Journal

I have been quiet.  Not sure why. Trying to get to know all our new friends on the site. Working 10-14 hours days.. insane… still behind… oh mind you I have been playing!!!! feb was TX for a conference, March was san Fran with a friend and mom and april was Cozumel… May is going to be home sweet home…yard work….house work….catch up work…This weekend was beautiful, sunny, slighty breeze ... I went up to our land…words do not come to me.. so I will try to post… a picture…

Health has been ok…. Actually by comparison it’s been great…. I know this and I am grateful but in the interest of helping others either by giving them hope or keeping it real... I am going to describe what is happening at the moment….since I think my endo is feeling confident…that all is well…although she does not say cured…so here is my update…

my body aches… on a scale of 1-10, 10 being the worst I recall ever feeling prior to surgery and 1 being how I felt on my wedding day!!! ( I also felt great after taking octeotride the 3 weeks before my surgery I probably felt like a 3 then) Now I would say I am about a 7… I have gained 40 pounds this year…. this makes me so sad…but I seem to have no… none …..nada …. self discipline… I know what I need to do and I don’t do it.. I crave carbs and sweets in massive quantities.. I do ok for 3 days and then off the wagon… I had an MRI done on a tumor in my arm.. but they say it is nothing.. (most likely fat) ..I had a pelvic and ab scan because I just feel like my entire middle is growing exponentially… that turned out ok... I had a brain  MRi in January.. I heard from no one!!! good news right…. not really!!!!  The last thing my endo said before I left her office 3 weeks ago was..so you got your MRi report back and your not to worried about that suspicious area ( I said no…since I did not know anything about it..!!! ) she said since my IGF1 is within the normal range.. I need not worry… apparently my acro is napping..

so symptoms I still have.. headaches, joint aches, heartburn, fatigue, shortness of breath, mental confusion,  memory issues…. The endo said it could be menopause or permanent damage from acro…so I guess that’s it.. I need to follow up on the Brain MRi stuff.. the endo said blood work in six months… I need to really try to slow my food intake .... since I know my weight is making the aches worse… another good thing  is I am only taking nexium… (although my doc friends says I may need some type of meds…. That in many places they treat people when they are on the high end or low end of  the range…) we will see… I take vitamins, calcium, iron, and vitamin D.. oh and the daily dose of one of the big 3..(Tylenol, advil or aleve) well I don’t take a daily dose..  I could !!!! but I resist… so I  all in all I am doing good…great actually… grateful is what I am…!!

Signs of spring

grey black snow

jeweled trickles of roof snow

gravel, sand, bottle tops and cig butts

chest bursting worm wrangling feathered friends

tree buds singing

green whiskers…poking through the bark skin

soon the dancing joy of flowers….

  spring signs

Ok here is the big update…I don’t see my endo for another 2 weeks but I have my lab results back because I request them….My blood work came back..it all looks good to me… my igf-1 is within the normal range. First time since my surgery (10/2007) The only thing that was a little low was my calcium..it was low by .2 not a big deal.

I had my MRI. I got a copy of the disk but I have not looked at it… .the doctors have not called me so I am guessing that means its no big deal because bad news travels fast…also since my IGF-1 dipped into the normal range I’m guessing that means that there is no residual tumor!!! 

I am exhausted it is hard to get going in the morning. once I do.

Despite my headaches and other body aches I feel as if I am functional.

But by about 3ish I hit that wall and really don’t have much energy left

Today I went to see my gyno… I really like her (I am lucky, I think, cause I have 3 docs that really listen to me) anyway she listened to all my symptoms and order a C4125 blood test (ovarian cancer) and she order a pelvic and abdominal CT with and with out contrast… she wants to check out my gall bladder as well. (Mind you I only took about 3 weeks worth of Octreotide and have not been on any others meds for Acro yet) She also wants me to ask my endo about Thyroid antibodies.

We found a weird lump on my arm although it could be fat…anyway I have a family history of breast/cervical and ovarian cancer (Aunts & Grand ma’s) so I think she is being careful..she also was very supportive and gave me some tips mostly encouragement to count calories again..I know that works so here I go…as I suspected last year I gained 20 pounds…this is truly my biggest concern…I am exercising so she was happy about that…I need to write down everything I eat that is the only way to do it…so here I go…