Is the Storm Over Yet?
April 11, 2009 8:26pm
I've not been around so much because I've had one problem after another, it seems. The POTS got out of control again and I was passing …
LoisLynn 
8:50pm, October 31, 2009
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About Me
LoisLynn
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About Me
I am a disabled RN. I'm 39 yrs. old had to move home with my parents about 6 years ago because of my disabilities. I have multiple health issues including: Asthma, Sleep Apnea, Autonomic Neuropathy, Postural Orthostatic Tacchycardia Syndrome, Peripheral Neuropathy, Motor Neuropathy with Right Foot Drop, Fibromyalgia, Degenerative Disk Disease, Complicated Migraine Headaches I also struggle with depression and anxiety which is largely related to my many physical ailments. I use a cane to walk short distances, but for further distances I use either a manual wheelchair or an electric wheelchair. My Mother sturggles with FMS and DDD also and my Father has Alzheimers Disease. We are all cargivers of each other! I am a Christian (not affiliated with any denomination or orginazition) I have a brother who is married. I have a 24 year old nephew who is in the Army, stationed in Afghanistan and an 11 year old niece. They live about 30 min. away. I have 2 kitties; Patches, the female is 6 yrs old and very verbal and outgoing, Cupcake, the boy, is 7 years old and very quiet and mild natured. He has some health issues, so we understand each other in a special way. They love each other like brother and sister. Dad has 2 Dogs outside. Sisters..."Lovely" and "Teddi" Teddi was Teddy until we found out that he was a SHE! She looked like a bear when she was a puppy.
I am a disabled RN. I'm 39 yrs. old had to move home with my parents about 6 years ago because of my disabilities. I have multiple health issues including: Asthma, Sleep Apnea, Autonomic Neuropathy, Postural Orthostatic Tacchycardia Syndrome, Peripheral Neuropathy, Motor Neuropathy with Right Foot Drop, Fibromyalgia, Degenerative Disk Disease, Complicated Migraine Headaches I also struggle with depression and anxiety which is largely related to my many physical ailments. I use a cane to walk short
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Interests
Spending time with family and friends. Birdwatching, Hugs, Smiles, baby laughter, toddler's antics, children of all ages.Old people.People with special needs. Magazines, cutting out pictures, scrapbooking, making homemade cards, Mexican food. Rice Crispy Treats and home cookin'. A table filled with little (or big) people and some markers or crayons, a good book on a rainy day, Sunshine and flowers, afternoon naps, surfing the computer when I can't sleep, keeping in touch with old friends and finding new ones.
Spending time with family and friends. Birdwatching, Hugs, Smiles, baby laughter, toddler's antics, children
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Recent Activity
Recently:
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3 photo comments, 1 hug given
Tuesday
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LoisLynn gave Dezna a hug 4:11am
Sorry my card is not going to be done by the time you leave for Austrailia. I'll try to get it finished…
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LoisLynn commented on Dezna’s photo 4:04am
OOOPs, silly me, I forgot--You don't have Thanksgiving over there, so Christmas would be the next big…
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LoisLynn commented on Dezna’s photo 4:03am
Already decorating for Christmas and it's not Thanksgiving yet! I see a few homes lit us here already!…
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LoisLynn commented on Dezna’s photo 3:57am
Who is this little fellow? I didn't know you had a dog too! He (or she) is very cute! :)…
November 8
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Journal
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Feeling More like "Me"
December 6, 2008 9:13pm
Well, I lost the "Battle against Methadone", but I feel more like an actual human being. I don't feel as depressed as I did on my …
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Tried to get off Methadone, but failed :(
December 3, 2008 3:54pm
Well, the "virus" seems to be connected with the fact that I was tapering off of Methadone. I've been off for 4 weeks now and the …
This entry is private
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Flare Continues, The Jerks come and Go
October 24, 2008 11:11am
This was in August. Playing with the kitties with a bubble blower.
