AllisonsMom

Open Muscular Dystrophies

My daughter, age 23, has Spinal Muscular Atrophy Type 2. She was diagnosed at age 16 months. She lives with me and I am her sole caregiver. Hope to network with others on new treatments, how to cope not only with the physical needs but also the emotional stresses.

Open Bereavement
Type: Loss of a Parent

My Mother passed May 24th, 2007 from brain cancer. I was holding her hand when she left us. I am grateful for that because she was there for me when I drew my first breath and I was there for her when she took her last. It is still unreal and I catch myself thinking things like "oh. Mom will know" . Sometimes I say to my daughter, "She really died, didn't she?". We were very different people, but I loved her and know that she loved me.My dad is lost without her. It's just so sad to see him.

Treatments

Crying Somewhat Helpful

Keeping Busy Working / Worked

I am the sole caregiver to my daughter who has a neuromuscular disease and I work full time, so keeping busy was not really a choice.

Music Working / Worked

I find more comfort in music than I do in words.

Prayer Working / Worked

Remembering Too Soon to Tell

My dad wants us to all go the cemetery every weekend. I go when I can because I know it helps him.

Open Breakups & Divorce

Officially divorced in 1999, but it was over way before that. Biggest regret is that I didn't divorce him sooner. Spent 25 years enabling his rage, abuse and drug/alcohol addiction. When emotional abuse turned physical, I found my spine and divorced him before I became a headline. We have a physically disabled daughter and I didn't know if I could manage alone, but it got to the point that I knew whatever happened after divorce had to be better than what we were living. I was right.

Treatments

Leave Working / Worked

Once I finally got him out of here, I realized the extent of the abuse my children and I had been enduring. I regret that I didn't get my children away from him sooner.

Open Health Care Reform

Single mom and sole caregiver to my disabled daughter. She gets no help and my health insurance is so expensive and benefits are small. Something needs to change.

Open Diverticulitis

Was diagnosed 8/06 with diverticulosis after a sudden GI bleed that came without warning. Had a second bleed a few days ago and spent 2 nights in the hospital, monitoring hemoglobin. I just got out of the hospital yesterday (2/24/08) Just looking for answers and other's experiences.

Treatments

High Fiber Diet Working / Worked

Thought it was working, but had another bleed. I've never had diverticulitis...only the "osis"

Psyllium Working / Worked

Try to remember to drink it daily.