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  • About Me

    Image of likeitloud311

    likeitloud311

    Female, 36
    palatine, IL, USA
    Member since October 17, 2007

    • About Me

      i work full time as a graphic designer. some days it's very difficult to just get out of bed, get dressed, drive to work, etc, but i keep on trying. my husband and my job are both very understanding. i love nature, water, swimming, cats & of course, music. my fav band is 311 (www.311.com). they've gotten me through many times of pain. i've lost some so called friends since getting sick. i'm here to talk about things that only us fellow DS members can understand. i hope to give out love and support to all in need on here!

      i work full time as a graphic designer. some days it's very difficult to just get out of bed, get dressed, drive to work, etc, but i keep on trying. my husband and my job are both very understanding. i love nature, water, swimming, cats & of course, music. my fav band is 311 (www.311.com). they've gotten me through many times of pain. i've lost some so called friends since getting sick. i'm here to talk about things that only us fellow DS members can understand. i hope to give out love and support

  • Journal

    • This entry is private

    • This entry is private

    • This entry is private

    • last poem for dad

      Mood November 4, 2008 12:22am

      Here's the poem I was finally able to write for my dad.

       

      With a stern voiceAnd a heart of goldYou were the best dad everSoft, yet …

    • i'm coming back

      Mood November 3, 2008 11:37pm

      hi all!

       

      just letting everyone know that i'll be coming back on here soon. i've been gone awhile, and i've missed it. been going …

    Read Journal

  • Hugbook

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  • Goals

    Progress

    5 %

    Goal End Date is Mar 20, 08 613 days ago.
    Current Weight (Lbs)
    165
  • Support Groups

    • Close Rheumatoid Arthritis

      35 years old. have severe RA all over my body. hardcore symptoms began when i was 30 years old, i was diagnosed at age 31. i take humira shots once every other week, and trexall (methotextrate) pills every week. i hate medicine! i find it very difficult to try explaining to others how i feel most of the time, and how its changed my life with everything i do. most people wont, cant or dont understand, but how can they if they dont have it. thats why im here. i need 2 talk 2 others who can relate.

      Treatments

      Marijuana Working / Worked
      Smokin up helps take away my RA pain a little, helps me relax & helps me try to take my dreaded pills for my RA. :)
      Folic Acid Somewhat Helpful
      i think it works. i don't notice a difference with or without it, but i'm told i need it. i do notice if i don't take them, i get mouth sores. how fun.
      Humira Working / Worked
      before my 1st humira shot, i couldn't move that much. after my 1st humira shot, i could move. it was amazing. after a year or so of taking it, i have gained weight & get weird mosquito-like bumps in different areas almost every week. they itch like crazy & the doctors always say it's probably nothing. i prefer the syringe over the pen.
      Marijuana Working / Worked
      Smokin up helps take away my RA pain a little, helps me relax & helps me try to take my dreaded pills for my RA. :)
      Methotrexate Somewhat Helpful
      ugh!!! this stuff makes me sick to my stomach & i suck at taking pills. my dr has switched me to Trexall instead.
      Prednisone Working / Worked
      this stuff sure does work, but the side effects of a swollen face isn't worth it. i don't take this unless i really have to, and then only for the shortest amount of time possible.
      Swimming Working / Worked
      i try dragging my sore self to the health club pool as much as possible, and when i can't my husband takes me there. the water helps SO MUCH even if i just move around in it.
    • Close Chronic Pain

      I have severe RA all over my body. Every second, day & night, I'm dealing with chronic pain. Wish it would just go away.

      Treatments

      Chiropractic Adjustment Somewhat Helpful
      Worked at 1st, then a disc fell out of place. Never went back. Swam instead, seems to help with my RA pain.
      Heat Working / Worked
      Works sometimes for my RA pain.
      Marijuana Working / Worked
      DEFINITELY WORKS. THE BEST MEDICINE OUT THERE! AND IT'S ALL NATURAL!!!! :) TAKES MY RA PAIN AWAY!
      Meditation Working / Worked
      Works when I do it. Sometimes my RA hurts too much to do it.
      Mobic Not Working
      Didn't work with my RA pain. Made me very sick to my stomach.
      Physical Therapy Somewhat Helpful
      I only got into occupational therapy. Sort of helped. I'd rather do real physical therapy for my RA pain.
      Sleep Working / Worked
      This is a biggie. Seems impossible to sleep through the night with chronic pain. But when I do sleep, oh my what a difference with my RA pain!
      Swimming Working / Worked
      Helps when I go! Hard to go when in so much pain from my RA!
      Cyclobenzaprine Working / Worked
      Helps when I have severe pain in a certain area that won't go away. I usually use it for inflammation in my neck/shoulders, which is most likely neck strain, which is easily aggravated since a bad car accident back in 1999. I don't think this is due to my RA. I only take it when I really need it.
      Valium Not Working
      Didn't work, made me upset to my stomach. Used it for muscle spasms in my neck that I get from time to time. I don't think it's due to my RA, but rather a bad car accident I got into back in 1999.
    • Open TMJ

