Journal Entry for February 1, 2008
February 1, 2008 5:59am
Well here i am again, been a while since my last journal, but lots has been happening to keep me busy. Christmas was lovely! all warm and cosy. …
xcarerx 
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About Me
xcarerx
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About Me
I am widowed, and a mum of 4 children, 2 boys, 2 girls, my son christopher has duchenne muscular dystrophy. He is 19 years old and I am main carer. My brood are somewhat to be desired by most but i wouldn't be without them, my house is bursting at the seams with laughter and tears its crazy but it keeps me young. My husband was killed in an RTA 4 years ago and that really hit us hard but we are getting there together. I am a very young nan, my granddaughter is just 3 weeks old! and a little beauty. My daughter is a young mum but is really doing a fantasic job. I am a Nurse and keep my registration going but haven't been able to practice for the last few years as caring for my son and other children has gotten increasingly demanding (isn't it supposed to be easier the older they get! lol )
I am widowed, and a mum of 4 children, 2 boys, 2 girls, my son christopher has duchenne muscular dystrophy. He is 19 years old and I am main carer. My brood are somewhat to be desired by most but i wouldn't be without them, my house is bursting at the seams with laughter and tears its crazy but it keeps me young. My husband was killed in an RTA 4 years ago and that really hit us hard but we are getting there together. I am a very young nan, my granddaughter is just 3 weeks old! and a little beauty.
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Interests
I love to read and like to keep fit, my eldest son is very athletic and keeps me on my toes when we go to the gym. I love to shop too when i get the chance and love my girly days with my daughters with a chick flick, some shopping and something sweet to snack on. I love to travel too any plan to speand my retirement somewhere hot with grat literature and good wine.
I love to read and like to keep fit, my eldest son is very athletic and keeps me on my toes when we go
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Journal
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Journal Entry for November 22, 2007
November 22, 2007 11:24am
Another day over and i thought i would update my journal as i have been absent for a while. Have spent most of the last fortnight in and out of …
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Journal Entry for November 7, 2007
November 7, 2007 3:52am
Here i am writing again, i will admit i had to stop myself from doing it too often, i feel this is a genuine therapy tool, just by writing down what …
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Hugbook
Hug
Just sending you a warm Aussie hug. hope you and your family are well. Take care and have a good week Hugs, Garry xxx
Hug
I hope this hug finds you and your kids all well and doing OK. Thinking of you all. Love and hugs, Kellie xxx
Hug
Just sending you a great big hug and hope you're doing ok.... Let me know if you ever want to chat... Allison turned 23 a couple of weeks ago... she has her own account here now... her screen name is Allisonj. Take care and prayers for your journey.. Donna
Prayer
God bless you and keep you in perfect peace. Here are some comforting bible verses to uplift you. Remember you are not alone in this battle, God is with you always. John 3:16 For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life. Psalms 55:22 Cast thy burden upon the LORD, and he shall sustain thee: he shall never suffer the righteous to be moved. 2 Corinthians 12:9-10 And he said unto me, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me. Therefore I take pleasure in infirmities, in reproaches, in necessities, in persecutions, in distresses for Christ's sake: for when I am weak, then am I strong. Psalms 31:24 Be of good courage, and he shall strengthen your heart, all ye that hope in the LORD. Matthew 11:28-30 Come unto me, all ye that labour and are heavy laden, and I will give you rest. Take my yoke upon you, and learn of me; for I am meek and lowly in heart: and ye shall find rest unto your souls. For my yoke is easy, and my burden is light. Psalms 34:18-19 The LORD is nigh unto them that are of a broken heart; and saveth such as be of a contrite spirit. Many are the afflictions of the righteous: but the LORD delivereth him out of them all. Psalms 9:9 The LORD also will be a refuge for the oppressed, a refuge in times of trouble. Psalms 34:18 The LORD is nigh unto them that are of a broken heart; and saveth such as be of a contrite spirit.
Hug
I hope this hug will cheer you a little..with love, Elli xx
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Support Groups
Close Caregivers
I am widowed, and a mum of 4 children 2 boys, 2 girls, my son christopher has duchenne muscular dystrophy. He is 19 years old and I am main carer.
Treatments
- Physical Therapy Somewhat Helpful
- I try to keeps things at home as normal as i can for the sake of all my children. I would love to meet people who understand the high and lows and joys and trials of being a carer, i get very little time to my self to go out and socialise ect so perhaps i will meet some friends here.
Close Bereavement
Type: Loss of a Partner/SpouseI am widowed, and a mum of 4 my son christopher has duchenne muscular dystrophy. My house is bursting at the seams with laughter and tears its crazy but keeps me young. My husband was killed in an RTA 4 years ago and that really hit us hard but we are getting there together.
Treatments
- Crying Not Working
- Getting Angry Not Working
- Grief Counseling Somewhat Helpful
- Keeping Busy Working / Worked
- Remembering Working / Worked
- Support from Friends & Family Working / Worked
Open Urinary Incontinence
My son has duchenne Muscular dystrophyand is also doubly inconinent, so i understand how hard it can be for those with it as i am his carer i thought this site could give me and my son some help and support.
Treatments
- Diapers Working / Worked
- Christopher does get pressure sore and rashes but his incontinence and loss of bladder control is quite severe so wearing pads are neccessary for him.
- Ditropan Not Working
- This did ease Christophers over active bladder but after only a short time began causing diarrhea and nausea.
Open Widows & Widowers
I am widowed, and a mum of 4 my son christopher has duchenne muscular dystrophy. My house is bursting at the seams with laughter and tears its crazy but keeps me young. My husband was killed in an RTA 4 years ago and that really hit us hard but we are getting there together.
Treatments
- Grief Counseling Somewhat Helpful
Open Muscular Dystrophies
Type: Duchenne MDMy son has duchenne muscular dystropy couled with behavioural problems, and bells palsy. He is 19 years old, you can find more info on my profile :)
