Last day of the year
I decided maybe I need to (finally after all these years) keep a journal of how my pain is most days. That is if …
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galed7956 
6:11pm, August 28, 2009
Well I have a new disease to get used to. I went out for two days (how exhausting can it be to push on a toggle to run an electric wheelchair?) and then slept for two days. Between the MS, the Fybro, and now the Addison's all are supposed to cause fatigue and that's what happened. I am worried about getting the tooth pulled because that is surgery in a way and could cause an Addisonian Crisis. I have to see the doc's before I get the tooth pulled. I have an appointment with my Neurologist next week and changed the appointment for the mammo/ultrasound to the same day. My Neurologist will tell me what to do about the tooth pulling and also I have papers to fill out from the National Addison's Disease place that were sent to me in the mail. I also have to get ahold of Medic Alert because I have to have that added to my tag on my necklace. I feel horrid today from my tummy down. I still have a little of the lung stuff going on but most of it's gone. Now I have to take Tangie off food for 24 hours and then feed her boiled chicken and rice. She has had the runs since I got home and she is having accidents and such - she's just not Tangie. The other morning my Mother was doing the wash and left the cellar door open and I was sleeping when I heard Tangie yeowling. She kept it up and I jumped up and was wondering what kind of trouble she was in. So I looked around and couldn't find her in the room then I got up and followed the sound and found her on the first cellar step going down in the cellar. She went down one step and then probably couldn't find the next one and just sat there and yeowlled. I am so thankful she didn't go further than that because I would never have found her in that cellar down there. I was totally surprised that she even went as far as she did because she is blind and cats that are blind tend not to bother with the steps. She is cool but when she could see I would have had trouble because she would have gone completely down and then I would have probably found her in over a week. Well so far today I rested and stayed awake!! After playing sleeping beauty for 2 days I couldn't believe I could actually stay awake. I am not liking what I am finding out about Addison's disease. All the other things that could happen haven't happened yet thank God. I don't think I want to be bald. My hair is really short (looks like a GI cut) but I really would miss my hair. I have a wig but I would have to get it cut down. It's blonde and I really don't want to go back in time because that's the color that I used in my hair a long time ago. When I stopped getting it colored then I found out that I was gray but my father was gray early in life. I am sure the color helped that along anyway. Everone says the GI cut looks great on me so I can carry it off. I love it because all I have to do when I wash it is to run my fingers through it and it feels great then I can do what I want without fixing it this way and that along with blow drying and such. That's for young people that have a lot to do and are looking for a guy. My husband told me he liked my hair long but I asked him if he was going to take care of it. He said no so then I told him that he'd have to get used to what I wanted to take care of. Ultra short for me!!! Well I am missing another movie so I had better go. Lots of love to you all. galed
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Sorry you don't feel well. Hugssssssssssssssssssto you anyway. I wrote a new journal today.
CodeBlueICU
Sorry you are still feeling bad am gonna have to check out about what addisons is I dont have a clue but sounds like your not to crazy about it hope you start to feel better soon!
Raggy1
I'm so sorry you are feeling so bad, another disease is something either one of us needs!!
I hope all your appointments go well.
Take care,
hugs Cathy
ragingfog
My arms hurt besides my shoulders again. The more I type the more my arms hurt. I suppose if I were sitting up it would be easier but I have the laptop on top of my right leg and I am laying down. My tummy down hurts too. The Addison's is a terrible disease and causes everything I have been having. Thanks for your prayers and hugsss but this is going to be a continuing thing and I really didn't need this disease (another autoimmune disease) to add to the other crap. Well gotta go because I want to read someones journal entry. I will probably write another one. And Raggy1 if you are going to check on the Addison's check on how to live with Addison's - I found out a lot more that way. Love to you all and take care - I'm praying for you too!! Gale
galed7956
Hi Gale - I'm very late going online tonight, and gotta get off here quickly and get to bed. It's 11 p.m. on the West Coast where I live, and I ran out of energy today at about 5:00. I have not taken any additional Addison's meds because I'm trying to get this weight off and lose the Dowager's hump that has formed. It truly does feel like I'm aging and getting restriction of movement in my neck. Did you say something about going bald associated with Addison's disease? I've only been diagnosed since about April of this year, but haven't lost any hair yet...energy yes, but no loss of hair. My Mom and I have reconciled our differences and going to jump over them and move on, and not speak of anything in the past when we were fighting. She's 84 and I'm getting older by the second, and told her I was sorry for yelling at her the other day. She very quickly forgave me and we hugged and hugged, and it was just great. I'm going back in a few days to cut/style her hair. I used to do that every couple of months or so, but we've been on the "outs" for quite some time. I'm SOOOOO glad that's over with. You know, I don't have any hair loss or darkened skin, but my abdominal surgery scars have indeed turned red. Plus, with the steroids, I'm moon faced and chubby now, which I have always been able to lose the pounds when I set my mind to it....but it's just not happening now, even with dieting. Of course, eating tootsie rolls doesn't help. (tee hee) I LLLLLLOOOOOVVVVEE milk chocolate! But I've GOT to leave it alone or I'm going to end up this enormous balloon. I already weigh more than my Stephen. I admire your courage and attitude, Gale. When you have more than one thing to deal with physically, it sure compounds the frustration. It's all inter-twined and complex, and so hard to manage, but I am determined. From your GREAT attitude and obvious heart of a champion, I am sure you will get the Addison's under control to the max and still be able to lead a relatively normal life. I TRULY admire your spunk! It is absolutely inspiring. I am blessed to have you as my friend.
