at dealing with it, that I have no concept of "on a scale of 1 to 10 how much pain...". I have no clue!
Treatments
Open Hypermobile Syndrome
I have been diagnosed with Ehlers Danlos and benign Marfan's. It is always confusing about what is the difference between Ehlers Danlos 3 and Hapermobility Syndrome. It is my thought that not enough is known about these disorders. I scored the maximum nuber of points on the Beighton test. I also belong to the Ehlers Danlos community.
Open Scoliosis
I have a twisted S-curve. Pretty common with Ehlers-Danlos.
Treatments
- Chiropractic Adjustment Somewhat Helpful
- I have Ehlers-Danlos and disk degeneration disease. I have been told that chiropractic is not good since I have those two things.
- Physical Therapy Working / Worked
- Especially with pilates!
- Stretching Working / Worked
- Very helpful
Open Marfan Syndrome
SquirrelNutkins hasn’t entered any details for this support group.Open Bereavement
Type: Loss of a ParentMy mother died Friday, May 18th from complications of advanced Alzheimer's. At times I am like a rock and other times crying like a waterfall.
Treatments
- Crying Working / Worked
- Support from Friends & Family Working / Worked
- Remembering Working / Worked
