Journal Entry for October 26, 2007
October 26, 2007 11:22am
good bye all
DebVS
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About Me
DebVS
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About Me
I own an interior design business. I am single. I have a very strong Christian faith. I used to be full of energy working 16 hour days & going out with friends every night. Now I suffer from severe RA, Fibro, & a very rare auto immune disease called relapsing polychondritis which in my case is terminal. RPC only affects 3 in one millin people so research & treatment are not great. I am currently on my 3rd round of chemo. My RPC is crushing my windpipe & making breathing very difficult & I am rufusing a trach. tube.
I own an interior design business. I am single. I have a very strong Christian faith. I used to be full of energy working 16 hour days & going out with friends every night. Now I suffer from severe RA, Fibro, & a very rare auto immune disease called relapsing polychondritis which in my case is terminal. RPC only affects 3 in one millin people so research & treatment are not great. I am currently on my 3rd round of chemo. My RPC is crushing my windpipe & making breathing very difficult & I am rufusing
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Interests
I love to create beaded jewelry when my hands will allow me. I love to bake & go out to long lunch's with friends.
I love to create beaded jewelry when my hands will allow me. I love to bake & go out to long lunch's
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Journal
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Journal Entry for October 24, 2007
October 24, 2007 5:09am
10-24-7 3:45 a.m.
It's been a long night. yesterday was Chemo day. Needless to say I have been up sick all night. I don't think I …
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Journal Entry for October 23, 2007
October 23, 2007 9:27am
Feeling good this morning. Going to try to get some work done before going to Chemo at 1. My clients have been so understanding through …
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Journal Entry for October 22, 2007
October 22, 2007 1:34pm
Very tough day today. My breathing is very labored & I am exhausted. Days like this make me feel the end is near
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Journal Entry for October 21, 2007
October 21, 2007 8:31pm
10-21-7
What a difference 24 hours can make. Had a wonderful day at my nephews birthday party then went to evening church. I usually am …
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Hugbook
Prayer
what a beautiful angel you are
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Hug
Hug
i dont know you but i guess you are a pritty special person and i would have liked to know you, you have left an impact on everyone God bless you
Prayer
i'm happy to hear that you will be ready if God should call you; you are in my prayers. you are an inspiration to me. i hope to see you some day.
Hug
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Photos
DebVS hasn’t uploaded any photos yet
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Support Groups
Close Rheumatoid Arthritis
Suffer from RA,Fibro,Relapsing Polychondritis(RPC),depression My RPC is terminal because it is crushing my windpipe & I am refusing a trach. tube. I ham on my third round of chemo for the RPC, RPC is a very rare auto immune disease effecting 3 in one million people
Treatments
- Celebrex Not Working
- did nothing
- Enbrel Somewhat Helpful
- worked at first
- Methotrexate Not Working
- didn't work, loss all my hair
- Prednisone Working / Worked
- 80-120 mg a day to keep soft tissue around trech open
- Remicade Not Working
- just finished 4th infusion worked best so far for RA Had to stop because of a rare side effect it can cause with the chemo
Close Chemotherapy
I have RA along with a rare auto immune disease that effects 1 in 250000 people called relapsing polychondritis(RPC) up until three days ago they also thought I had wegeners another deadly auto immune but finally ruled that one out. I have been on three different chemo treatments in the past 8 months all worse then the other.
Treatments
- Chemotherapy Not Working
- three different combos just started #3 four days ago so we will see
- Compazine Somewhat Helpful
Open Physical & Emotional Abuse
I am a 38 year old terminally ill femal who spent until 17 years of age being physicall & emotionaly abused by my father. After moving away for a few years a mved back to the area I was raised & was able to establish a better realationship with my father through some counseling. Now 15 years later we have not spoken in 2 years his violence has escalated, my mother finally left him 3 years ago & all family has cut off contact with him. He knows I am dying has not contacted me.
Treatments
- Abuse Counseling Working / Worked
- helped
- Forgiveness Working / Worked
- I have forgiven myself for letting him abuse me but I can not forgive him
- Group Therapy Working / Worked
- helped
- Leave Working / Worked
- Talking Working / Worked
Open Chronic Pain
I am 36 interior designer who has suffered from severe RA for over a year, fibro, & a very rare auto immune disease called relpasing polychondritis which in my case is terminal. I live in constant pain & the RPC is crushing my windpipe making breathing very difficult. I take large amounts of steroids to keep my airway open which in turn has given me cushing systrom. I also take chemo weekly & narcotics for pain control. The severe pain has put me in a severe depression. I am single.
Treatments
- Morphine Not Working
- did not owork
- Nerve Blocks Working / Worked
- works sometime
- Oxycodone Working / Worked
- works the best for daily control of pain
- Topamax Working / Worked
- cuts the edge off the high does's of steroids
- Remicade Working / Worked
- works well for the RA
