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Give mish7 a Hug

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  Ray of Sunshine
  

  kittiefoster (04/25/09)

  Hi, Mish, I just wanted to thank you for your support and response to my post. Wasnt quite sure I should post or join if I'm not diagnosed, and since this is so rare, still likely may not have this. I think it's amazing that some have diagnosed themselves here. I really think it's a miracle ANYBODY gets diagnosed with it being so rare. Hope you are feeling well today...I'm sorry for what you have gone through. Thanks again, Annie
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  Flowers
  

  PapillonRoseBleue (04/12/09)

  Happy Easter, Happy Spring!
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  JonEddington (03/23/09)

  Hi, Mish, I have been Dr. Ezzat's patient since 2003. My surgery by Dr. Schwartz was only 75% successful. Dr. Gentili tried a second surgery a year after the first, but it wasn't successful and I still have 25% or the original tumor remaining. I have been on Sandostatin LAR 30 ever since, which keeps my Growth Hormone and IGF-1 at normal levels. I go to Mt. Sinai Hospital every four weeks to see Dr. Ezzat's nurse, Lori Kingdon, and she gives me the injection. I often have mild flu symptoms (i.e. a bit of a headache, some tiredness) but nothing that stops me from doing my daily routine. How do you like pegvisomant? Do you think it is better than Sandostatin? - Jon Eddington
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  Thumbs Up
  

  JonEddington (03/17/09)

  Hi, Mish7, PapillonRoseBleue mentioned that you are a patient of Dr. Ezzat and I see that you also live in Toronto. I was diagnosed in 2003, but have had no contact with other Acromegaly patients until contacted by Jon Danzig several weeks ago. Jon told me about this website, which I think is very beneficial. There are so few of us, a support group like this is a unique opportunity to share information and encourage others. Cheers, Jon Eddington
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  Little Love
  

  PapillonRoseBleue (03/15/09)

  Hi Mish, Thank you for the pointers about the sinus surgery. They make a great deal of sense to me. I wonder how a person finds someone to do accupuncture. How often do you get the treatments ? Should I think about coming to Toronto to get them if they're not available here? Do you also see Dr. Ezzat? Someone made a post and recommended him to me. My insurance would not pay for him but would reimburse me all but $5 for his office calls..... I think I might do what Jokey does and put some Calla Lilies in and have them be in your honor, but if they need a lot of sun, I might have problems but there isn't a lot of sun where I live.... I'll look that up later. I like the idea of the purity in the white ones and the peach sounds pretty, too. We had some springlike weather this w.e. I even went to Traverse City where there was still quite a bit of snow on the ground but it was warm enough to walk around outdoors with no jacket and that felt so freeing and so promising. Next week is supposed to be the beginning of spring. I am soooo ready for it. Then in a few more weeks I'll go to LousyAnna and see my daugher there & her 4 children, with the new baby who's a year and a half already. Let me know what you think about the accupuncture. They recommend it at Mayo & I have shoulder & hip & ankle issues & MAJOR TMJD issues, too & the migraines that are barely controlled by the topamax. They've been suggesting qikong & reiki and accupuncture and whatever alternative medecine I'll try. Tomorrow my massage therapist is supposed to tell me about someone to teach me reiki. I know she uses reiki on me, but she's not comfortable teaching it. Now that I've filled half your page, I'll stop & wish you a great week lots of sunshine. Hugs, Rose
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  I'm With You
  

  PapillonRoseBleue (03/13/09)

  Hi Mish, I guess just having children, & then having them the ages of yours, will invite a certain amount of problems- not to say that they are the family with whom the issues are occurring, but I saw a hug from Fay where she was trying to give away one of her sons LOL. I have a SIL who is making my daughter want us to find a hotel to stay at when we go to LousyAnna & that would mean having to rent 2 rooms because we'll have her 4 children and there aren't any hotels there that will allow us all to stay in one room. It's only for 4 days and we can make lots of excursions to avoid the SIL/BIL as much as possible. Are your calla lilies in different colors? I have a few day lilies, but don't have any calla lilies yet. Little by littlle, I'll add some more flowers, especially perennials. Last year I put in some pink seven sisters roses. I wish I had planted the white miniature rose that is not doing so well indoors. If it survives until I can plant it outdoors, I will definitely plant it this season as its' canes have been naked more often than not. If time allows this w.e. I'll journal about docs & health & work & so on - but I'm still struggling. Thank you for asking, though. Spring will officially be here in a week. I'm ready. Take care. Hugs, Rose
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  Ray of Sunshine
  

  PapillonRoseBleue (03/08/09)

  How are you? What are you doing lately to keep busy? The sun is coming out a little more in my neck of the woods & I really believe spring will find its' way here in a few weeks. I'm anxious to see if the (outrageously expensive) pink lily of the valley will have survived or not. I somehow suspect the worst, but will be pleasantly surprised if they do make it. Maybe next year I'll manage to get tulips planted so I'll have them in spring - I like on Tulip Drive and don't have tulips..... Hugs, Rose
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  J0KEYJ (03/03/09)

  Hi Mish7 big hug for my chewing Gum buddy do you remember that lol.The picture my friend sent that time of the woman pulling her hair out with a picture of my village so funny.The person I am referring to this was someone else to the imposter we had.Its not nice what this person does they are not in this community but what they did to me hidden agendas not nice and through them many times I nearly left this site but its the ones the true kind hearted caring people who really do care about people feelings and when our paths cross with them the imposters the hidden agenda people seem somehow insignificant.Big word for me there oh lol Heres a big big hug for you take care all my love Jokeyx
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  Nickmarshall (02/28/09)

  wish you could come to spain with me and enjoy my house and good wine and swimming and reading and generally chilling out doing whatever you wanted to. The tiredness really gets me too although I think I have become spanish asnd have a siesta around four in the afternoon for a few hours. Keep in touch and take care of you lovely lady nick xx
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  Hug
  

  swampy (02/23/09)

  hello acro family member its been sometime since we last spoke hope all is well in your neck of the woods

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