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  • Image of Kyna

    About Me

    I'm Kyna, I'm 16 and live in large town that has absolutely nothing in it. I have no relationships to speak of. My friends are generally as screwed up as I am... A lot of things are complicated for me...I read a lot, but I'm not a fan of writing. Playing video games and role playing online are some hobbies. I have cmt, and am in pain from it most of the time. I've suffered from depression since I was about seven, but recently it's been worse than ever, with other new exciting symptoms, bipolar and hallucinations I'm just that special...Send me a message or something if you want to get to know me.

    Interests

    I like reading, I do it more than watching tv (which is unlike most teenagers) J'aime parler français. Though, Je sais, Je suis non tres bien. Kevin Smith movies are amazing. My true friends mean a lot to me, but they're pretty hard to find now-a-days. They're few and far between...

  • Recent Activity

    Yesterday

    Monday

    • Kyna gave Kon a hug 1:03pm

      Just stopping by and saying hello.…  
  • Journal

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    Read Journal

  • Hugbook

    Give Kyna a hug



    • Hug

      From sleepyhaed Yesterday

      Hi ! I havent heard fron you in a while .How are you ??? Its really cold here in the UK .They are saying we are going to have 6 inches of snow .Take care .Hugs ann xx

    • Ray of Sunshine

      From painangel Tuesday

      Hey, I know we haven't talked in SO long, but so much shit is going on here, for example my grandpa just died. I have just been too busy and know this. I haven't forgotten about you. When things calm down, we will have to chat again. I am sending you my positive thoughts. For what it is worth, I hope it helps a little. Love, me

    • Hug

      From alyssahairgirl Monday

      hae how r u wana chat live i will send u a request

    • Hug

      From Dezna Monday

      Sending you lots of hugs for today. I hope you are having a painfree day today. Love Dezna

    • Hug

      From Dezna Sunday

      It is a pleasure Kyna, shame are you in a lot of pain at the moment? Sending you some more hugs for Sunday. From Dezna

    Read Hugbook

  • Goals

    Progress

    15 %

    Goal End Date is Sep 9, 09 279 more days.
    Goal Completed on Jul 22, 08
    Goal Completed on Jan 6, 08
  • Support Groups

    • Close Charcot-Marie-Tooth Disease

      I was diagnosed about a year ago after being told for years that the pain I was in was all in my head. I am the first known case in my family.

      Treatments

      Elavil Not Working
      I'm on the maximum dosage they'll put me on (125mg), it worked a little bit for about a week now it is doing nothing at all. Gave me really bad dry mouth the first couple months, also I craved anything with sugar in it, so I gained some weight because of it.
      Heat Working / Worked
      Helps with stiffness so I can stretch and not hurt AS much.
      Oxycodone Somewhat Helpful
      Helps some
      Physical Therapy Somewhat Helpful
      I've been going for about three years, for my feet and back. Knees when they start hurting too. Strength training mostly but it really doesn't do much for me. Right now trying to help strengthen my feet after their surgeries.
      Surgery Working / Worked
      It has been a long road. Had my first to reconstruct my feet in September, the next is to come in February. My foot is straight for the first time ever.
    • Close Teen Sexuality

      Kyna hasn’t entered any details for this support group.
    • Open Gay & Lesbian Teens

      Kyna hasn’t entered any details for this support group.
    • Open Depression - Teen

      Treatments

      Music Somewhat Helpful
      Psychotherapy Not Working
      When I went I always went home feeling worse than before I got there.
      Support from Friends & Family Not Working
      Talking Somewhat Helpful
      Writing Somewhat Helpful
      I write somewhere each day, helps me get my thoughts so they aren't so jumbled up.
    • Open Self-Injury

      I started cutting in sixth grade after being emotionally abused for years from my sister. I was to the point where I didn't know what else to do. I had seen it on tv and figured it was worth a shot. I got addicted and did it pretty often for two years. Stopped for awhile when my sister left, then started again. Again when she moved I pretty much stopped, now she's back and I've started again.

