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Calamitybb 
3:45pm, April 13, 2009
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About Me
Calamitybb
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About Me
I love my cats and my man. I've had MS for 20 years now. I have a B.S. in Film and Television, minors in both History and Art, followed years later by an A.S. in Network Administration because I love computers that much. I'll stand by my friends and I'm not afraid to speak my mind, what little there is of it.
I love my cats and my man. I've had MS for 20 years now. I have a B.S. in Film and Television, minors in both History and Art, followed years later by an A.S. in Network Administration because I love computers that much. I'll stand by my friends and I'm not afraid to speak my mind, what little there is of it.
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Interests
Film without a doubt, Books when I can get my mind to follow the plot, and all manner of strange tv shows keep me enteretained. I enjoy working my on art which isn't for the public. The computer is attatched permanently, yikes!
Film without a doubt, Books when I can get my mind to follow the plot, and all manner of strange tv shows
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Recent Activity
November 14
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Calamitybb commented on pntdazzle’s journal entry Of good health and high unemployment... 8:27pm
Hey...the Wii fit works. I have been using it and it's improved my balance, which was way off. There's…
October 4
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Calamitybb turned 49 12:00am
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Journal
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Hugbook
Hug
Thinking of you and hope you are doing well and the Tysabri is still working out for you! You take care!
Chocolate
HUGs to you & yours & wishes for a fabulous week ((((((((((((^.^))))))))))))))))))
Miss You
HAVEN'T SEEN U ON FB OR HERE MUCH. WHAT'S GOIN' ON WITH U, ROBIN? R U OK?
Chocolate
thinking of you
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Chocolate
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Photos
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Support Groups
Close Multiple Sclerosis (MS)
Type: Relapsing-remitting MSI was diagnosed in '88 with MS. At first they thought I had a form of brain cancer, I had a lesion the size of a triple A egg in my motor area for my right foot and ankle. It took three months for me to recover from the surgery and to get the final diagnosis, which was MS. I have been living with it for 20 years. Sometimes it gets to me other times I'm fine. But it has taking my ability to work away and that hurts. I always research every new treatment and ask my Drs about it.
Treatments
- Antivert Working / Worked
- Who knew this was meclizine? It does wonders for the vertigo and nausea.
- Avonex Not Working
- I've been taking it since 2000, I still get achy every once in a while. I haven't had any new lesions since I started treatment with Avonex And while I haven't had any new lesions, my symptoms now get worse for about 2 to 3 days after my injection. I have had at least two flair-ups since starting it.
- Baclofen Working / Worked
- I've been using baclofen for almost 12 years. I take 9 a day now, but if I didn't I would be in pain and spasm out all over the place
- Marijuana Working / Worked
- This helps my nausea and also allows me to get some sleep when my body will only let me sleep for 2 to 3 hours at a time. It helps spasms and pain.
- Massage Working / Worked
- Great when my spasms have been at one spot too long. Also works out all the knots I get from cramping.
- Neurontin Working / Worked
- If not for Gabapentin, I would be locked up in home somewhere for the insane. One of the best meds I've been prescribed since being diagnosed. Works great for the pain
- Physical Therapy Working / Worked
- Helps me a lot, especially water pt.
- Swimming Working / Worked
- I love swimming. Just wish I had some time to go.
- Tysabri Too Soon to Tell
- I will be starting this soon. This was what was decided on since the Avonex is not helping.
- Writing Working / Worked
- I've been journal ling pretty much my whole life. But really started at it again this past year, because it was my only outlet with my symptoms. Sorry about spelling not my strong point. Now I'm just looking for support groups.
- Zanaflex Working / Worked
- I take this at night to deal with spasms the Baclofin doesn't help. I don't have the sever cramps at night like I used to because of Zanaflex
Close Alzheimer's Disease
Stage: Early OnsetMy Mom is in the begining stages of this disease. I have no idea how to handle this.
Treatments
