jdepplover65's Journal

It has been 2 years since the initial vertigo struck and my body 'crashed'.  I have been to sooo many specialists, hours and hours of exhaustive internet research to try and find some sort of clue (s) as to what is wrong with me. I have been told it's just anxiety....depression, or simply have been disregarded (actually had a neurologist roll his eyes at me).  I sent myself to the fatigue center and was told I have CFS and Fibro. I had to stop going however, as it was not covered by insurance and cannot afford to go. The fatique center found many clues however, and have helped me more than anything so far.  Just so flippin' expensive.  I knew I had to find a local doctor however, when my doctor at the fatigue center could not fill my thyroid meds or coritsol any more until I could come in for a follow-up.  Well, we don't have 200.00 ...so I frantically did some research and found a doctor that is an MD, but practices alternative medicine. I went a few days ago and so far I really liked her.  She actually listened to me, sat right there and went over the labs I brought wth me.  She asked me if I was being treated for addison's disease?  I said no.  She asked if anyone has ever told me I have addison's?  I said no.  She said that it looks like they are treating me as if I do have it.  I have low Cortisol, low aldosterone and many other homrones I am deficient as well.  She is sending me to an endocrinologist to evaluate me for it.  I went online to read about it and boy...it was scary and a little bit like an Ah Ha! moment.  Scary in that, I do think I had a couple Addisonian Crisis's that had me in the hospital. Doctors never caught it. Within 2 weeks of the first vertigo and metabolic 'crash' of which I was still trying to recover from, I developed a SEVERE lower back pain,vomiting,diarrhea,fever,low blood pressure,lethargy,vertigo/dizziness. JUST horribly ill.  Husband took me to the hospital ...they gave me 2 bags of saline to hydrate me. They were worried because I wasn't urinating.  I remember asking once the nausea was leaving (they gave me some sort of medicine for that) what they could do for my back pain?  I don't remember if they gave me anything for that?  BUt, when I was finally able to urinate...they sent me home. From what I read about addison crisis..this fits one like a glove!  These can be fatal if not treated correctly. I was very sick for months after. A couple of weeks after that episode I again had excruciating back pain and abdomen pain and found I had diverticulitis. A couple of weeks or maybe one week after this I again had HORRIBLE low back pain and abdomen pain and blood in my urine and through a urine test was told I had a terrible bladder infection. So strange!  Still test after test said I was fine. Still while barely able to get out of bed, vertigo,fatigue,muscle weakness,pain....ugh. I started taking supplements on my own, vitamins etc...B12 and many more.  I am not liking the thought of having anythng with the word 'disease' after it...but, am hoping we may be getting close to figuring out what has been going on with me. I have had some things found along my way....Hypoglycemia, thyroid resistance etc... (which by the way BOTH of those could be due to adrenal issues) .  I will let you know how it goes.  I am hoping that IF this is the case that soon I will get my meds adjusted and will be on the road to recovery soon. I need my life back, my kids and husband need their Mom and Wife back! While I am confused as to my the Fatique center never sent me to see an endocrinologist, I am thankful that I was put on cortisol,florinef and T3 thyroid meds.  Granted I think I am not taking nearly enought cortisol at the moment...but the little I am on could be what is keeping me from having a bad episode again.