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About Me
Sillyak
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Thanks
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I’m With You
Thank you for sharing your story. I feel the same way with the symptoms you have and also about the fact you keep your illness to yourself except on this web-site. I'm still able to work and for that I am happy. My co-workers have no clue. I need the support on this site so much! Again thank you!
Sharon 
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Im SOOO glad the neurontin is helping you!!! It made my day :) That med has truely given my dad a life back for his neuropathy. I cant tell you how happy I am that its helping your headaches..Huge hug and kiss xoxoxo
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Don't loose the strength to wake up and stand every morning, you just do it,if you loose that then you will loose, hang in there I'm with you!
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Thank you for sharing, I hope I'll find oput real soon if I have a tumor or not, I don't feel like I have one, but on the other hand how does it feels?
I have a one year old to take care of and it gets me exhausted, I hope you start to feel less tired I completely understand!
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Support Groups
Close Sjogren's Syndrome
I was diagnosed with Lupus in 2007 and Sjogren's the beginning of 2008 after having high anti-DNA, ANA speckled. I have had Celiac disease since 2003. I'm take Evoxac, Restasis and Hydroxychloroquine and many more drug for migraines and sleep help.
Treatments
- Naprosyn Working / Worked
- Helps the nerve painnumbness and muscle twitching.
Open Dry Eyes
I have had dry eyes and mouth for years but never thought much about it. The wind always made my eyes water but they never hurt. Then I started to have eye swelling and bad redness. One eye doctor said it was from Allergies and gave me eye drops. Another eye doctor said it was Blepharitis. It was not until a Rheumatologist diagnosed me with Sjogren's that I connected the eyes to my auto immune disease. I had to ask my eye doctor for the Schirmer's test for dry eyes.
Treatments
- Restasis Working / Worked
- working
- Restasis Working / Worked
- Id suggest being proactive meaning have the Schermirs test. It will determine if the dryness is affecting your cornea. I take Rostasis 2X a day and use PM eye oitment now so my corneas dont detatch. The combination works really well for me. It is a lot easier treating a problem before it gets as bad as mine got before getting the proper treatment. I also have eye plugs in my lower tear ducks.
Open Fibromyalgia
Basically I have muscles that won't relax. My body hurts to be touched and I am easily irritated by noise and stress.
Treatments
- Cyclobenzaprine Working / Worked
- Helps.
- Cymbalta Somewhat Helpful
- Heat Working / Worked
- Only works for the time it is applied.
- TENS Working / Worked
- Helps with the pain.
- Vitamin B12 Working / Worked
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Groups
