Progress
15 %
Goal End Date is Sep 9, 09 279 more days.
Kyna’s Profile
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About Me
I'm Kyna, I'm 16 and live in large town that has absolutely nothing in it. I have no relationships to speak of. My friends are generally as screwed up as I am... A lot of things are complicated for me...I read a lot, but I'm not a fan of writing. Playing video games and role playing online are some hobbies. I have cmt, and am in pain from it most of the time. I've suffered from depression since I was about seven, but recently it's been worse than ever, with other new exciting symptoms, bipolar and hallucinations I'm just that special...Send me a message or something if you want to get to know me.
Interests
I like reading, I do it more than watching tv (which is unlike most teenagers) J'aime parler français. Though, Je sais, Je suis non tres bien. Kevin Smith movies are amazing. My true friends mean a lot to me, but they're pretty hard to find now-a-days. They're few and far between...
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Recent Activity
Yesterday
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Kyna replied to orchid11’s discussion post Pain Worse During Periods? in the Chronic Pain support group 8:56pm
I get more uncomfortable with my period and my pills don't help so much. Birth control has helped though.…
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Kyna replied to naughtygirls’s discussion post Seroquel, need feedback please in the Bipolar Disorder support group 8:38pm
I take 300mg of Seroquel a night. It takes some getting used to, which is why they slowly increase the…
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Kyna replied to AnjiQ’s discussion post Diagnosed how?? in the Bipolar Disorder support group 8:31pm
My primary doctor had suspicions then I saw a psychiatrist and she agreed...so no hospital needed, though…
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Kyna gave painangel a hug 8:17pm
Hey, I understand things going wrong and life gets difficult. I know how the loss feels, lost mine two…
Monday
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Journal
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Hugbook
Hug
Hi ! I havent heard fron you in a while .How are you ??? Its really cold here in the UK .They are saying we are going to have 6 inches of snow .Take care .Hugs ann xx
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Ray of Sunshine
Hey, I know we haven't talked in SO long, but so much shit is going on here, for example my grandpa just died. I have just been too busy and know this. I haven't forgotten about you. When things calm down, we will have to chat again. I am sending you my positive thoughts. For what it is worth, I hope it helps a little. Love, me
Hug
hae how r u wana chat live i will send u a request
Hug
Sending you lots of hugs for today. I hope you are having a painfree day today. Love Dezna
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Hug
It is a pleasure Kyna, shame are you in a lot of pain at the moment? Sending you some more hugs for Sunday. From Dezna
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Photos
Kyna hasn’t uploaded any photos yet
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Goals
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Support Groups
Close Charcot-Marie-Tooth Disease
I was diagnosed about a year ago after being told for years that the pain I was in was all in my head. I am the first known case in my family.
Treatments
- Elavil Not Working
- I'm on the maximum dosage they'll put me on (125mg), it worked a little bit for about a week now it is doing nothing at all. Gave me really bad dry mouth the first couple months, also I craved anything with sugar in it, so I gained some weight because of it.
- Heat Working / Worked
- Helps with stiffness so I can stretch and not hurt AS much.
- Oxycodone Somewhat Helpful
- Helps some
- Physical Therapy Somewhat Helpful
- I've been going for about three years, for my feet and back. Knees when they start hurting too. Strength training mostly but it really doesn't do much for me. Right now trying to help strengthen my feet after their surgeries.
- Surgery Working / Worked
- It has been a long road. Had my first to reconstruct my feet in September, the next is to come in February. My foot is straight for the first time ever.
Close Teen Sexuality
Kyna hasn’t entered any details for this support group.Open Gay & Lesbian Teens
Kyna hasn’t entered any details for this support group.Open Depression - Teen
Treatments
- Music Somewhat Helpful
- Psychotherapy Not Working
- When I went I always went home feeling worse than before I got there.
- Support from Friends & Family Not Working
- Talking Somewhat Helpful
- Writing Somewhat Helpful
- I write somewhere each day, helps me get my thoughts so they aren't so jumbled up.
Open Self-Injury
I started cutting in sixth grade after being emotionally abused for years from my sister. I was to the point where I didn't know what else to do. I had seen it on tv and figured it was worth a shot. I got addicted and did it pretty often for two years. Stopped for awhile when my sister left, then started again. Again when she moved I pretty much stopped, now she's back and I've started again.