      Treatments

      Psychotherapy Not Working
      Everytime I left I would feel worse than when I went in so I refuse to or to go someone else.
      Red Marker Not Working
      It isn't the same.
      Rubber Bands Not Working
      Didn't do the same thing for me, and made my wrists look really bad. It was more obvious that I was hurting myself.
      Squeezing Ice Not Working
      Talking Somewhat Helpful
      I spend most nights on the phone with a friend trying to prevent myself from doing anything. Sometimes it helps other times I just can't help it.
      Crying Somewhat Helpful
    • Open Obsessive Compulsive Disorder (OCD)

      It is crazy sometimes. Mostly in times of stress. It doesn't come down to germs or anything. I count everything. Palindromes make me happy, when I see the time I can't stand if the numbers don't add together to like 2:24 (2+2=4) I like that. People touching me. Its all there...probably more but I don't feel like typing it all out.

    • Open Muscular Dystrophies

      I have CMT (which is covered by the MDA ((so I figure I belong here)) though it is neuromuscular). The CMT group is pretty dead so I figured I'd get some support here. My boyfriend also has Becker's MD.

    • Open Anxiety

      Treatments

      Effexor Too Soon to Tell
      Valium Somewhat Helpful
    • Open Panic Attacks

      Treatments

      Effexor Somewhat Helpful
      Psychotherapy Not Working
      Xanax Working / Worked
      Works when I take it during an attack.
    • Open Bipolar Disorder

      The newest theory of what is going on in my head...

      Treatments

      Psychotherapy Not Working
      Unless I find someone else...I'm not going to go again.
      Risperdal Not Working
      Palpitations
      Seroquel Working / Worked
      Working nicely...actually sleeping for normal amount of hours instead of 2 compared to 22 hours.
      Wellbutrin Not Working
      Made me suicidal.
      Cymbalta Too Soon to Tell
      Well see...
      Effexor Not Working
      Made me gain too much weight
    • Open Bereavement
      Type: Loss of a Relative

      My grandma about ten years ago, never recovered (5/6/99 about 3 am) and then my granpy recently (10/1/08 11pm). My great grandfather (7/31/08). My friend Shane (8/2/06) And many many friends i shared hospital rooms with.

      Treatments

      Crying Not Working
      There are only so many tears you can cry before you run dry and you're left numb and empty.
      Getting Angry Not Working
      Keeping Busy Working / Worked
      Music Somewhat Helpful
      Prayer Somewhat Helpful
      It's nice to "talk" to them when you need them.
      Psychotherapy Too Soon to Tell
      Reading Working / Worked
      A nice escape.
      Remembering Not Working
      Talking Not Working
      I'm tired of hearing "I'm sorry"
      Time Not Working
      Ten years and the hurt is still fresh.
    • Open Chronic Pain

      Treatments

      Chiropractic Adjustment Considering
      Not allowed...
      Cymbalta Too Soon to Tell
      Started 11.12.08
      Flexeril Working / Worked
      Works nice in addition with my painkillers
      Heat Somewhat Helpful
      This helps...relaxes everything...feels good when it is there but doesn't last.
      Hydrocodone Not Working
      Didn't do a thing...it was hell when I had surgery and didn't work, and they wouldn't listen to me that it didn't work.
      Lyrica Not Working
      Gave me some of the worse migraines of my life...I was sick for the two weeks I was on it...hated it so much.
      Marijuana Working / Worked
      Illegal and I smoke VERY rarely but for that 45-60 minutes my body doesn't hurt.
      Meditation Not Working
      This is a joke.
      Morphine Not Working
      I've been on it, just have a severely high tolerance to pain medications.
      Naproxen Not Working
      No effect on me in more than 8 years!
      Neurontin Not Working
      Was as bad as Lyrica.
      Oxycodone Working / Worked
      Oxycodone and Valium...as often as needed.
      Physical Therapy Working / Worked
      I go twice a week and it helps relax what hurts so much...plus the massage and easy stretches. Sometimes it hurts, but my pt is amazing and works with me. If I can't do something, she won't push me.
      TENS Working / Worked
      I use this at physical therapy when the pain is really bad.
      Valium Working / Worked
      I use it with my oxycodone and sometimes with my cyclobenazprine.
      Elavil Not Working
      Works then doesnt then does now doesnt.
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