      Have TMJ from a bad car accident I got into back in 2000. I got rear ended by a huge suv, as I was stopped at a red light. The airbag hit my jaw, shifting all my teeth.

      Treatments

      Marijuana Working / Worked
      Smokin up helps take away my TMJ & RA pain a little, helps me relax :)
      Mouthguard Working / Worked
      It helped, but it was extremely painful to go through.
    • Open Phobia

      I think I have a phobia of taking pills. I hate it terribly. Unfortunately, I need them for my severe RA. Not taking them on time is detrimental to my well being, but I can rarely take them on time, or without freaking out. What to do, what to do.

      Treatments

      Marijuana Working / Worked
      Smokin up helps me relax & try to take my dreaded pills for my RA.
      Music Working / Worked
      Putting on music helps me relax & try to take my dreaded pills for my RA.
    • Open Back Pain

      I started having severe back pain early this year. The pain came on suddenly. My regular doctor says I have muscle spasms. The chiropractor says I have lower discs out of place, 1-2 degenerative discs & my neck is pushed forward.

      Treatments

      Bedrest Somewhat Helpful
      Helps, but too much bed rest hurts.
      Chiropractic Adjustment Somewhat Helpful
      Helped at 1st. Then I had to stop going because insurance wouldn't pay anymore & I can't afford it.
      Flexeril Working / Worked
      I only take this if I really have to. Seems to take my back pain away for a short while. I don't feel tired or groggy on this.
      Heat Working / Worked
      About 5-10 minutes throughout the day & before bed helps my bad back.
      Relaxation Working / Worked
      When I actually do let myself relax, it works for everything. Deep breathing.
      Stretching Working / Worked
      Stretching definitely helps my bad back & my RA. I do it as much as I can. My husband helps me when I can't do it.
    • Open Fitness Goals
      Type: Other

      gained about 30 lbs since getting RA. i need support trying to lose it.

      Treatments

      Swimming Working / Worked
      works big time, but only when i actually do it.
    • Open Diets & Weight Maintenance

      gained about 30 lbs since getting RA. i need support trying to lose it.

      Treatments

      Eating Healthier Foods Working / Worked
      works when i actually do it.
      Physical Exercise Working / Worked
      i used to swim a lot, but it's hard with RA. i need to go more.
    • Open Hypermobile Syndrome

      i have RA and recently found out i also have hip bursitis.

    • Open Trichotillomania (Hair Pulling)
      Type: Compulsive Skin Picking

      i bite my nails and pick the skin around my fingernails a lot. i hate it. tried to stop, but i always start again. i notice i do it most when i'm stressed, have anxiety or am bored. i hide my hands a lot.

    • Open Bereavement
      Type: Loss of a Parent

      my amazing, young mom died 8-13-08 from terrible bone cancer. she was only 65 yrs old. i'm glad she's no longer suffering and in pain, but wow what a huge lose. i am dying inside. my wonderful, young dad died 8-28-08 from terrible heart disease. he was only 76. i'm glad he's not suffering anymore, but another huge lose. they were not only my parents, they were my best friends.

      Treatments

      Crying Not Working
      UGH
      Getting Angry Not Working
      i kicked the wall in my house 2 days prior to mom passing. all it did was cause more problems.
      Grief Counseling Considering
      Keeping Busy Somewhat Helpful
      Music Somewhat Helpful
      helps
      Pets Working / Worked
      my cats help a lot.
      Remembering Somewhat Helpful
      very sad, though
      Support from Friends & Family Working / Worked
      def helps
      Support Groups Working / Worked
      Daily Strength helps!
      Talking Working / Worked
      def helps
      Time Not Working
      it's only getting worse as time goes by.
  • Groups

  • Friends


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