update
June 12, 2008 7:57am
Everything is goping well right now . other than a few chiari headaches every now and then . My skin is improving . Though my hair has not grown back …
Progress
65 %
ltruman 
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About Me
ltruman
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About Me
Wife , Mother of 4 , 2 grown and 2 school age , MiMi of two a girl 3 years old and a newborn baby boy . fighting Chiari malformation and Lupus .
Wife , Mother of 4 , 2 grown and 2 school age , MiMi of two a girl 3 years old and a newborn baby boy . fighting Chiari malformation and Lupus .
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Interests
Golf , flower gardening , teaching myself to crochet .
Golf , flower gardening , teaching myself to crochet .
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Recent Activity
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Journal
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Life Is Good
May 28, 2008 11:54pm
I am not very consistant with posting journal entries , I do read the posts in the groups all the time and get a wealth of inspiration and knowledge …
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Learning
May 17, 2008 7:10am
I am learning , learning to live with all this or let it live with me . Learning to deal with it I suppose. The chiari was a challenge to get …
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Rash
May 9, 2008 4:35pm
Today I sport a horrible rash , covering the trunk of my body and arms , the arms are not quit as bad as the rest .
No help for the dermatologist , …
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Discoid Lupus
May 3, 2008 7:57pm
Well , the lups is really taking a toll. My hair is falling out sooo fast ! I had and had is the key word here , enough hair for three people my …
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Hugbook
Hug
Hello There Nice Person Did Anyone Ever Tell You, Just How Special You Are The Light that You Emit Might even Light a Star Did Anyone Ever Tell You How Important You Make Others Feel Somebody out here is Smiling About Love that is so Real Did Anyone Ever Tell You that Many Times When They were Sad Your E-mail made Them Smile a bit In Fact It made Them Glad For the Time You Spend Sending Things And Sharing whatever You Find There are No Words to Thank You But Somebody, Thinks You're Fine Did Anyone Ever Tell You Just How Much They Like You Well, My Dearest Friend Today I am Telling You I believe that without Friend's you are missing out on a lot!!! Have a nice day, and I'm glad we are friends!!! THIS IS A HAND OF FRIENDSHIP
Hug
Thankyou so much! I haven't been on here in awhile and trying to catch up. I hope you are doing well! Tish
Flower
Happy Mothers Day!
I’m With You
Prayer
My prayers are with you that your grand child continues to get better and for your health DebK
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Photos
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Support Groups
Close Arnold-Chiari Malformation
Diagnosed ACM I 2000 , 13mm not decompressed , Surgery has been recommended. I have chosen to wait until absolutely neccessary .
Close Chronic Pain
I have chronic pain from ACM . head , neck arms mid back , low back . legs
Treatments
- Baclofen Working / Worked
- helps very little
- Heat Somewhat Helpful
- helps somw on neck great for the low back
- Hydrocodone Somewhat Helpful
- works some of the time
- Topamax Somewhat Helpful
- not as many wierd headaches but still have exertional headaches that linger
Open Lupus
After searching for an answer for ten years ,lingering diagnosis of MS for 10 years I was finally diagnosed with Discoid Lupus' . Positive ANA after many negative ones and all other symptoms point toward SLE , that is not a definate diagnosis as of yet, My Neuro. believes it to be though . But atleast now I can get treatment started and quit wondering .
Treatments
- Plaquenil Working / Worked
- I have noticed less achieness and less joint pain less itching since about the second week . It is too soon to tell about the skin and hair .
Open Depression
Type: Clinical (Major) DepressionTreatments
- Meditation Working / Worked
- love it !
- Wellbutrin Working / Worked
- I have tried many antidepressants over the years Wellbutrin works the best by far for me
- Writing Working / Worked
- I have kept a journal for years it has been a very beneficial tool as well a poetry
- Yoga Working / Worked
- relaxes the body and mind elevates the mood gives a sense of wellbeing sleep well
Open Parents of Children with ADHD
My youngest son was dx'd ADHD with mood disorder at age 5 it has been an adventurous ride to say the least. Things settled down a bit until this year , he is now in 7th grade May the force be with us !
