forgot
June 19, 2008 6:49am
forgot to add I have been friends with these 2 since 1979
tearsrfalling 
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About Me
tearsrfalling
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About Me
have nf1 & pseudoarthrotis (false joint) in right leg. Like to meet true friends that understand and don't mind the tumors.
have nf1 & pseudoarthrotis (false joint) in right leg. Like to meet true friends that understand and don't mind the tumors.
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Journal
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NF SUCKS
June 19, 2008 6:46am
I am not sure why I am here; itis about 5:30 a.m. and nf even invades my sleep. Did not fall asleep until about 3:00 a.m. and then had a dream …
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Hugbook
Ray of Sunshine
Just a hello and to see how you are doing. Hope that you had a good weekend
Ray of Sunshine
Hiya.
Sending the sun to brighten things up.
Hug
hang in there
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Hug
I am doing ok. I did am thinking about calling the dr again to see if I can get some more tumors removed. Sometimes I feel like it wont matter since there are so many, but the ones that catch my eye because they are bigger, keep reminding me. How are you feeling today I hope you are feeling ok. It is great to have this support we have here. No one understands how you feel unless you are going through it. Every one tells me to stop it that I look fine when I tell them I hate my tumors and I know they are just trying to make me feel better, but they just don't get it. I want to look like them I envy there smooth skin and that they don't have to worry about where the next tumor will grow. Anyway have a good day -Take care Val
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Ray of Sunshine
I am glad that your eye is feeling better. I know what you mean, I don't want NF To win on any level. I try to keep a positive attitude, but as you know sometimes that does not work. Anyway like I said I am glad that you are doing better and hope this finds you on a good day. Val
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Close Neurofibromatosis
being a woman with nf1 is hard, people treat you differently. I have had adults tell me, I should not be seen in public, and guys tell me they would never date an ugly cripple, it seems olser I get the more tumors T get, and hate that dr.s only say it is nf related, we can't do anything for it so live with it
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