Treatments
- Psychotherapy Not Working
- Everytime I left I would feel worse than when I went in so I refuse to or to go someone else.
- Red Marker Not Working
- It isn't the same.
- Rubber Bands Not Working
- Didn't do the same thing for me, and made my wrists look really bad. It was more obvious that I was hurting myself.
- Squeezing Ice Not Working
- Talking Somewhat Helpful
- I spend most nights on the phone with a friend trying to prevent myself from doing anything. Sometimes it helps other times I just can't help it.
- Crying Somewhat Helpful
Open Obsessive Compulsive Disorder (OCD)
It is crazy sometimes. Mostly in times of stress. It doesn't come down to germs or anything. I count everything. Palindromes make me happy, when I see the time I can't stand if the numbers don't add together to like 2:24 (2+2=4) I like that. People touching me. Its all there...probably more but I don't feel like typing it all out.
Open Muscular Dystrophies
I have CMT (which is covered by the MDA ((so I figure I belong here)) though it is neuromuscular). The CMT group is pretty dead so I figured I'd get some support here. My boyfriend also has Becker's MD.
Open Panic Attacks
Treatments
- Effexor Somewhat Helpful
- Psychotherapy Not Working
- Xanax Working / Worked
- Works when I take it during an attack.
Open Bipolar Disorder
The newest theory of what is going on in my head...
Treatments
- Psychotherapy Not Working
- Unless I find someone else...I'm not going to go again.
- Risperdal Not Working
- Palpitations
- Seroquel Working / Worked
- Working nicely...actually sleeping for normal amount of hours instead of 2 compared to 22 hours.
- Wellbutrin Not Working
- Made me suicidal.
- Cymbalta Too Soon to Tell
- Well see...
- Effexor Not Working
- Made me gain too much weight
Open Bereavement
Type: Loss of a RelativeMy grandma about ten years ago, never recovered (5/6/99 about 3 am) and then my granpy recently (10/1/08 11pm). My great grandfather (7/31/08). My friend Shane (8/2/06) And many many friends i shared hospital rooms with.
Treatments
- Crying Not Working
- There are only so many tears you can cry before you run dry and you're left numb and empty.
- Getting Angry Not Working
- Keeping Busy Working / Worked
- Music Somewhat Helpful
- Prayer Somewhat Helpful
- It's nice to "talk" to them when you need them.
- Psychotherapy Too Soon to Tell
- Reading Working / Worked
- A nice escape.
- Remembering Not Working
- Talking Not Working
- I'm tired of hearing "I'm sorry"
- Time Not Working
- Ten years and the hurt is still fresh.
Open Chronic Pain
Treatments
- Chiropractic Adjustment Considering
- Not allowed...
- Cymbalta Too Soon to Tell
- Started 11.12.08
- Flexeril Working / Worked
- Works nice in addition with my painkillers
- Heat Somewhat Helpful
- This helps...relaxes everything...feels good when it is there but doesn't last.
- Hydrocodone Not Working
- Didn't do a thing...it was hell when I had surgery and didn't work, and they wouldn't listen to me that it didn't work.
- Lyrica Not Working
- Gave me some of the worse migraines of my life...I was sick for the two weeks I was on it...hated it so much.
- Marijuana Working / Worked
- Illegal and I smoke VERY rarely but for that 45-60 minutes my body doesn't hurt.
- Meditation Not Working
- This is a joke.
- Morphine Not Working
- I've been on it, just have a severely high tolerance to pain medications.
- Naproxen Not Working
- No effect on me in more than 8 years!
- Neurontin Not Working
- Was as bad as Lyrica.
- Oxycodone Working / Worked
- Oxycodone and Valium...as often as needed.
- Physical Therapy Working / Worked
- I go twice a week and it helps relax what hurts so much...plus the massage and easy stretches. Sometimes it hurts, but my pt is amazing and works with me. If I can't do something, she won't push me.
- TENS Working / Worked
- I use this at physical therapy when the pain is really bad.
- Valium Working / Worked
- I use it with my oxycodone and sometimes with my cyclobenazprine.
- Elavil Not Working
- Works then doesnt then does now doesnt.
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Snapshot
Recently …
- 9 hugs given
- 12 hugs received
- 1 journal post
- 1 discussion post
- 9 discussion replies
- 1 group discussion reply
