galed7956's Journal

Today I had an appointment at  Career Link with my OVR rep.  I saw the handicapped man that works there and got a new electric wheelchair.  His old one was so worn when I talked to hm the last time and he told me that he was getting another one.  He had to get a Jazzy because if he would have gotten the other choice that he had he would have had to pay 30% of the cost which would have been very expensive.  He wasn't happy when I saw him because he hates the Jazzy and I think he was mad because he only had 2 choices and the one that he had to take was a Jazzy.  I had a Jazzy when it first came out and it was a piece of junk.  I used it as long as I had to then sold it to my next door neighbor.  I  had it for over 5 years and my friend got a new one even after I told him not to because they were junk.  My next door neighbor was telling me that he had to replace the tires every year!!!  He only runs around our nieghborhood and goes to his sisters who is a couple of blocks away.  Also he only uses it in the Summer.  But I got he premobil because of the Addison's and my lungs gettng worse.  My rep at OVR which is Occupational  Vocational Rehab and I were talking about my plans and how we had to change them because of my voice.  I told her that my voice gets gravely or rough sounding and the more I talk the worse I get.  I have already lost it for several days when I was in the hospital.  When I woke in the morning and tried to say anything it was like I had layrengitis.  If I tried to talk to a nurse or answer a nurses questions I would try and they would say "what?".  So we changed my job goal from telecommuting to  Medical Transcriptionist.  We were also talking about what had changed body wise because of the Herpes and now the Addison's.  The only thing that changed was my legs - they have gotten worse and my shoulders hurt sometimes now.  I can hardly make the stairs - I almost didn't the other night my Mom had to help me.  She and I also talked about the vehicle and the fact that I had to work outside to get it modified.  I told her it would be a great change for me to work outside of the house. She agreed.  Now the plans are this - vehicle modification and then training to be a medical transcriptionist.  I always loved just typing anyway and have always wanted to somehow give back to the medical community instead of using it.  She asked me about my typing and I said it's about the same and I recheck my typing.  I was even taught how to listen to a recording and type what I was hearing so it's pretty much the same thing.  I told her that it had to be part time because I would be nuts to lose my social security/medicare.  Since they passed the bill to protect the disabled from losing their jobs because of illness and also the place has to be fixed so people have easy access,  etc.  I said to Jackie that when I got on Disability with the Goverment it was 1990 and those laws hadn't been passed yet.  So it was easier to get Social Security/Medicare because an employer could legally lay off a worker and use any kind of excuse even the fact that their losing too much work.  It took me 3 months (record breaking because it was supposed to take around 6 months) because I described every symptom I was having and also my doc pushed it through.  My doc knows so many other docs.  He know my husbands neurologist in Hazleton and he also know's the Endro I saw yesterday.  Tell doctor Gupta I said hi.  I always tell him that this doc said hi when I go to see him.  But she gave me the modificaton book for the vehicle.  She also told me that the Honda Element that didn't work was owned by the head of OVR.  I asked her if he was a big man.  I said that was the reason why he couldn't get into it.  She came back with he should be able to get into anything that can be modified.  The guy that works at the place that modifies them said that only if he was big would he have a problem.  So they first have to see if the Permobil can fit in and if it works then they will write it up as the vehicle of cholce.  Then they will proceed with getting bids and then the lowest bid gets the job.  The only problem is that only one place modifies them and it's FMI.  After they start modifying it I have to go to where they are doing the work (it would be MI if FMI get's it because their based around Detroit - would be a nice trip) to make sure that everything is as it should be for what I use and such.  Then they  would continue to finish the work on it  and then I would have to go there with the OVR rep and check everything out then decide if their were any problems or not.  If there were any problems found then they have to be fixed.  It's going to take a long time and lots of money which is getting less and less like every program for the handicapped.  So after the meeting I went to a fun place and it was a jewelry shop.  