Well, This might be one of the longest flares that I have …
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Hugbook
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Hug
To my special friend on Ds, thanks for being there for me always. I am so glad to hear your eye is getting better. Sorry I have not being around, but I am back now. I hope you have had a nice day today. Hugs Dezna
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Hug
Hi LoisLynn, How are you today? I hope you having a painfree day today. Lots of hugs Dezna
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Hug
Hi LoisLynn, yes my brother does hold a responsible job, las year when I went to Australia he showed my mom and I were he works. What is great sometimes he shows me different things i can do on the computer. That would be nice for you if you could do something at home to earn some money. It is not always easy being disabled and finding something. I went back to look at your pictures of your mom and dad and your brother as well. What lovely they are. Sorry I must have not seen them the first time when I was looking at all your pictures. Today I spent the whole day tidying my cupboard trying to get everything in order before I leave for Australia. I am feeling quite tired now, I know I am going to sleep well tonight. When ever I doing something it really can make me tired. How are you feeling today, and how is your neuropathy? Speak to you soon Hugs Dezna
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Flower
Hi LoisLynn, yes my brother had a very bad accident last year when he broke 9 ribs. He was riding on the road with this bus hit him and he went flying. He got afterwards but then walk to the other side of the road and just fall down again. He had a puncture lung as well. It took him weeks to get better. His work was very understand which was so nice. But he then decided to work at home. He is a manager at this computer film that he works for. But what so nice is his big boss came him a very good bonus a day after the accident. Mycat, I not so sure if she has got asthma, but she told me she had a fall. Thanks for showing me all your pictures. I enjoyed looking at them all. The loved the picture of Patches and Cupcake in their shirts. Lots of hugs Dezna
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Hug
Hugs back to you LoisLynn's, mycat hurt her ribs, but I was telling her that my brother broke 9 ribs last year when he had his accident. It was very painful for him. I can't wait to see the picture of you dressed like a scarecrow. What fun Halloween at the adult day care centre. I can't wait to hear all about your day there. Also I can't wait to see he picture of your shoes. Hugs Dezna
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Photos
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Support Groups
Close Fibromyalgia
I'm not sure exactly what you want me to say, but I have many disabilities such as severe asthma, sleep apnea, peripheral neuropathy, motor neuropathy with right foot drop, autonomic neuropathy which causes me to pass out. I can walk, but for safety I use a wheelchair with a seatbelt when we go somewhere. Even though I have all those issues, Fibromyalgia is the most limiting problem I have. No one can understand the pain and limitations unless they themselves have the disorder.
Treatments
- Lyrica Working / Worked
- I think it helps some.
- Neurontin Working / Worked
- Worked, but my doctor thought Lyrica would be more effective. Initial SE's were drowsiness, but after a while I got used to it.
- TENS Working / Worked
- workes for neck and back pain unreleived by pain medications as long as I keep it on.
- Skelaxin Working / Worked
- It helps a little. I haven't noticed any side effects.
- Methadone Working / Worked
- I take 5mg's 4 times a day. Yes it helps, but I still have constant pain.
- Aqua Therapy Working / Worked
- very helpful, but I can no longer do it because of my passing out episodes from autonomic neuropathy
Close Degenerative Disc Disease
My name is Lois Lynn. I am 38 years old. I usually follow the stories on Fibromyalgia and post on the Journal occasionally, but I do have Degenerative Disc Disease also. My mom has it too. The topic of "Drop Foot" caught my eye and that's how I found myself "over here", as I have motor neuropathy with right drop foot. Have had it for several years.
Open Chronic Pain
Treatments
- Chiropractic Adjustment Working / Worked
- Yes, It helped, but now I'm too sick to make it regularly. I had no side effects. My PCP is not in favor since I have had neck surgery in the past.
- Hydrocodone Working / Worked
- Currently taking for breakthrough pain. Didn't work to replace methadone.
- Lyrica Somewhat Helpful
- Meditation Somewhat Helpful
- Methadone Working / Worked
- tried to get off, was off 4 weeks, couldn't stand the w/d symptoms, started taking again last night. Take 5mg 4x' Day. Constipation is only SE I know of
- Oxycodone Working / Worked
- Got addicted. Took a long time to wean off. Prescription plan changed and Doctor had to change med to Methadone which I now am on.
- TENS Working / Worked
- Helps neck pain, and other specific pain, but not ALL-OVER pain...only has 4 leads.
- Skelaxin Working / Worked
- Helps a bit.
Open Migraine Headaches
I have multiple chronic illnesses such as POTS, autonomic neuropathy, fibromyalgia, diabetes, asthma, sleep apnea, and of course MIGRAINES
Treatments
- Avoid Certain Foods / Chemicals Considering
- Haven't tried this, but I would like more information.
- Caffeine Working / Worked
- Helps a bit when nothing else available.
- Imitrex Working / Worked
- Imitrex Stat Dose is the best thing I have found yet. The side effects are increased sensitivity to pain in other areas, welt at injection site.
- Relpax Working / Worked
- Helped, but Imitrex is better for me.
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Groups
