Journal Entry for January 13, 2008
January 13, 2008 7:21pm
Last week was my first week of work, well actually training. It wasn't hard but by the end of the day I was exausted. I'm slowly getting back …
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Journal Entry for December 12, 2007
December 12, 2007 5:02pm
One of hobbies is to make pretty graphics for web design. Today I decided to share one of my recent designs with all of you. I know this picture …
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Journal Entry for December 8, 2007
December 8, 2007 7:58pm
Today I feel GREAT!!! Woke up early, played with my girls, cleaned up the whole house. My boyfriend and I decorated the outside of the house for …
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Journal Entry for December 7, 2007
December 7, 2007 2:53pm
Yesterday as I was waiting for my daughter's school bus I gotta phone call from her school telling me that she didn't get on the bus. I got …
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Would love for you to join our new group at: http://dailystrength.org/groups/a-...
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They put lizzy on a trial drug, called imatinib or Glivec, which was suppose to switch of the phillidephia chromosone she had developed, which was mimiking the leukemia cells, at that point, we were lost and said yes, please try anything. sorry about my spelling by the way!! Even if they are out to make money, who cares, as long as it might do your daughter good at the end of the day. I know thats what i thought at the time. ok, it didnt work, but i know i had her inside my soul, at every point of chemo, lumber puncters, infections, etc.... i send you and your daughter all of my love, support and healing, hang in there xxxxxxxxx
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hi, sending hugs and a prayer
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I'm glad you liked it when you read it. You never can tell when someone might get offended by an offhand (or off color:) comment. I hope you are well and happy new year!
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Support Groups
Close Acute Lymphocytic Leukemia (ALL)
My five year old daughter has been diagnosed with ALL preB last January. For the most part her treatment was going great up until the last chemo before she was to be on maintenance. That was when she received 8 shots of cytarabine. After that everything went down the hill. She spent 32 days at two different hospitals and almost lost her life. Now shes home on maintenance and doing great but I still dont know why she got so sick.
Treatments
- Chemotherapy Working / Worked
- Cytarabine Considering
- Terrible. Did it worked?? Considering that it almost killed my daughter.. no, I dont think it worked. Side effects: all of the ones doctors tell you about plus way more.
- Methotrexate Working / Worked
- Purinethol Working / Worked
Close Parenting Big Kids (5-8)
I have two girls 5 and 8. My five year old has leukemia and is currently in her second month of maintenance. This September she started Kindergarden and so far she is doing really good although her teacher thinks she should know more. My 8 year old is in her 3rd grade and she is really struggling to keep up with the rest of her classmates. At first I thought it might have been do to our recent move from NY but its been a year now and she still has trouble learning.
Treatments
- Education (School) Somewhat Helpful
- Listening Working / Worked
- Patience Somewhat Helpful
Open Single Parenting
Im a single or so called single mother of two girls. I moved to VA from NY and was gonna get my own place but one thing led to another and I ended up living with my boyfriend of 3 years. We got beautiful 3 bedroom townhouse and a driveway YAY!! I never had driveway in NY. Me and my boyfriend disagree a lot on raising kids (he doesn't have any) and gets upset when his mom takes my side.
Open ADHD / ADD
I think my 8 year old daughter has ADD but I am not sure since I haven't really talk to her ped. Before I make that appointment I would like find some more info on ADD. ANY SUGGESTIONS?
Open Depression
Type: Clinical (Major) DepressionWell... I don't know where to start.. I'm a single mom with two girls , 5yo with leukemia and 8yo with what I think ADD. I moved to VA from NYC last November and my daughter got diagnosed with ALL in January. I almost lost her last summer due to high infection. Now they both go to the same school and I am ready to go to work.. One problem.. Nobody wants to hire me.. I guess because I lost my last job... I feel worthless
Open Eating Disorders
Type: AnorexiaI love good food but I hate cooking and my appetite is really low... now that I think about it I don't have any appetite. I eat when I'm really hungry and that happens maybe twice a day. I look like a tooth pick and I hate it. I am embarrassed to go to the doctor and get myself checked.
Open Family & Friends of Cancer Patients
My 5 year old daughter was diagnosed with ALL in January, 2007. She's in remission now but I still drive myself crazy worrying about her.