The man that owns it I have known for over 10 years and he had some of my rings to resize but forgot to do them.  So he said that maybe I had better check the sizing again to make sure and sure enough because of the OA my knuckles and lower fingers have gotten bigger.  So the siziing had to be changed.  He had my ankle bracelet done and my Miracle Mary fixed.  I went into the shop to look around and sure enough found some things that I want.  I brought home a beautiful sterling puffed filligree heart with little diamonds in it.  Even the bale is in a shape of a heart and has diamonds in it.  On the back is a different design without diamonds so you can turn it around.  In the center of the heart on both sides is a smiley face.  I don't know if the person that made it did that for a joke or what but it's there  the eyes the nose and smile.  Then I  picked out a natural huge Ruby necklace that has occlusions like my ring and it's set in sterling with a necklace of little cut Rubbies.  I also got the earrings to match.  I put that on layaway.  I also saw a Amber Bracelet with bubbles in the huge oval pieces that were bezel set in silver.  It was beautiful and so unusual I had to have it.  At first I thought it might have been citrine.  But then I was thinking it looked darker and like caramel so it must be ambet.  The pieces are huge and shaped in a marquise shape.  Everything came to 300.00 and he took off 35.00.  A lot of huge stones and metal for that much.  So I put the Ruby stuff on lay away and paid for the other things plus the repair charges.  Then I started to drive around to check out the other things and saw a beautiful snowflake,  candy cane and I also want to get a long snake chain.  I am going to call him and ask if the snowflake and candy cane can be saved also.  He probably will.  I have other christmas charms  - I have an enameled christmas tree that is finished on both sides,  a snowman snowflake.  But the snowflake pendant that I have is so little his is more spread out with the diamonds on the ends of each part of the snowflake and it's more noticeable. It doesn't hurt me to have another one because I love snow.  I want a Russian Orthodox cross and they usually have them but it was sold so they are getting another one.  I have to take my bracelet back to Penneys because some of the links broke and I will probably get my money back because I bought a warranty for it.  Then I am going to where I  was today and getting a wider bracelet from him.  He had one there that was beautiful and much more sturdy than the one I have.  It also has the big C ring clasp that I like because you can hang pendants on it.  I sold all my jewelry when Nick lost his job and was out of work for about 12 months and vowed to him that I would get everything back.  Definately not the same thiings but something I liked and probably less expensive.  So far that's what is happening.  I  saw a Graduated Byzatine on Jewelry TV's site and it's only over 200.00.  I have seen them for 700.00 already.  I had one and sold it so replace it I am.  I had an almost tragic accident in his store.  I was trying to get close to a huge jewelry case and the Permobil went beserk and kept pushing into the case. I realized what was going on and started to say loudly hey stop this.  I was pulling backwards on the toggle and it kept going.  I pretty much was holdiing the case on my lap.  It kept tipping and I didn't care about he damn Permobil because I didn't want to ruin his case or any jewelry that was in it to finally instead of trying to back up I let go of the toggle. Then I got help.  I sat for a minute and then they all grabbed the case then told me to back up.  I finally backed out of the thing and it fell into the markings that were in the carpet.  Everyone asked me what happened and I sad I don't know all of a sudden it kept going forward and I couldn't back it up even though I was pulling the toggle back all the way.  Mom was carrying a thermos that I need because I have to comsume lots of water and she gave it to me.  I had it hanging around my neck and I'm thinking that the thermous was pushing on something that was overriding the toggle.  That wasn't the first time that happened.  I don't like to carry anything in front of me because sometimes whatever you have there will start pushing on the toggle and you start going somewhere you don't plan to.  A lady was there and commended me on how calm and cool headed  I was while that was happening.  She said that instead of freaking out I was calmly trying to fix what was happening.  I said thanks for saying that  but the scooter and now the wheelchair can push very heavy clothing racks,  jewelry cases,  and people that are threatening you very easily.  Well I had better go because I want to play solitare for awhile and then off to sleep I hope.  God bless you all and have a very restfull night.  Until later my friends    galed