Well, Gale, I gotta go. Gotta get to bed. I am sinking in my chair and gotta get back to bed. Don't want my legs to give out on me on my way back in there. Steve's here though. He will help me if I get in a "pickle" situation.
Sending continued prayers and more hugs. Will talk with you again soon.
:) meadowinthewoods.
meadowinthewoods
Thank you so much for saying that about me - I am a fighter like my Dad. When I got the MS he told me to fight and I have been ever since. I am still sleeping so much that I am waiting for the frog to give me and kiss and wake me up!!! I am no "beauty" but the sleeping part is happening. My shoulders and upper arms are hurting me so much but I guess that's because I have this upper respiratory problem yet. I thought it was gone the other day but in the morning when I wake up I am coughing yet. I have to use the nebulizer which I hate doing. Oh well can't use steroids anymore to treat the MS relapses or the lung problems (that's what I'm really scared about) but so far so good. I don't think about what I have every day of the week only if it's affecting me. I was talking to someone else here and telling her that I don't have the emergency syringe. They told me I have a slight case of Addison's but for a slight case it's really giving me the stuff that shows up with it. The excessive fatigue (which comes with the MS, Fybro, and now this so I'm getting a triple whammy). I went into the internet and entered "living with Addison's" and I got all these symptoms. Your scar would be red. There is another lady on here whose 2 year old son had a tan and he was blond so he should have been fair skinned. He always had this tan since birth and she was running from doc to doc to find out what was wrong. She finally had an appointment with the Endo when he died. She found out what he died from - Addison's. I don't know if you read that post or not. We all told her to take the pictures to the Endo because he made the appointment for 3 weeks and he died while they were waiting to see him. It's so sad. As far as gaining weight steroids if it's a large dose will make your face swell up - always did mine when I got the Solumedrol or even the oral steroids when I had a MS relapse. I am on Florinef 0.1 mg and that is once a day. It's working fine. But I'm sure that will be increased since everyone I have seen in here is either frustrated because they don't have their dosages right yet or they have to have them changed. The only thing my other friend and I am concerned about is the "crisis needle" which everyone with Addison's is supposed to have with them. When I went in to the internet and put living with Addison's I found a lot of info like I said. I also immediately called the National Adreanel Diesases Foundation and they sent me papers for the Doc to fill out besides a card to carry with you, suggested you get a Medic Alert necklace or bracelet (I have one already but will have to add another one because of the info about the Addison's) and also a pamflet explaining everything about the symptoms of it and living with it. Also mentioned the emergency syringe to use in a "crisis". Their number is (516)487-4992. I don't know if you have been in contact with them but it's worth it. It might take a little while to get the info but I got mine. They have a news magazine in the package along with all the info that you need. I have the cortison deficiency which causes fatigue, weakness, weight loss(which I am having), hypergpigmentation, nausea (sick this morning have Zofran), loss of appetite (I have that). They give symptoms also for excess cortisol, fludrocortisone acetate deficency or excess also. They have emergency room instructions. They have a page from and Endo who tells you how much to increase in case of a fever, mild cold, or a crisis. It also tells the symptoms with Adreanel insufficency and also they have a paper about Medic Alert and what to have engraved on the bracelet or necklace. I have an insufficency so what the docs are giving me is right except for the crisis needle and I have to give this paperwork to my doc since we don't have an endo in my area - nearest one is 15 miles away and I have to get the phone numbers for them. The pain is also associated with it. So I guess I jabbered enough but I'm going to fight this like everything else I have and hopefully with the help of the Lord I will manage to do what I have hoped to do as far as accomplishing my goals. I do hope that you feel better yourself and I pray for everyone on DS that eventually they can come here and all send messages to their friends that they feel great and are getting along well. I have to have a tooth pulled so I have to probably have an increase in my medicine before that's done. So much for daily living and what comes with it. But you take care and thanks for the info - I need all I can get along with personal experiences with this disease. Love you and take care Gale
galed7956
Oh sweetie I wish I could take it all away for you. I am here for you if you ever wanna chat
flchristi